Long covid - guardian article

[Coffeeinsunshine]

This is one of the best articles I've read for an insight on what long covid can do to your life.

www.theguardian.com/society/article/2024/jun/05/i-could-bench-press-100kg-now-i-cant-walk-lucys-life-with-long-covid

There are Far fewer long covid cases in those who have been vaccinated

The cases of health problems post Covid vaccine also need to be addressed. They are in some other European countries: https://amp.dw.com/en/post-vac-syndrome-the-forgotten-covid-victims/a-65051748

Is your username related to the Q Anon conspiracy theory beliefs?

@Begsthequestion more than likely- wait till we get the comments about vaccines. I by the way did have my issues start up around 3 days after my 4th vaccine but am open about it and accept millions of others had no such issues- including my husband .

@Feelingrough1 as I have just posted- my symptoms came on 3 days post my 4th vaccine- very aware though for most people there were no downsides- just some of us were not quite so lucky. Weird what that guy said in that link about getting 'sensory overload' it was one of the first things I got - it was like light and noise had been amplified by10- I was sat in a coffee bar and had to leave due to kids laughing and a dog barking! - really odd. That and the spacey heady feeling like you were going to feint

Long covid is physical. There is damage to mitochondria, inflammation, autoimmunity, dysautonomia, mast cell activation and viral persistence. Not everyone has all of the above but they have been well researched and found in vaxxed and unvaxxed people.
However, it's complex and not easily understood in simple terms so many people don't really understand it.
Many people will put down their symptoms to something else eg getting older, and people who are really disabled by it will disappear from your life and you may never know what happened to them.
Public health education about it would be a good start and I thought the Guardian article was very good.

I got a serious autoimmune disease shortly after my first Pfizer vax. I'm not 100% sure if it was linked for me, but there is a known link and it's happened to others. The timing is interesting.

I checked the batch and there was hundreds of other adverse events after this vaccine in my city. Anyone denying there can be serious side effects to the vaccines hasn't been paying attention. It wouldn't surprise me one bit if there's some link to long covid. These vaccines were largely experimental and weren't extensively tested like other vaccines are.

There are some reputable articles in journals like the lancet and nature

In short

There isn't a great vaccine scandal out there

I was hospitalized a few days after a Moderna vaccine (others also in hospital with a similar condition). The myocarditis was officially diagnosed, reported and has been acknowledged as a vaccine injury. All the Drs treating me also acknowledge a post-vaccination autoimmune reaction, but there is not much open discussion of this. Not an antivaxxer, just vaccine injured. Very frustrating there is not open discussion and better treatment. Caught between loud denial and crazy conspiracies. There is a middle ground that needs to be heard and helped.

@mycatisanarcissist well put it like this- I'm definitely not having anymore- ! Luckily I have improved a lot after 20 months but I definitely am aware many others have had issues - be it with covid or the vaccine. My friend developed Sjogrens within 5 weeks of covid - absolutely no sign of it before- I too get very sore dry eyes intermittently too these days- probably have this myself- just haven't tested for it! Sometimes though it's hard to know whether it's an after effect or it's just age related issues (I'm 62 now) - I really feel for all these under 40 very very fit people who seem to have got totally hammered with it- there's an awful lot of them if you read the long covid forums.

Lancet isn't reputable. There have been some pretty awful mistakes made by them in the last few years.

Same with the eyes. No treatment seems to work. It’s disconcerting how little is still known or any effective treatments for post covid in relation to the amount of money thrown at testing.

As I said, you haven't been paying attention. Some people have been harmed and that's indisputable. Just because you deny it and stick your fingers in your ears doesn't mean it isn't true. There is a known link to myocarditis and Guillain barré syndrome. The vaccine manufacturers (Pfizer, AstraZeneca) aren't denying it.

I wonder if that's due to the thinking behind lack of vit D in the UK?

It's due to people not recognising what they are seeing and making judgements based on opinion not science

I'm glad you can see that you were wrong to write off vaccine injuries.

Much more needs to be done and all aspects included: https://www.bmj.com/company/newsroom/high-excess-death-rates-in-the-west-for-3-years-running-since-start-of-pandemic/

Shamefully many women had their symptoms ignored post vaccine, were blocked from diagnostic tests and therefore treatment. Myocarditis was portrayed as only a risk for young men. This study found mild cases, but look at the impact on women: https://www.myscience.ch/news/wire/temporary_mild_damage_to_heart_muscle_cells_after_covid_19_booster_vaccination-2022-unibas

This autopsy study was obviously worse cases, but again there are women: https://pubmed.ncbi.nlm.nih.gov/36436002/

@MrsPelligrinoPetrichor interesting you say that- apparently incidence of MS too is much lower in warmer climates on a few things I read and whether it's a genetics thing or Vit D levels has been raised. In the meantime I keep popping the VitD spray every day!

@llamarammma the only thing I've found that helps at all is putting siccosan (which is jelly like drops) in last thing at night just once a day.

I have fibromyalgia. It had been under control since 2017. I was living a good life then in 2022, got my first positive covid test and Covid floored me. It triggered all my symptoms for fibro and I've been under investigation for over a year and they now think I have had long covid. It it's hard to know if it's just fibro or long covid.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3071317/

Chronic post SARS syndrome is pretty common in Asia. V similar

The fact is that if you have an immune system that's essentially stacked for an autoimmune reaction, which is most likely a genetic predisposition as it tends to run in a families, a virus is a very common trigger. I have Hashimoto's which was almost certainly triggered by a bout of Lyme Disease that took a long time to diagnose. Any vaccine is also an immune system trigger, although generally less of a stress on a system than the actual illness. I make the choice to get vaccinated but always with the awareness that it could trigger a flare or a secondary autoimmune issue. For what it's worth, I've had both the vaccine and Covid (had it about 6 months post-vaccination) without any longterm effects.

Viruses never leave your body completely but can lie dormant so always have the potential to reactivate and cause long term conditions - i.e. chicken pox causing shingles later. It's not surprising to me, considering we've not in our lifetimes had either an illness or a vaccine that affected/was given to such a high percentage of the world's population in such a short time period, that we're seeing effects. There will always be a percentage of people who have reactions.

For what it's worth, I'm a big believer in vitamin D (but best to take it with vitamin K alongside).

Unfortunately a lot happened pre vaccine too. I was one of them. 4 years on I am 95% recovered but it took over 3 years. I know many others in the same position as me. Thankfully a lot are recovered or recovering but there are a proportion who haven't. There are also children in this category too who have now missed 4 years of their life.

I had 2 vaccines and they made me worse so I fully believe LC can also be caused by the Vaccine too. I think it can be virus or vaccine caused and many medics now support this view. Personally I had heart issues as a result of Covid (myocarditis) and long covid symptoms from the virus itself, I got myself to about 50% recovered (after 1 year) and then had 2 vaccines and went back to more like 30% recovered. Thankfully I didn't have any more vaccines and made it back to 95% but many people aren't as lucky. Many people are still getting LC, vaccinated or not.

Although I have used a lot of tools to support the psychological aspects of LC (I am a therapist) no amount of those could heal my myocarditis or what I have been left with (partial branch block / arrhythmia). Sadly not much I can do about those things! Thankfully time has helped. LC is extremely complex, there's no one cure or answer to help anyone but there are things out there that do help.

I am sorry for your vaccine injury @Useruser1

Speaks to the craziness of the time we lived through that even those who had the vaccine feel the need to confirm that they aren't antivaxers! Agreed that there must be something between the extremes and so sorry to hear that you were injured.

I also developed an autoimmune condition after my third vaccine. The endocrinologist told me it was a known issue for some people. I'm not an anti vaxxer either, but I wouldn't have another COVID vaccination.