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Dementia and Alzheimer's

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Can you really decline this quick?

48 replies

gingerface40 · 13/08/2021 19:47

My mam is 73 and has been referred to the memory clinic.

She has been and just had a CT scan.

In the last month she has declined rapidly.

She has also fell and broken her wrist.

Now she is struggling to get words out and almost has a stutter.
She can't name certain things and has no concept of money at all.

She likes a drink and I think this has contributed to it, but she has had no withdrawals or nothing.

The last month I have noticed a massive decline, we don't even know what type she has. But can this happen?

OP posts:
Mrsjayy · 13/08/2021 19:51

This happened to my Gran, she fell broke her hip and didn't really recover she had Alzheimer's but .before her fall she was a bit forgetful she was 74. Sorry to hear your mum is declining.

LavenderAskew · 13/08/2021 19:54

Yes, I'm afraid it can. It's something that happens often after a fall.

It's so upsetting, I'm sorry it's happening to you.

Egghead68 · 13/08/2021 19:54

Does she have an infection, e.g. a UTI (urinary tract infection)?

Kayemm · 13/08/2021 19:55

My mum was diagnosed with dementia in January. She was ok until a fall in March and her decline in the couple of months after that was scary. She has levelled off a bit now but has lost so much.

gingerface40 · 13/08/2021 19:59

It's so hard, my poor dad!

But its hard for my children too.

It's so so sad! I am exhausted mentally.

It's waiting for results that's hard

OP posts:
hedgehogger1 · 13/08/2021 20:00

Could she have had a stroke?

imaginethemdragons · 13/08/2021 20:03

Yes.
It’s cruel.

gingerface40 · 13/08/2021 20:12

I was thinking that but we won't know until the CT results.

It's the wait!

OP posts:
Suzi888 · 13/08/2021 20:21

Yes it can. My aunt had dementia, fell and declined very quickly afterwards.

Though she remained very happy in herself, still recognised us and loved her food, which we were very thankful for. It’s a cruel disease.

Ensure she drinks enough water as not doing so can have a terrible effect (UTI), as a pp said. I hope she improves a bit for you once she’s settled and receives the care/medication she needs Flowers

FionaMoaner · 13/08/2021 20:22

Can someone please explain why a fall makes things worse? ThanksSad

Sorry OP, I have no advice but have a loved one with Dementia

Suzi888 · 13/08/2021 20:33

@FionaMoaner

Can someone please explain why a fall makes things worse? ThanksSad

Sorry OP, I have no advice but have a loved one with Dementia

@FionaMoaner I think it’s just the trauma and shock and the upheaval of having to go to hospital, disruption to routine. Routine is important to someone suffering with dementia (we found). Someone with medical knowledge may come on and say different though.
NeverDropYourMooncup · 13/08/2021 21:01

@FionaMoaner

Can someone please explain why a fall makes things worse? ThanksSad

Sorry OP, I have no advice but have a loved one with Dementia

And sometimes it's because they had a TIA or stroke that led to the fall in the first place.

It's hard, but it's also often 'normal'.

ExpressDelivery · 13/08/2021 21:24

I don't have much experience of dementia, but I do know that DH was thoroughly muddled and not at all coherent when he had a UTI and I know from a friend who works in a care home that that's the first thing they check if there's a sudden decline.

Twillow · 13/08/2021 21:33

Falls can happen due to a series of minor strokes or TIAs that gradually affect balance and coordination. These can happen in sleep so patients wouldn't necessarily be aware. Once the mental decline becomes obvious, it can deteriorate quite quickly I'm sorry to say. However, it can only be the speech that's affected and not necessarily the comprehension.
And yes UTIs are well known for causing an appearance of dementia.

saraclara · 13/08/2021 21:41

Another one suggesting that it's either a UTI or a minor stroke.

Crabbyboot · 13/08/2021 23:12

So sorry to hear this, yes people can decline very quickly for a number of reasons.

I agree with previous posts, check for infection first and make sure she is drinking enough.

People with vascular dementia can decline significantly overnight after having a TIA and remain stable until they have another episode when they decline again. Language problems are a symptom of vascular dementia particularly.

Heavy alcohol use can cause alcohol related dementia and drinking episodes can trigger very confused and agitated behaviour. However, it could be that alcohol is perhaps just causing her dementia symptoms to worsen. The odd tipple should be ok but too much could be problematic.

Does your mum like to listen to music? I would put on some songs for her that she would remember from her youth. Music therapy can really help stimulate language, and if it doesn't work at least it will lift her mood. Thanks

Backstreetsbackalrightdadada · 13/08/2021 23:41

Not much help other than to add definitely check for a UTI - know a lady who was honestly about to change her life after 2 months of sudden decline, family stepping in… turned out to be UTI (too much tea). I will be keeping fingers crossed for you - and if it’s dementia, there are lots of support groups to guide you through Flowers

Purplewithred · 13/08/2021 23:49

Definitely check for UTI.

When you say ‘she likes a drink’ what do you mean - is she alcohol dependent? That could also be a significant contributor, as PP said above.

Flowers
DeRigueurMortis · 13/08/2021 23:53

Sadly yes.

But you need to rule out other issues such as alcohol dependency and UTI's.

That aside, I've seen a healthy tea total family member go from living independently to needing specialist dementia care within 3 months.

Bighorriblemirror · 14/08/2021 00:00

@FionaMoaner

Can someone please explain why a fall makes things worse? ThanksSad

Sorry OP, I have no advice but have a loved one with Dementia

It's sometimes that the person appears worse when something 'out of the ordinary' happens because their routine has changed, but up until that point they have been able to mask many of the symptoms successfully, a fall that requires hospital treatment will usually cause more of a reaction because they're in a completely new place and that can be bewildering and stressful and stress usually makes symptoms worse. It can also be that they reach a point where they cannot mask symptoms because they may have lost some awareness of the symptoms and therefore it becomes obvious to those around them that there's a decline, and it seems sudden but actually it's been over a longer period and the 'newest' decline is being unable to manage their symptoms effectively alone, and so seems very sudden to loved ones.

It can also be as a pp said, shock and pain/fear after the fall and the effects of pain relief that might have different, more pronounced side effects in someone with dementia.

And the worsening of symptoms can appear to come after a fall, but could be caused by a TIA, UTI etc all of which cause confusion and other issues in elderly patients, which is exacerbated by dementia.

The problem is, sadly for many people once they 'lose' something, it's not going to come back, or not fully, so a UTI might cause a complete behaviour change, and be treated, and some of the person will 'come back' but the stress of the UTI (physically on the body/brain) will have taken its toll.
I'm sorry OP, heartbreaking for you all 💐

DontDoThatGeorge · 14/08/2021 08:51

"Too much tea" can absolutely not cause a UTI.

Lots of older people don't drink enough for various reasons. Any fluids should be encouraged, tea should not be limited. There are studies that show tea is just as good as plain water at hydrating people.

saraclara · 14/08/2021 09:26

UTIs are often caused by older people not drinking enough. Not drinking too much!

I really hope that poor lady hasn't had one of her pleasures in life reduced unnecessarily. My mum would have declined even quicker without her hourly cuppa!

LemonRoses · 14/08/2021 09:40

There are many factors, some of which are mentioned above.

Falls can undermine confidence in independent activities and the old adage ‘use it or lose’ it is very true with ageing people. If someone is fearful of leaving home, they become isolated and out of practice with everyday things. They lose muscle tone and mobility reduces.

There should be a diagnosis following scan and there should be input from the Admiral nurse at the local trust. If she’s at home and falling, a referral to the falls team and/or frailty team would be helpful.

There are ways to reduce falls risks including medicines reviews, specialist equipment for the lavatory and bed, better lighting, hearing check etc. There are also ways to encourage memory retention and support independent safely. It isn’t a cure, but can help significantly.

Unfortunately day care services have all but disappeared during the pandemic, but there might be something locally..

Keep her drinking tea. As much as possible. The only problem is very large quantities (litres a day) can upset sodium balance- but rare for older people to drink too much, as they are worrying about lavatory visits.

Some people with dementia are much less cognisant later in the day. It’s known as the sundowner effect and anything requiring them to be at their best is usually more helpful if it’s in the morning. Not everyone gets this, but many do.

Alcohol is a significant risk factor, but who would deny someone with dementia a cold cider occasionally? It’s about balancing risks with retaining quality of life.

People are often much worse after any hospital visit. Hospitals are chaotic, noisy, frightening places and increase delirium.

LemonRoses · 14/08/2021 09:43

Consider regular analgesics as pain is frequently under recognised in dementia.
Then check her footwear and her glasses are correct prescription and clean. Playing her favourite music quietly in background can help keep people present.

gingerface40 · 14/08/2021 11:13

Yeah we haven't stopped the alcohol as it is not much and the only thing she enjoys! She did use to like a good one when she was younger mind.

It's the Speech that is the worst, the stutter as if she is anxious to speak now, she can't retain.

Mood also as if she has given up and everything is masked with a snigger which she never does.

She use to enjoy TV and now she just sits there vacant!

It's a stress on my poor dad also

OP posts: