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Rise in numbers of cases of unprovoked blood clots since covid?

85 replies

CoffeeBoy · 04/12/2022 07:38

Does anyone know any stats regarding this? I’m interested in the amount of people in the U.K. who have been diagnosed with clots compared to pre covid times. I’m specifically interested in people who have been diagnosed with clots not necessarily linked to having (ie they don’t have covid at the time of the clot).

I’ve been googling and can’t find anything

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Hatsnbats · 04/12/2022 19:00

I had 2 unprovoked blood clots in my leg, 3 weeks after my first covid vaccine last February. I thought it was just muscle ache to begin with, put it was more painful when I wasn’t moving about. My GP didn’t think it was a DVT either as there was no swelling or red areas. I had to wait another week and then go back to GP if pain hadn’t gone and he took some bloods. Thankfully the next day I was able to have a scan at the hospital.

I’ve not yet had covid.

Iaintsadwhenugotobed · 04/12/2022 19:01

i had 2 blood clots during pregnancy back in oct 2019 before covid really hit. I was on thinners for about a year and was told to stop after an mri cleared me, that it had gone and was no longer in the lungs. It’s so very scary and you don’t expect something like that to happen to you. My consultant called it the silent killer as sometimes people won’t even have symptoms and die.

CoffeeBoy · 04/12/2022 19:03

WithOneLook · 04/12/2022 18:58

I had an unprovoked DVT before covid when I was 26. I was tested for loads of blood/clotting disorders and nothing was found. I tried several blood thinners and felt naff. Transfered to warfarin and feel a million times better.

@WithOneLook have you found the warfarin diet ok? I read you have to eat similar amounts of vitamin k foods every day. She has coeliac disease and is vegetarian so the thought of potentially restricting her diet further is a worry.

OP posts:
somethinsomethin · 04/12/2022 19:06

hamstersarse · 04/12/2022 18:39

“Safe and effective”

Keep the Pfaith...

CredibilityProblem · 04/12/2022 19:11

Sunshineguy · 04/12/2022 10:08

Excess deaths in the UK are running about 12% to 15% above normal and most are cardiovascular. Might be a useful dataset to explore.

That's a bit of an overstatement. A lot of those excess deaths are attributable to aging population over the historic baseline.

There is still a significant excess death load in the UK after you've adjusted for ageing, and a large portion are cardiovascular, but that's probably because so many deaths are cardiovascular anyway. Best guess is that it's caused by the breakdown of A&E throughput, which is in turn caused by bed blocking, which is caused by the crisis in social care.

If excess deaths were mostly caused by post-Covid effects then you'd see it Europe-wide and you don't.

The source for all this is John Burn-Murdoch's excellent summary from August, leaning on actuarial work on age-adjusted mortality. If anyone has a link to more recent work that contradicts his conclusions then please do drop in.
mobile.twitter.com/jburnmurdoch/status/1562004671891443712

Pipsickl · 04/12/2022 19:14

My best friend who was a healthy 35 year old died in feb of an out of the blue massive pulmonary embolism.

i strongly suspect it was linked to either covid or the jab, but she had no symptoms at the time and was testing daily due to having a poorly family member. Although there may have been some family history of clotting (her father had a dvt once) she herself had no medical history of anything clotting related.

WithOneLook · 04/12/2022 19:26

CoffeeBoy · 04/12/2022 19:03

@WithOneLook have you found the warfarin diet ok? I read you have to eat similar amounts of vitamin k foods every day. She has coeliac disease and is vegetarian so the thought of potentially restricting her diet further is a worry.

No issues at all. The most difficult part was finding a decent multivitamin without vit k in it! I do have to have monthly blood tests which can be annoying but it's worth if for me to feel better.

2022again · 04/12/2022 19:45

CoffeeBoy · 04/12/2022 19:03

@WithOneLook have you found the warfarin diet ok? I read you have to eat similar amounts of vitamin k foods every day. She has coeliac disease and is vegetarian so the thought of potentially restricting her diet further is a worry.

is your daughter aware that people with coeliac can have a higher risk of cardiovascular disease than average? like many auto-immune conditions it's really worth looking into diet factors that may help minimise her risk... i think a gluten free diet for eg. is suggested in some approaches.

CoffeeBoy · 04/12/2022 19:59

She’s 100% gluten free as she will vomit uncontrollably with even a speck. I wasn’t aware of an increase in cardiovascular issues because of it though. I’m writing down a massive list of questions for her to talk through at her next appt.

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2022again · 05/12/2022 21:59

@CoffeeBoy sorry my brain wasn't in gear yesterday!!!! i meant lactose/dairy free diet as obv she's GF with coeliac. I'm on an anti-inflammatory diet myself because of a different auto-immune condition and the dietary stuff is really interesting...i know some people can go a long time before they get a coeliac diagnosis and be quite unwell by then so I imagine if they get diagnosed when children/young adults, are on a good diet from a younger age and get good advice about maximising their nutrients, i'm sure they will be less prone to the conditions that arise in older age due to chronic high inflammation. One of the issues with covid is, i believe, that it can cause significant inflammatory responses and hence why it may trigger problems in those with over-active immune systems ie.auto-immune conditions.

milkyaqua · 12/12/2022 00:33

Interesting reading.

"The mechanism of SARS2? Endothelial damage. In plain English? Covid-19 fucks up the lining of your blood vessels. All 60,000 miles of it. Blood vessels lack nerves. You feel OK as it eats your arteries. Doesn't mean it's "mild." It means the endothelium isn't innervated."

threadreaderapp.com/thread/1582566898528489472.html

"Covid is fucking scary. If you aren't afraid of covid you are either misinformed or you're an idiot."

milkyaqua · 12/12/2022 00:38

Related:

"I explained that Covid is not just a lung disease, it is a massive systemic inflammatory response to the virus. Covid also upregulates a protein called bradykinin, causing clots."

"If nothing else, I told them to think of Covid as huge inflammatory process that causes injury, scarring and clots to form everywhere. That’s why we are seeing so many strokes, MIs, weird liver failure in peds, bowel ischemia, and long Covid."

threadreaderapp.com/thread/1588944493377904640.html

FunctionalSkills · 12/12/2022 00:49

Yikes.

I had a suspected blood clot due to blood test results but after a scan they decided the bits on my lung was a chest infection (I'm asthmatic, it hadn't presented as a chest infection.)

I'm v large and v unfit (ME/cfs and rest lots) and still anxious they've missed something as I'm not brilliantly mobile and have had covid.

They did ask bout covid in the assessment...

How do we best prevent a blood clot?

MrsDanversGlidesAgain · 14/12/2022 19:12

milkyaqua · 12/12/2022 00:38

Related:

"I explained that Covid is not just a lung disease, it is a massive systemic inflammatory response to the virus. Covid also upregulates a protein called bradykinin, causing clots."

"If nothing else, I told them to think of Covid as huge inflammatory process that causes injury, scarring and clots to form everywhere. That’s why we are seeing so many strokes, MIs, weird liver failure in peds, bowel ischemia, and long Covid."

threadreaderapp.com/thread/1588944493377904640.html

Yeah, right. Someone posting under a pseudonym, who could be anybody peddling any sort of misinformation. I notice there's no sources posted, either. So I'm not any taking notice of that particular little attempt at scaring the shit out of people.

If you'd like to come back with a peer reviewed and traceable and checkable source I'm sure we'll all read it with interest,

Babyroobs · 14/12/2022 19:23

In addition to the 3 people I mentioned earlier who have died of blood clots or bleeds , there has been another one this week. A friends 35 year old daughter died of a PE following a routine operation. So sad. I know these tragedies have always happened but the number of people I know in my small circle of friends and acquaintances is shocking.

milkyaqua · 14/12/2022 20:06

MrsDanversGlidesAgain · 14/12/2022 19:12

Yeah, right. Someone posting under a pseudonym, who could be anybody peddling any sort of misinformation. I notice there's no sources posted, either. So I'm not any taking notice of that particular little attempt at scaring the shit out of people.

If you'd like to come back with a peer reviewed and traceable and checkable source I'm sure we'll all read it with interest,

What are you on about? You can read her linked twitter thread, which gives her details. Or if you had any interest, you could read any of the other related threads, which clearly state sources in their footnotes.

This is not new information, really. I have been aware of the link of Covid infection to blood clots, strokes, kidney and heart damage, etc etc, and the expected surge in neurological conditions such as Parkinson's and vascular dementia, as per post the Spanish flu pandemic, since some time in 2020. I posted the threadreader links as it makes this sort of this so easy to read, rather than linking to twitter accounts, and I thought she explained the mechanism simply and well.

milkyaqua · 14/12/2022 20:20

Here's literally the first article I found by entering covid and blood clots:

www.heart.org/en/news/2022/09/19/blood-clot-risk-remains-elevated-nearly-a-year-after-covid-19

It's not exactly arcane news.

milkyaqua · 14/12/2022 20:27

Here's an article I read back in 2020 re the link to neurological conditions:

www.abc.net.au/news/2020-09-23/covid-19-may-cause-parkinsons-disease-research-finds/12688384

Useyourfork · 14/12/2022 22:03

milkyaqua · 14/12/2022 20:27

Here's an article I read back in 2020 re the link to neurological conditions:

www.abc.net.au/news/2020-09-23/covid-19-may-cause-parkinsons-disease-research-finds/12688384

You might be interested looking up Dr Anthony Leonardi , he has done some interviews about his work. He is a Canadian researcher into T Cells.
With T cell dysfunction there is a logical link between between repeated Covid infections and the multiple disease outbreaks we are seeing now.
The more I read about the effects of Covid the scarier it becomes to be honest.

ilovepixie · 14/12/2022 22:06

I had a blood clot 2 years ago. Hadn't had covid and no other illnesses. I'm on blood thinners now.

CoffeeBoy · 23/12/2022 18:51

Well someone I know from work has died suddenly of a blood clot. In their 30s, no risk factors.

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Daylighteyes · 30/04/2023 12:09

I know this thread is going back to December but just adding my DH to this (have only just come across this thread).

He was diagnosed with DVT in November 2022, he had Covid in April 2022. No family history, no flights, nothing.

Because the clot seemed to come from nowhere he needs to remain on blood thinners.

The hospital told him they’d seen an increase.

Daylighteyes · 30/04/2023 12:11

And just adding, luckily he had a vigilant doctor (plus he listened to me for a change) as he had none of the redness or telltale swelling associated with a clot. Reason being he has two main veins, which apparently 25% of the population have, so blood was flowing.

Choconuttolata · 30/04/2023 12:22

DH had a DVT (no tell tale redness or swelling just pain, doctors weren't convinced until the scan came back) and then a pulmonary embolism (again only appeared on CT, they were shocked that he was able to walk in as they were so widespread). This is all post-COVID (he was hospitalised). He was on blood thinning injections (enoxaparin) and then rivaroxaban for 4 months only, not for life.

CoffeeBoy · 30/04/2023 16:11

Choconuttolata · 30/04/2023 12:22

DH had a DVT (no tell tale redness or swelling just pain, doctors weren't convinced until the scan came back) and then a pulmonary embolism (again only appeared on CT, they were shocked that he was able to walk in as they were so widespread). This is all post-COVID (he was hospitalised). He was on blood thinning injections (enoxaparin) and then rivaroxaban for 4 months only, not for life.

That’s good he only needs to be on them for 4 months, normally it’s life unless they can determine a reason for the clot. Are they thinking it was covid that was the reason?

dd feels so poorly with abdominal pain and bloating and nausea. She’s going days without eating as she can’t cope eating. I do wonder if it’s the blood thinners making her feel sick?

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