CEV removed from children

[user3459]

Any one else had a communication today that their CEV child is no longer classified as CEV?.

So no longer going to get the correct access to vaccinations etc?

Just wondering if it is our GP who previously tried to block our CEV child's vaccination or if it is everyone?

There should be a list somewhere.

I’ll have a look, but yes a friends DS has been blocked

I don’t understand why a GP would try to block access to a vaccination? Surely there’s a criteria that has to be followed?

In general only children under consultant care are CEV. There may have been updates from review of which children actually got unwell; details of who is CEV are here: www.rcpch.ac.uk/resources/covid-19-guidance-clinically-extremely-vulnerable-children-young-people.

I have had the email this morning, but eligibility for vaccines isn’t linked to being CEV so it shouldnt Impact that.

The problem is the unknown future. It will be very hard to get the CEV status added back to these vulnerable children's records in the event of new strains needing new vaccines, new lockdowns with shielding rights for CEV etc.
It is the removal of a layer of rights and protections.

Obviously I am quite angry. The problem with having CEV or CV children is that you have to fight for everything. Every referral, every treatment, every diagnosis even.
So just to be told by email that one of these status markers has been removed and I should be pleased my DC no longer has the same rights as other CEV or CV people, with no consultation and no warning is totally crap.

I got the letter. Ds will still be eligible for the 12 -15 vaccine and will I imagine continue to be considered CV at 16 due to his condition (severe learning disability).

All children have been removed from the CEV list today! Don't know how I feel about that. Was hoping that in the near future CEV children under 12 would be offered vaccination but clearly now that isn't going to happen.
Also concerned that the reason up until this point that the CEV children haven't been badly affected by covid is possibly because they have been shielded and therefore haven't actually came into contact with it. Even when shielding was paused, consultants were advising on individuals and still recommending shielding for some of these children.

Nearly all children were removed from the cev (in relation to corona) list quite a long time ago when knowledge grew that children were less effected. I don’t think cev/cv directly tie with who gets the vaccine age 12-15. It is only specific conditions that have been highlighted.

I don't know why DD1 (15) was offered the vaccine. She has a brain malformation which causes her learning disabilities. She has ?ASD. She has recently restored weight after an eating disorder. None of those are on the list, but then she always goes down hard with viruses, so I'm glad she's been given the vaccine.

@user3459

Any one else had a communication today that their CEV child is no longer classified as CEV?.

So no longer going to get the correct access to vaccinations etc?

Just wondering if it is our GP who previously tried to block our CEV child's vaccination or if it is everyone?

Entitlement to the vaccine isn't changed by the, but not all CEV children were ever entitled to the vaccine

@Lougle

I don't know why DD1 (15) was offered the vaccine. She has a brain malformation which causes her learning disabilities. She has ?ASD. She has recently restored weight after an eating disorder. None of those are on the list, but then she always goes down hard with viruses, so I'm glad she's been given the vaccine.

Similar here. My child has a moderate learning disability. She is under a consultant for her metabolic disease, but the consultant has said she is not CV. She doesn't meet any of the criteria as far as I can see. But I got a text a few days ago offering her the vaccine.

I wonder, is it GP surgeries who go through their records to refer 12-15yo children for vaccines? And maybe they make mistakes, or don't apply the criteria consistently?

As the mother of two CEV dc, this new ruling worries me for the future. I felt it was an added cloak of protection around them both.
Neither are eligible for vaccine as yet despite being in the 12-15 age group as apparently their condition isn’t sufficient to meet criteria 🤷🏻‍♀️

However both suffer with breathing issues...

It’s a vulnerable place to be right now, especially with schools going back soon and all bubbles removed. I just wish my gp would contact us re vaccine!

Flossie have you spoken to your GP practise? According to contact who have done a lot of campaigning on this their is room in the guidance for them to use their own judgement on individual cases.

Ds isn’t 12 til November but I am hoping we will get one then and will be fighting otherwise

This document that was sent out to all GPS earlier this month details the process. It includes this paragraph.
We recognise that not all eligible 12-15 year olds may be identified through the GP record. Therefore, any approach by parents of children at increased risk should be considered and clinical judgement used around eligibility in line with JCVI advice. In addition, trusts may refer 12-15 year olds for a COVID-19 vaccination if they consider them to be eligible
I would read this as meaning if a parent of a child at increased risk approaches the GP, they should offer the vaccine.

An additional document lists who’s eligible.
At the current time, children 12 to 15 years of age with severe neuro-disabilities, Down’s syndrome, underlying conditions resulting in immunosuppression, and those with profound and multiple learning disabilities (PMLD)[footnote 1], severe learning disabilities or who are on the learning disability register are considered at increased risk for serious COVID-19 disease and should be offered COVID-19 vaccination

www.gov.uk/government/publications/covid-19-vaccination-of-children-and-young-people-aged-12-to-17-years-jcvi-statement/jvci-statement-on-covid-19-vaccination-of-children-and-young-people-aged-12-to-17-years-15-july-2021

I asked my eldest dc consultant and was told she didn’t meet eligibility as the criteria was so tight. Maybe I’ll try the gp....

My dd was called for a vaccine despite not being officially CEV - they said it was because she'd been hospitalised in the last year (asthma breathing difficulties)

I would flossie and take the article Soontobe60 linked too with you

Thank you all. I’ve just emailed my surgery to beg the question

Maybe increasing data showed that certain conditions that originally classed them as CEV don’t actually put them at higher risk from the virus?

@bumbleymummy I completely agree with that. It definitely seems the focus is on immune deficiency and severe learning difficulties, rather than asthma etc. I think it is because when severe cases re Covid occur, it comes from the overacrtive immune response which causes problems in the lungs / blood. It isn’t actually linked to the same breathing problems caused by asthma etc., which is hard to get your head round if you are used to your child responding poorly to other respiratory viruses. As many always highlight on MN, this is not the flu, and the vulnerable are not quite the same. I would take it as a good thing that a child is not classed as vulnerable enough to have the vaccine….. unless it is actually an administrative error, and then that is really annoying