@Glitterfarti - sorry to hear that, how frustrating. Is anything being offered in relation to the anxiety? I still don't really get how anxiety about food, leading to lowering of body weight which compounds mental health difficulties, could be seen as not an eating disorder... is it worth going to PALS and putting in a complaint to see if the decision could be reviewed?
@Girliefriendlikespuppies - it can all feel a bit relentless with the same old arguments going round and sound. My dd has become really rigid about what she will wear - one black vest top is the only thing she will contemplate at the moment. I had to wrestle it off her today, after we agreed yesterday that was the last day of wearing it because it was absolutely covered in food / dirt. Such a strange contradiction about being so determined to look a certain 'perfect' way, but actually not caring about things like basic hygiene, and so hard to have any kind of sensible conversation.
Welcome to new folks coming into the thread . Feels a bit fraudulent saying that - I've been here 3-4 weeks ish, but have found the advice and support invaluable. I went back and read threads 8 and 9, I agree with a pp who said it's helpful to have this sense of nothing new under the sun. I feel like it helps me to prepare for what might be coming, and to be doing the best I can be today to help. I've really signed up to sneaking lots of extra calories in dd's food, we are going through two big tubs of double cream and lots of butter each week now. Plus eating a lot more red meat for the fat and calories. There are glimpses of my dd from time to time so I think we are on the right track. Going to add in some more fish @NanFlanders - this makes sense too.
I've also been doing the BEAT developing dolphins course, we are 2 weeks into a 5 week course and finding it really helpful, so id recommend that. I feel a bit more hopeful about recovery, but also daunted at knowing what this path is going to take in terms of hard work. I have a sense of feeling like this is all quite unfair, we didn't choose this, although of course no one does, who would?!?!!
Mirabella - I was thinking about your ds and the complexity of what he's going through. Sounds like OCD / anxiety has lead to disordered eating as a coping strategy, but I guess what I've learned over the last few hellish weeks is that no matter how Ed starts, the fact that it's a biologically based problem means that once it's become established it kind of doesn't really matter how it started. Someone had suggested reducing exercise to try and recover some weight / nutrition, and wondered how you / your ds felt about this? If he is already seeing a therapist on the nhs could they ask for a psychiatric assessment for the purpose of prescribing medication, there are a few options for managing ocd or anxiety which might help I guess. But sounds like the exercise might need to stop for the time being if that's possible.
@Proseccoismyfriend - I don't know much about hypnosis, were you in the room with your ds while he had the session? Are they focussing on coping with eating, or coping with anxiety? Or maybe neither, as I say I don't really know anything about it... But something to consider if it helps.