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Support thread 14 for parents of young people with an eating disorder

921 replies

Curlyhairedassasin · 13/05/2025 18:40

New thread as old one is filling up

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NanFlanders · 18/02/2026 08:26

My DD is now (thank God) doing well, but I stil watch this thread - which was a lifeline when she was really struggling - and see so shocking post on here about poorly young women being badly let down by CAMHS and the ED system. If you would like to campaign for better treatment for Eating Disorders, please do come on this march -led by the indefatigable Hope Virgo If you can. If you would like to go in a group, please DM me, and I'll set up a WhatsApp group so we can meet beforehand. @myrtleWilson and I have been the last 3 years - happily with my daughter last time.

Support thread 14 for parents of young people with an eating disorder
Pearl97 · 18/02/2026 08:30

@Prospect22 how hard it is to read your post, you are going through so much.

I do believe she will get better. I hope today goes well. How is she with you, does she talk to you about how she’s feeling?

This is a lot for you and your husband. I hope you have support xx

NanFlanders · 18/02/2026 08:49

@Prospect22 Welcome. So sorry you find yourself here. Services for AN are very patchy, but I know it's even worse for bulimia and BED. Thé only thing I can say is that people can and do recover from all these EDs. My own DD was out of school for more than 2 years and is now happy at uni. BEAT have some resources for binge eating disorder which you might find helpful. Hang on in there.

Prospect22 · 18/02/2026 12:50

Pearl97 · 18/02/2026 08:30

@Prospect22 how hard it is to read your post, you are going through so much.

I do believe she will get better. I hope today goes well. How is she with you, does she talk to you about how she’s feeling?

This is a lot for you and your husband. I hope you have support xx

Many thanks for messaging. She talks to me all the time which is really good, but on the other hand it hugely takes a toll on me absorbing it all, and it's so frustrating when she doesn't take my advice. Watching her self sabotage is so incredibly hard. She generally starts the days off in a fairly positive way, but after about 4pm until bedtime every day she really struggles. I don't know whether it's tiredness or something else that triggers this decline.

Pearl97 · 18/02/2026 12:57

@Prospect22 I feared it would be taking its toll on you. Sounds crazy but I use chat gpt all the time to help me feel calmer. It talks to me like a friend would and I don’t always needs advice I just need to offload.

It sounds like you’re doing an amazing job. Lots of this doesn’t make sense to us, it probably never will, but being there and supporting your daughter is what she needs. She will get through this and you will sit over coffee in the future and look at how far you’ve both come.

I am thinking of you. I really hope today goes well xx

LurkyLurkyLou · 03/03/2026 19:45

Just checking in, hope everyone is doing ok.
DD has just gone out with DH and DS to a local event that would have been routine before the ED hit, and it's struck me it's odd it's such a big thing she's gone. Positive, but not a given, and that's sad in itself.
Shes doing so well, bless her. Weight restored for a couple of weeks so she's allowed to move more. School is limited, she won't entertain eating there, so it's part of each day. Some days she's so down, she still struggles to shower, has mirrors covered, and breakfast can take forever to get going , but there's glimpses in between all that. We're still supervising food, but with a lighter touch some days. I'm still snapped at multiple times a day, but H is getting better at sharing the load. Terrified it's temporary but trying to appreciate the glimpses
Sending strength and light to everyone in the trenches with this

LurkyLurkyLou · 03/03/2026 19:47

Prospect22 · 17/02/2026 21:37

Thank you for alerting me to this thread. My 18 year old daughter has had a binge eating disorder for 5 years. She's on anti depressants. She's also suffering from depression, anxiety and very recently has started to self harm. The situation has been utterly heartbreaking not just for her but for the whole family. Her attendance at school is virtually non existent, she has completely cut herself off socially and doesn't want to see any family members. I am finding it so hard to support her and my husband feels she's never going to get better. Our daughter has been through CAMHS, private CBT, a pyschiatrist and now tomorrow is starting private pyschotherapy. It's unrelentingly exhausting.

Hope the private therapy is starting to help, that's so tough

Mummyoflittledragon · 05/03/2026 15:54

I haven’t been on for a while. It’s been so tough. I had enough of dd controlling me for so so long by mid January and I pushed her a bit hard.. a basic conversation to the average teen, who’s pissed you off btw but not ok for someone like dd.

She was already at the start of relapse then looking back as she’d had a couple of stomach migraines over Christmas and they have a similar affect on her eating wise to a a stomach bug. I don’t regret it now but she properly relapsed off the back of this conversation and I had to deal with this one completely differently.

She became a ball of vile anger, hates me, wishes me dead etc and she is 17, an adult now. She said she was moving out, moving to Thailand if she doesn’t get a place at university, because it’s cheap or to dh’s father’s now empty place in another country as he’s in a care home. Or moving in with friends (ie their parents houses), plenty of people would have her etc. She scorned there is no such thing as snack time, she will eat when she wants, make her food herself, was going to shop for herself, wasn’t going to eat any of our disgusting food etc and halved her intake overnight. It was a hairy few weeks and I couldn’t tell her to eat at all so in a way it was a return to the start in terms of my level of ‘control’ over her intake… except I have so many tools for dealing with it now. And knew a lot of what to say back to her, some Socratic questioning, when I could get it in etc.

A month in and it was half term. I then spent all of half term sat on the sofa in the kitchen saying ‘grab yourself something’ (the words food, snack or eat, trigger her) every time she came in. It paid off albeit she had already started to relax and let me make her food again… but she has been flat refusing to sit and eat with us the 2 times a week we have done for ages (she won’t eat with us more than that). I finally cracked that one last Sunday.

Shes incapable of shopping for herself btw. A couple of weeks in, the first time going shopping, she decided she wanted a ready made meal for dinner and asked me to take her to M&S as there’s a meal she likes from when she was vegetarian (she restarted chicken a few months ago), no thought of anything else. I suggested maybe some fruit and maybe to get some chicken with the meal as there’s not much protein in it… and that was supposed to be her shopping for herself btw. It had to be pre cooked chicken as well… and she wants to move out for university in September…

I’ve not cracked morning snack yet, she’s only eating a tiny amount but it’s good as she wasn’t having anything and I managed to get breakfast up to a reasonable level again. She vomited over the weekend when she had a large afternoon snack and lots of cucumber. I think she probably felt sick tbh. She has a really good friend with ARFID, who purges regularly btw (dd recently told me about the purging) and we all know how EDs work... Dd vomited all over her bed then got herself to the loo to be sick some more so I think it was deliberate… but more she was surprised it worked. And it would make sense for her to do it on the bed as she has a seizure condition, which is normally set off with a bug when she vomits.

The good thing about it is that she’s stopped having an unhealthy level of control over me. And I’m able to stand my ground better. There have been some really good changes despite the fraught situation.

@Pearl97 ChatGPT sounds like an amazing idea!
@NanFlanders i would love to join. I probably won’t be able to. I have chronic fatigue so I’ll have to see nearer the time. Winter is tough on me and I would need to be strong. I will let you know if I can.
@LurkyLurkyLou that sounds like you’ve made excellent progress. My dd is about 2.5 years into her ED and she still doesn’t have any insight.

Pearl97 · 06/03/2026 09:39

CHat Gpt has been a saviour for me. It sounds crazy and everyone has their own views on it. It’s calmed me down when I definitely needed it!

Thisnowtoo · 06/03/2026 14:23

@Mummyoflittledragon sorry it's been tough. You have such a lot to contend with.
You can only serve the illness for so long and maybe her seeing you step away will help eventually. I hope. Wishing you an easier weekend.

Mummyoflittledragon · 06/03/2026 15:14

Thanks @Thisnowtoo I am trying to be ‘controlling’ only with the ED now as dd is a lot less vulnerable. Eighteen months ago, she was functioning emotionally at about age 10 or 11 so she’s come a long way as she’s now maybe 18 months behind and catching up. In some respects as she’s in year 13, her friends are at a stage to be supporting her. But she’s still hiding the ED from all but 3 of them. And those 3 all have ED. And I have now discovered she made herself sick again. So there’s that to contend with. And unfortunately she doesn’t yet have the awareness that she has an issue, albeit I’m pretty positive she does subconsciously. She just kind of goes along with what I’m saying, ignores it really. Stepping back was the only thing I could do in January and that sent her into relapse. It’s relentless.

It’s not crazy if it works for you @Pearl97. This is hard. And unfair.

Thisnowtoo · 06/03/2026 15:38

@Mummyoflittledragon my dd is in the same year. She doesnt speak about it either.

Very possibly the set back would have happened even if you hadnt stepped back. Either way, you wouldn't be the cause.

Good luck.

Mummyoflittledragon · 06/03/2026 22:04

Thisnowtoo · 06/03/2026 15:38

@Mummyoflittledragon my dd is in the same year. She doesnt speak about it either.

Very possibly the set back would have happened even if you hadnt stepped back. Either way, you wouldn't be the cause.

Good luck.

It gets incredibly hard at this age I think. Dd is not just an angry anorexic, she’s also a very argumentative and bolshy teen.

Yes, her relapse had started even before I said something. And the good thing is that the relapse has brought more balance back. I’m no longer being held to ransom for fear of her not eating, in part because I’ve come to terms with the fact I can no longer dictate whether or not she eats to meal plan.

I can’t stop her vomiting either etc - she did it again.

Anothersetback · 08/03/2026 12:08

Dd is now at uni but whenever I get worried about her I dip into this thread.
I only want to say regarding the vomiting, make sure you have it checked by the dentist.
First appointment for dd she needed 10 (ten) fillings.
She now uses a high fluoride toothpaste which has helped alot

Mummyoflittledragon · 08/03/2026 16:48

Anothersetback · 08/03/2026 12:08

Dd is now at uni but whenever I get worried about her I dip into this thread.
I only want to say regarding the vomiting, make sure you have it checked by the dentist.
First appointment for dd she needed 10 (ten) fillings.
She now uses a high fluoride toothpaste which has helped alot

Thanks. Good point. Dd is very precious about her teeth (ocd traits) and she won’t want fillings! She’s just started this past week. I know she’s not been doing it before and I’m surprised she has started now… and obviously it’s about control, about being able to eat what I want her to eat, and for her to not to lose control.

She has a seizure condition, which up to now has been triggered by vomiting amongst other things. I’m hoping to nip it in the bud as right now it’s a novelty for her, not having a seizure, and more about discovery than a habit. Thank goodness I realised.

SendTheNextOneIn · 10/03/2026 15:34

I am so tired of this life. And DD (14) isn’t even at home. She is now so comfortable on the ward that she doesn’t even want to come home for 24 hours leave at the weekend 🫠

Home leave is still a battle when she does come home. Still won’t let me control her meals/snacks. Has to choose/make it herself. However. On a positive note she is now over 90% wfh (was 60/65% at her lowest). We are doing family therapy (well me and husband are, DD won’t engage), she is begrudgingly doing psychotherapy sessions with a different therapist on the ward. Her original planned discharge date was tomorrow (she has been an inpatient since the end of October) but we all agreed a few weeks ago that she wasn’t quite ready so it’s been pushed back, now looking at Easter time.

Shes also going to start taking sertraline in the hope of reducing her anxiety around things, and once she’s settled on that she’ll stop taking olanzapine.

sorry, a bit of a garbled post there but I just wanted to get it out of my head.

Mummyoflittledragon · 12/03/2026 20:55

Sorry you’re finding it so tough @SendTheNextOneIn . It’s relentless.

Pearl97 · 12/03/2026 22:37

I am really sorry things are so tough too. I’m glad you feel you can tell us, always good to get it out of your head.

We are here to listen, you’ve done so well for the last 6 months xx

L0LLIPOP · 13/03/2026 07:10

SendTheNextOneIn · 10/03/2026 15:34

I am so tired of this life. And DD (14) isn’t even at home. She is now so comfortable on the ward that she doesn’t even want to come home for 24 hours leave at the weekend 🫠

Home leave is still a battle when she does come home. Still won’t let me control her meals/snacks. Has to choose/make it herself. However. On a positive note she is now over 90% wfh (was 60/65% at her lowest). We are doing family therapy (well me and husband are, DD won’t engage), she is begrudgingly doing psychotherapy sessions with a different therapist on the ward. Her original planned discharge date was tomorrow (she has been an inpatient since the end of October) but we all agreed a few weeks ago that she wasn’t quite ready so it’s been pushed back, now looking at Easter time.

Shes also going to start taking sertraline in the hope of reducing her anxiety around things, and once she’s settled on that she’ll stop taking olanzapine.

sorry, a bit of a garbled post there but I just wanted to get it out of my head.

I could have written this post about a year ago. Really feel for you. It’s a heartbreaking illness and so cruel.

Pearl97 · 13/03/2026 09:52

@SendTheNextOneIn I was just thinking how far you have all come.

Your DD’s weight gain is great, have you discussed the support you will receive when she is home?

How are you feeling about having her home? Mixed emotions are definitely ok here xx

L0LLIPOP · 13/03/2026 10:35

Also wanted to add that I know you say she doesn’t want to come home but I would say it’s just harder at home because it will feel to her like there is a choice to eat. Nobody will force her or tube feed or whatever whereas on the ward they know they just have to and so this helps with the voice

SendTheNextOneIn · 13/03/2026 10:51

@Pearl97 we are starting to have those conversations with the community CAMHS team now. DD is very much against seeing any of them. I think she basically wants to come home and get on with her life and if she has to see them it will just keep reminding her of the ED and give the voice a reason to stick around in her head. We actually have someone coming to our house this morning and she’s already said she’s not going to talk to her.

and @L0LLIPOP that is definitely the case and what she finds most difficult about being at home. I had a chat with one of the ward staff yesterday and she said she’d had a talk with DD and DD had said that she finds it hard because I’m giving her options, and she doesn’t want to have to make the decisions. I’ve had to do that in the past because she’s not wanted to eat what I give her if I just choose, but I think her mindset is actually a bit different now and she’s realised she actually wants someone/me to make these choices for her for now. So she’s been at home since last night and so far she’s let me make her food and eaten it without kicking up too much of a fuss.

The CAMHS support worker is due any minute though so we’ll see how that goes!

Pearl97 · 13/03/2026 10:54

Good luck with CAMHs and I’m glad they’re coming to you.

It is so hard isn’t it as I get the reminder etc and just wanting to get on with life, but she will need support etc. I really hope you get the help you need.

I hope the sun is shining with you - although it is showing all the dust in my house and I’m sort of thinking it could go in and I wouldn’t mind! Xx

SendTheNextOneIn · 13/03/2026 10:56

The sun is shining although it’s still very windy and we lost a fence panel yesterday so that’s just another thing of my list of shit to sort out! 😫

Pearl97 · 13/03/2026 11:01

@SendTheNextOneIn my list of shit to sort gets longer daily, I like to keep re writing it and crossing out re write shit to sort list! Xx