Page 4 | Long covid - guardian article

Coffeeinsunshine · 2024-06-05T10:18:40+00:00

This is one of the best articles I've read for an insight on what long covid can do to your life. https://www.theguardian.com/society/article/2024/jun/05/i-could-bench-press-100kg-now-i-cant-walk-lucys-life-with-long-covid

AnnieSnap · 12/06/2024 10:56

ArseInTheCoOpWindow · 11/06/2024 23:20

I had 2 severe vaccine injuries that manifested like LC. As no one made the connection l went for the second one.

Just slightly recovering from 2ns injury and caught Covid. Have had severe long Covid for a year. Can’t do anything or go anywhere. Too weak and exhausted. I try and walk 20 steps round the garden but don’t always manage it. Constant severe headaches., ams no brain at all.

I’ve been ill for 3 years now. I have no life and have lost all my friends. I hate this disease and how no one seems to care about it anymore.

I can’t cook a meal, drive a car, read a book, look at screens for any length of time. I dread hospital appointments. They put me in bed for days, and there’s so many. I often can’t hold conversations due to exhaustion. I’m on full Pip. I have to have a cleaner, someone who sorts laundry and live off ready meals as Dh is on his knees after 3 years.

l retired in 2021 age 57 from teaching. I’ve been ill practically ever since and will be 61 in November. 4 years of it.

I love my gp’s but have stopped contacting them. They just send me for more tests that l’m too ill to go to.

I look at people walking in the streets or running, or on holidays and wonder if they know how lucky they are. I get so jealous. A 10 minute car ride brings out a whole new raft of symptoms every time. Then they don’t go.

I honestly think it’s the disease that steals everything. It makes me extra hungry and l hate the weight gain.

Edited

I’m so sorry you are so ill and for so long. It sounds awful. I hope you do begin to recover 💐

AnnieSnap · 12/06/2024 11:06

@Persianpuss breathlessness is a classic sign of LC and not a symptom of the other possible conditions.

Persianpuss · 12/06/2024 11:09

Thanks. I don't have the breathlessness any more, it only lasted about 6 weeks. Have had chest xray since then and it was all fine.

Crikeyalmighty · 12/06/2024 20:26

@ArseInTheCoOpWindow I'm so sorry- I remember going through it same time as you- I honestly don't know if mine was vaccine or LC and I'm your sort of age too.

I'm a lot better but live in dread of covid again as it's taken me 20 months to get to this stage

I still have a weakness/arthritic tendency in my neck, an occasional wobbly unstable feeling in 1 leg and it's given me weird sore dry eyes intermittently but most days for a few hours. It also gave me gluten intolerance too but the daily headaches (crossed fingers) have gone, and the very frequent pins and needles in feet too

ArseInTheCoOpWindow · 14/06/2024 09:39

I was meant to be going to see Taylor in Liverpool last night with DD. Long Covid stole that too.

l hate this fucking illness😪🤬

Tryonemoretime · 26/06/2024 21:40

I've had LC for almost 3 and a half years. Before it hit me, I could dump my grandson into a wheelbarrow and race around the garden with him. Now if I try to do anything active, it can take a week to recover. I hate what it's done to me - but I'm also grateful because so many people have it worse than me. The government talks about the number of people not in full time work - but I wonder if many can no longer work because of LC.

AnnieSnap · 27/06/2024 12:44

Tryonemoretime · 26/06/2024 21:40

I've had LC for almost 3 and a half years. Before it hit me, I could dump my grandson into a wheelbarrow and race around the garden with him. Now if I try to do anything active, it can take a week to recover. I hate what it's done to me - but I'm also grateful because so many people have it worse than me. The government talks about the number of people not in full time work - but I wonder if many can no longer work because of LC.

And they talk about it in such a punitive way. Of course the numbers of people unable to work and claiming sickness benefit has increased since Covid. They only need to look at the science to understand why, but they would rather scapegoat vulnerable people instead. The sooner we see the back of this lot, the better.

Dreamlight · 27/06/2024 12:59

My DH has ME/CFS. It really affects both our lives as we have to plan around his energy levels. He was diagnosed about 6 years ago and has basically been left on his own to cope with it. He takes a raft of different vitamins to try and help. We are hoping that some research into long COVID will help with ME.

DH has A lot of the symptoms the lady in the article has, we just muddle along the best we can. It's shit but what else can you do. There is no support from the medical profession at all, no one is interested and they don't want to help.

Tryonemoretime · 27/06/2024 13:03

There is an oxygen therapy clinic near Bristol (the Brightwell Clinic). I think ME sufferers can be referred there. Perhaps there is a similar clinic near you?

Original poster

Coffeeinsunshine · 27/06/2024 13:51

Tryonemoretime · 26/06/2024 21:40

I've had LC for almost 3 and a half years. Before it hit me, I could dump my grandson into a wheelbarrow and race around the garden with him. Now if I try to do anything active, it can take a week to recover. I hate what it's done to me - but I'm also grateful because so many people have it worse than me. The government talks about the number of people not in full time work - but I wonder if many can no longer work because of LC.

I relate to this so much - except it's with my own young children.

To PP about sickness figures - there's never any mention at all about how long covid factors into the long term sick figures. Covid brings about all sorts of health issues, so not mentioning it seems deliberate-and an awful sign that so many more will face the horrific consequences of pretending it's a cold.

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Tryonemoretime · 27/06/2024 14:21

@Coffeeinsunshine I'm so sorry that you have this, too. And all the worse for you as you have young children. 😪

ArseInTheCoOpWindow · 27/06/2024 16:27

There was some article I an American thing saying 70% of the workforce could have LC by 2040.

And how was this going to be addressed as it would drastically affect the economy.

Original poster

Coffeeinsunshine · 27/06/2024 17:28

ArseInTheCoOpWindow · 27/06/2024 16:27

There was some article I an American thing saying 70% of the workforce could have LC by 2040.

And how was this going to be addressed as it would drastically affect the economy.

Edited

How did they say they were going to address it?

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ArseInTheCoOpWindow · 27/06/2024 18:12

Coffeeinsunshine · 27/06/2024 17:28

How did they say they were going to address it?

Show quote history

They didn’t have an answer.

Or rather they did, but it involved big public health interventions like Uv light and hepa filters in all public areas. And for governments to stop ignoring it and pretending it wasn’t happening.

Otherwise the economies of the world will not be able to support their disabled populations.

Original poster

Coffeeinsunshine · 27/06/2024 18:23

So it will start to be addressed at some point in the future after loads more people have been thrown under the bus and for a much higher cost?

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ArseInTheCoOpWindow · 27/06/2024 18:48

Coffeeinsunshine · 27/06/2024 18:23

So it will start to be addressed at some point in the future after loads more people have been thrown under the bus and for a much higher cost?

Yeah it would appear so.

Its crap. It’s like they pretend it’s not happening and it’s going to go away. But it isnt

Original poster

Coffeeinsunshine · 27/06/2024 19:29

The pretence is cruel.

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