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Ds developed myocarditis after vaccine

48 replies

kissmelittleass · 25/08/2021 09:48

He's 18 and had his first vaccine (Oxford) back in March ( not in uk) developed chest aches/pain hours after first vaccine that continued for weeks on and off most days for him, was eventually put on anti inflammatory medication for a week which solved it and got him checked out by a cardiologist and so he went on to have his second vaccine with no issues.
He's now months on complaining of slight achy chest pains on and off again and I'm just seeing if you know anyone that got myocarditis after one of the vaccines?
How common is this?

OP posts:
MRex · 25/08/2021 10:03

It seems unlikely that someone with normal intellectual capabilities would see a doctor successfully after the that vaccine, get treatment, then get the same symptoms after the second vaccine and just decide not to see a doctor the second time. Still, giving the benefit of the doubt that there is any truth in your post... If anyone ever has chest pains, they should go to the GP and get checked out; if it's severe then they should go to A&E. Therefore, your DS needs to call up the GP today and make an appointment, or dial 111 if he can't get through to the GP.

MadgeMak · 25/08/2021 10:07

Why haven't you gone back to see a doctor?

Neverrains · 25/08/2021 10:11

@MRex

It seems unlikely that someone with normal intellectual capabilities would see a doctor successfully after the that vaccine, get treatment, then get the same symptoms after the second vaccine and just decide not to see a doctor the second time. Still, giving the benefit of the doubt that there is any truth in your post... If anyone ever has chest pains, they should go to the GP and get checked out; if it's severe then they should go to A&E. Therefore, your DS needs to call up the GP today and make an appointment, or dial 111 if he can't get through to the GP.
I think the difference is that the first time the chest pains were almost immediate after vaccine, whereas this time it seems to be a few months after the second vaccine? Not sure why people are sceptical that a young adult male got myocarditis after the vaccine as it is a recognised side effect. But yes OP, he needs to see a GP as soon as possible.
RainbowCrayons · 25/08/2021 10:13

I thought myocarditis was a side effect of Pfizer. I hadn't seen it had been associated with AZ

MRex · 25/08/2021 10:15

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Piggywaspushed · 25/08/2021 10:17

Did the cardiologist actually say it was myocarditis?

kissmelittleass · 25/08/2021 10:18

He has been seen by a cardiologist and had a echo scan which was normal and the cardiologist said in his opinion ds got myocarditis after the vaccine as it came on hours after receiving the vaccine.
He actually does have an appointment this afternoon with the doctor to discuss the slight chest aches he's been getting recently and yes this came on after the Oxford vaccine not the Pfizer!

OP posts:
knittingaddict · 25/08/2021 10:20

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backtoworkasamrs · 25/08/2021 10:21

Hi @kissmelittleass
Sorry to hear about you mr ds.
I am going through similar but I am waiting to have an mri scan to confirm myocarditis. How was your ds disgnosed? Was it through Mri scan?

Soontobe60 · 25/08/2021 10:22

In the US there have been around 600 confirmed cases of myocarditis associated with all the vaccines, from a current total of 177 million vaccinations administered. That’s 0.00000339%.

OP. I’m sure your ds would have been told to return to his GP if he had further symptoms, so tell him to phone them up.

KeepYourCustardCreams · 25/08/2021 10:22

I would think he does need to see the GP (or ideally get in touch with the original cardiologist) for this, OP. I understand not knowing exactly what to do, given the delay, less severe symptoms and ongoing nature of the problems.

(Also, OP - I have no idea why people are so determined to not believe these posts, and I'm sorry you're dealing with some of them Flowers )

knittingaddict · 25/08/2021 10:24

Just seen your update. I think it's best to wait until you've seen the doctor and find out what is going on exactly.

knittingaddict · 25/08/2021 10:28

@KeepYourCustardCreams

I would think he does need to see the GP (or ideally get in touch with the original cardiologist) for this, OP. I understand not knowing exactly what to do, given the delay, less severe symptoms and ongoing nature of the problems.

(Also, OP - I have no idea why people are so determined to not believe these posts, and I'm sorry you're dealing with some of them Flowers )

Because it's the internet and there is a lot of misinformation and anti vaccine posts out there. That's obviously an issue and yes, I am very cautious when I see threads like this. I was going via the original post which did not include a follow up trip to the doctor. If the op had included this highly relevant information she wouldn't have got some of the replies she did.
kissmelittleass · 25/08/2021 10:30

@backtoworkasamrs Thanks, he was referred privately for an echocardiogram and saw the cardiologist the following morning for the results he didn't have an mri.
The cardiologist said as the aches in his chest came on hours after receiving the vaccine that in his opinion it was myocarditis caused by the vaccine.
A week of anti inflammatory medication at the time solved the issue which is why the cardiologist made that diagnosis.
Have you not had an ecg or echo yet? I would be pushing to be seen ASAP I hope everything turns out ok fine you

OP posts:
kissmelittleass · 25/08/2021 10:31

@KeepYourCustardCreams Thank you

OP posts:
backtoworkasamrs · 25/08/2021 10:33

[quote kissmelittleass]@backtoworkasamrs Thanks, he was referred privately for an echocardiogram and saw the cardiologist the following morning for the results he didn't have an mri.
The cardiologist said as the aches in his chest came on hours after receiving the vaccine that in his opinion it was myocarditis caused by the vaccine.
A week of anti inflammatory medication at the time solved the issue which is why the cardiologist made that diagnosis.
Have you not had an ecg or echo yet? I would be pushing to be seen ASAP I hope everything turns out ok fine you [/quote]

I've had an abnormal ecg which doctor said is in keeping with myocarditis, echo was normal but cardiologist said I need an mri to look for evidence of myocarditis. I'm feeling okay now but still get occasional chest/back aches

kissmelittleass · 25/08/2021 10:41

@backtoworkasamrs Hope you get your mri soon, an mri has never been suggested to my son, it's very hard as I'm not allowed in with him to speak to anyone because of covid I know he's 18 and technically an adult but he's not the best at explaining himself!!

Can I ask what vaccine you received

OP posts:
godmum56 · 25/08/2021 10:48

[quote kissmelittleass]@backtoworkasamrs Thanks, he was referred privately for an echocardiogram and saw the cardiologist the following morning for the results he didn't have an mri.
The cardiologist said as the aches in his chest came on hours after receiving the vaccine that in his opinion it was myocarditis caused by the vaccine.
A week of anti inflammatory medication at the time solved the issue which is why the cardiologist made that diagnosis.
Have you not had an ecg or echo yet? I would be pushing to be seen ASAP I hope everything turns out ok fine you [/quote]
I absolutely do not disbelieve the OP about the myocaritis. BUT a second episode so long after the second dose doesn't suggest it was caused by the second dose. This is from New Scientist which is pretty reliable and suggests that myocarditis is more common from getting the civid infection than having the vaccination. www.newscientist.com/article/mg25133462-800-myocarditis-is-more-common-after-covid-19-infection-than-vaccination/

MRex · 25/08/2021 10:49

@kissmelittleass

He has been seen by a cardiologist and had a echo scan which was normal and the cardiologist said in his opinion ds got myocarditis after the vaccine as it came on hours after receiving the vaccine. He actually does have an appointment this afternoon with the doctor to discuss the slight chest aches he's been getting recently and yes this came on after the Oxford vaccine not the Pfizer!
Right, so he's seeing a doctor now. Well, that's fine then, the doctor will assess him to find out what the problem is and see if or what treatment is needed.

Myocarditis is an inflammatory immune reaction (or rather, over-reaction) that can happen after any viral infection and (much more rarely) after any vaccine; the same is true of pericarditis. A few more cases were found with Pfizer because it inspires a strong immune response and because effects are being monitored very closely. It is also possible that the AZ vaccine can cause myocarditis because an immune reaction occurs after vaccination, and young men are particularly susceptible to myocarditis. Usually however, myocarditis occurs after several days rather than hours, so your description sounds unusual for an immune response. His doctor will need to assess if there's any other possible cause and what treatment he needs if any.

backtoworkasamrs · 25/08/2021 10:54

@kissmelittleass
I had the Pfizer vaccine. Please let me know how your son gets on

TTCAbroad · 25/08/2021 10:55

@kissmelittleass Your son needs to go back and see his GP, ideally with a referral to a cardiologist- perhaps a different one this time. The onset of myocarditis and pericarditis occurs most often 1-5 days after an mRNA vaccination and most often after the second dose. Quite frankly it sounds like your son was a little bit fobbed off in the first instance and his chest pain requires more thorough investigation going forward. Given the pattern of his symptoms do not fit within the regular onset parameters this should be taken seriously.

Mojoj · 25/08/2021 10:58

Why are so many people determined to disbelieve this OP? Myocarditis is a known side effect of the vaccine in young people. FWIW, I am very glad that my 16 year old has opted not to be vaccinated. He's already had Covid and is fit and healthy. Why risk it? Young people have a teeny, tiny risk of becoming seriously ill. They should be donating the vaccines to countries which are on the knees due to lack of vaccines.

leafyygreens · 25/08/2021 11:06

@Mojoj

Why are so many people determined to disbelieve this OP? Myocarditis is a known side effect of the vaccine in young people. FWIW, I am very glad that my 16 year old has opted not to be vaccinated. He's already had Covid and is fit and healthy. Why risk it? Young people have a teeny, tiny risk of becoming seriously ill. They should be donating the vaccines to countries which are on the knees due to lack of vaccines.
It is exhausting when threads leads to comments like these (both for the OP who's asking for advice, and for anyone else tired of the anti-vax narrative).

The JCVI, CHMP, EMCA and pretty much all other public health bodies in the Western world have advised that the 16-17 age group be offered the vaccine. Your assessment about people this age having a "teeny tiny risk of becoming seriously" ill is irrelevant. There's a number of other factors that were considered, and a huge amount of data analysed, before this decision was come to.

And again this false dichotomy about "donating vaccines". Your son turning down his vaccine does not mean someone vulnerable in a developing country can now have it. The bottleneck is not vaccine doses but infrastructure and funding. Many countries have had to destroy doses of vaccines because they're simply not in a situation where they can roll out mass vaccination.

If this something you feel passionately about then you can make an actual difference by lobbying government/MPs, promoting COVAX and donating to Gavi.

leafyygreens · 25/08/2021 11:07

@kissmelittleass

He has been seen by a cardiologist and had a echo scan which was normal and the cardiologist said in his opinion ds got myocarditis after the vaccine as it came on hours after receiving the vaccine. He actually does have an appointment this afternoon with the doctor to discuss the slight chest aches he's been getting recently and yes this came on after the Oxford vaccine not the Pfizer!
Glad for your update and hope all goes well for your son OP.
kissmelittleass · 25/08/2021 11:13

@leafyygreens Thank you 🙏🏻

OP posts:
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