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Elderly parents

Dad dying, how to cope with Mum

819 replies

MintyCedric · 28/04/2020 23:35

I was on here about a year ago after my dad had a bad fall and broke 4 vertebrae.

To cut a long story short, although there was no spinal cord damage and we got him home after 7 weeks, he never really recovered and his health and wellbeing has been on a downward trajectory ever since.

Shortly after lockdown he became largely bedridden (other than going to the bathroom) due to weight loss and lack of strength/balance. Verdict of 2 x GPs and practice nurse is that it's likely he has some kind of late stage gastrointestinal cancer and a prognosis of a couple of months at best.

Over the last week has been struggling to get to the bathroom (he has a commode and portable urinals in his room.but I've had to hold him up to use the latter. Today he made it out to the loo but I had to lift him off it).

Mum seems to be somewhat in denial and is not really managing to make any decisions about equipment and carers, and emotionally is utterly exhausting.

I'm visiting them almost daily, sometimes for several hours or more than once, but feel I'm spending all my time propping mum up. I want to be supportive but I'm also trying to work from home, keep an eye on 15yo DD (who is great but starting to forget what I look like), keep my own home/paperwork under control and look after myself (which is frankly a lost cause).

I feel guilty as hell for both resenting Mums demands on my time and brain space, and also because I'm dealing with the dad aspect on autopilot and have barely cried or even begun to process the situation.

I imagine my mum's emotional demands will only get worse and feel like my life is basically going to be over for the foreseeable future. I'm terrified I'm going to have give up work and my home to care for her and although I love her dearly, we are like chalk and cheese and I just don't think I could cope.

OP posts:
Coconut80 · 13/09/2020 18:21

Brilliant news you are standing firm well done. How did your Thursday night go I'm hoping it was a romantic night for you xxx

justilou1 · 14/09/2020 09:55

I can’t wait to hear about Thursday! I assume you are keeping those plans to yourself or they will be surely sabotaged by a massive drama requiring your immediate intervention. STAY STRONG!!!

MintyCedric · 14/09/2020 22:57

Thursday wasn't really that big a deal but it was something just for me and the most fun I've had in a looong time...and that's all I'm saying!

Mum is struggling with having him home. Carers aside the GP surgery, community nursing team etc appear to have no interest in Dad/us at all.

He was transferred to a different GP temporarily and mum has had a fair bit of hassle getting him moved back. Community nurse team have signed him over to end of life care team, but although he's probably at the last but one stage of the frailty index, all his vital signs are steady so not really sure how appropriate that is.

Being back at work is more stressful atm tbh. An opportunity has come up which is great and I'm helping cover the role at the moment until they get round to recruiting, which is great, but working in a school is pretty scary right now.

We're probably getting 12 - 15 kids quarantine or being sent home symptomatic per day already. One of my teaching colleagues doesn't think we'll make it to half term, so it's pretty grim.

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justilou1 · 15/09/2020 11:36

Very pleased you had some fun after such a long, grueling couple of months!!! I can understand why working in a school would be terrifying!!! (And that’s not even factoring in Covid, tbh!) I live in Aus and I can’t believe how fast and loose the everyone over there has played with this virus over the Summer! Your job is one more reason to keep away from the olds, as well. Not only for your dad, but your mum and the carers and any medical personnel your parents encounter. I’m not surprised your mum is unraveling. It’s exhausting, and she will be micromanaging the carers who do come in as well. I think that you are right to maintain your distance for now and step up again later. You will know the time. X

Coconut80 · 18/09/2020 12:15

Hi Minty, I'm hoping no news is good news. I really hope things have eased off for you and that you are feeling better mentally xx

MintyCedric · 18/09/2020 19:23

Hi Coconut!

Things ok-ish at the moment. Obviously still part braced for it all to go to hell in a handcart but just enjoying the relative calm whilst I can!

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Coconut80 · 18/09/2020 22:47

Great to hear things are calm. Hope you are feeling better mentally. Take care xx

VictoriaBun · 24/09/2020 19:26

@MintyCedric
How are things with you ? And hopefully no real meltdowns from your mum.

MintyCedric · 24/09/2020 23:25

All OKish.

Mum had a bit of wobble after a poonami this morning, but im practising lots of 'nod and smile' atm.

Life outside the Olds is busy and generally good...New job to apply for, seeing more of friends, autumn coming which I love.

I'm sure fate will come along and bung a spanner in the works at some point but just making the most of it for now.

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VictoriaBun · 25/09/2020 08:19

That sounds like you have ' balanced ' your life out better , rather than being at your mothers back and call. Good news !

Weenurse · 25/09/2020 10:07

Well done

MereDintofPandiculation · 25/09/2020 21:12

Well done! You're sounding a lot better, less stressed.

MintyCedric · 26/09/2020 08:19

Thanks all.

I think the turning the point was when the nursing home told us 'he said he wants to go home so thats what's needs to happen'.

I was at my lowest point then, and that one statement made me realise that however much I might want to fix things for my parents the situation is simply beyond my control.

They both have capacity
Mum is next of kin
They have money, I do not
The professionals involved will only listen to the 'voice of the patients' and make decisions based entirely on medical need rather than what my comfortable or make life easier for us.

I realised I'd basically been driving myself mad banging my head against a brick wall for six months.

I still phone every day, visit on Sundays and stay over once a week. I will always be there for them when the shit really hits the fan, but I have largely made my peace with the fact I can't be all things to all people all the time, and there will be occasions when some people don't like that, but it is what it is.

I hope you're all getting on okay with your own situations.

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Candleabra · 26/09/2020 09:47

That's brilliant minty. It's amazing how some space and reframing the situation in your head can change things. Keep going though, it's unfortunately a marathon not a sprint. Not to be the voice of doom (you really are doing so well!) but just a gentle reminder that these boundaries need to be strong or they'll be eroded gradually again. Allow yourself to have a life too. Good luck with your job situation.

Knotaknitter · 26/09/2020 10:31

I'm glad that you are in a better place now that you accept the situation as it is rather than as you'd like it to be. I hope that it never gets that bad again.

MintyCedric · 26/09/2020 11:28

@Knotaknitter

I'm glad that you are in a better place now that you accept the situation as it is rather than as you'd like it to be. I hope that it never gets that bad again.
Me too!

I think my going back to work has forced mum to accept my limitations which has helped, and luckily its coincided with a positive change in my job, although whether that will be permanent remains to be seen.

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thesandwich · 26/09/2020 11:44

Good news minty- perfect example of all we can change is our own attitudes/ responses.
But as others have said, protect those boundaries....

VictoriaBun · 26/09/2020 15:27

Very well said ! , to put it as it's most basic, You can lead a horse to water , but you can't make it drink.

DPotter · 27/09/2020 12:55

Minty - that a big leap forwards. I wish you well

RandomMess · 27/09/2020 23:14

I am so glad your thinking has changed.

They have choices, you need to stand back and let them make poor ones and have to put up with the consequences Thanks

coronafiona · 27/09/2020 23:21

You could ask for a convene (sp?) which is an external device instead of a catheter. That might help.

LasagneQueen · 28/09/2020 00:37

This reply has been deleted

Message withdrawn at poster's request.

user1497787065 · 28/09/2020 03:01

Minty - I relate to the whole of your thread. My father had terminal cancer and my mother was just like yours.

What I actually came on to say though was the way you write is most certainly publishable.

LasagneQueen · 28/09/2020 21:44

@user1497787065 thank you Blush.

I'm really sorry you went through this too.

VictoriaBun · 09/10/2020 21:11

How is it going Minty ? All well hopefully for all.