CEV children still waiting for vaccine

[Tealightsandd]

There are 53,000 CEV children. Most are still waiting for a vaccine.

Other countries are already vaccinating healthy children - or at least prioritising those who are vulnerable.

Why are we not protecting our vulnerable children? Even if there's not enough supply to do all children yet, surely the most vulnerable should be prioritised.

disappeared more than a year ago and many are still out of sight. When the pandemic hit, 53,000 under-18s in England with disabilities that made them vulnerable to coronavirus began to shield at home

Kept off school long after their classmates went back, and away from friends, they have found their childhoods put on hold. And while the vaccine rollout gave high-risk adults some reprieve in the new year, those aged under 16, who have not been eligible for any vaccine, are still living in limbo.

www.theguardian.com/commentisfree/2021/jun/10/children-disabilities-priority-vaccination-england-education-shielding

Now that the vaccine is licensed for over 12s in the UK, it is shameful that the government have not started to vaccinate all CEV and CV in the 12-16 year old age group.

MHRA (properly independent medical experts) say it is safe and effective and have approved it.

Those that want it in that age group should have access as soon as over 18's have had their first dose and those that need it in that age group (CEV and CV) should get it now.

Also in that article:

"It is striking that Britain still has no plans for inoculating high-risk children, while other countries such as the US and parts of Europe have already made significant gains in vaccinating all teenagers."

"The JCVI is currently considering whether to include teenagers in the vaccine rollout"

I fail to see what there is to consider. Not giving an approved vaccine to its intended recipients? Really?

Thankyou for sharing the article, Francis Ryan has been one of the few voices talking about disabled children in this crisis.

Ds is nearly 11, shielded for most of the year, but now back at school in this horrible limbo land of being unvaccinated, still vulnerable and seemingly forgotten.

They should be too of the list. Which charities are lobbying for you? They need to be louder.

Hmmm, my 3 year old dd is CV (was CEV until the last time the categories were rejigged). I don't think I would be happy about her being given an experimental vaccine I'm no anti vaxxer - in fact the things my dd has neen treated with in the past make most vaccines look like homeopathy in comparison - but I would be very cautious about givng her a rushed through, experimental vaccine that hasn't even been given to healthy children her age before!

@Chwaraeteg

Hmmm, my 3 year old dd is CV (was CEV until the last time the categories were rejigged). I don't think I would be happy about her being given an experimental vaccine I'm no anti vaxxer - in fact the things my dd has neen treated with in the past make most vaccines look like homeopathy in comparison - but I would be very cautious about givng her a rushed through, experimental vaccine that hasn't even been given to healthy children her age before!

It's not mandatory!

Just because you don't want it, plenty others do and the vaccine is already approved for them. They should access if they want it, No-one is forcing anyone.

I was so shocked when I read the article

I assumed the government was arranging to get CEV children vaccinated asap.

I'm so sorry @HazeyJanell
Your poor ds. I hope he's able to get a vaccine soon.

Thankyou @Tealightsandd, we hope so too.

Because whilst cev are at a very tiny higher risk, the overall risk to them is neglible

The data for deaths and severe illness in children shows it simply doesn’t impact the hem in most cases - even if cev

@Watapalava

You obviously haven't read the article.

@Chwaraeteg

Hmmm, my 3 year old dd is CV (was CEV until the last time the categories were rejigged). I don't think I would be happy about her being given an experimental vaccine I'm no anti vaxxer - in fact the things my dd has neen treated with in the past make most vaccines look like homeopathy in comparison - but I would be very cautious about givng her a rushed through, experimental vaccine that hasn't even been given to healthy children her age before!

It won’t be offered to your DD because it’s only been approved for 12 and over. I presume OP was talking about CEV children over 12. They don’t experimental vaccine on the NHS, they only give vaccine that have been properly tested.

We've vaccinated 40% of 12-18 year olds in my state. Covid rates are plummeting, including in schools. The governor has announced schools can go back to normal in Sept.

I have no idea why you can't do this in the UK. So sorry for all of you with CEV children.

Finally it gets talked about. Fucking finally. We have a huge number of children not able to lead normal lives and these are 53,000 CEV children, if we started to count the siblings who are also isolated as a result as well its a very signifant number yet on mumsnet people want to remove the need for isolation in school because 'children don't get sick and the vulnerable are vaccinated' and as parents of a CEV child we are expected to accept that our child will be collateral so that everyone else can live a normal life because its only a handful of children...its not its thousands of children and the reason they aren't in the statistics yet is the fact they have been locked up at home for over a flipping year because the government has completely failed to acknowledge them!
My own DC finished school early March 20 (before lockdowns and school closures) and only returned after Easter on the basis cases remain low in our area, thankfully our school were brilliant with the home education side of things but others haven't been so lucky.

@Watapalava

Because whilst cev are at a very tiny higher risk, the overall risk to them is neglible

The data for deaths and severe illness in children shows it simply doesn’t impact the hem in most cases - even if cev

Have you got a CEV child? The reason these CEV children are not part of the statistics is as a result of them being shielded and their families therefore they have thankfully not caught covid and became a statistic! It's not because they aren't at risk! If they had all been in schools and families out and about then I'm pretty sure the level of child illness and fatality from covid wouldn't be as bloody low as it is!

CEV children might be lower risk than adults but they are still CEV, and deserve and need the protection of the vaccines.

So sorry jumpbounce I really hope your dc can get vaccinated soon.

Unfortunately my DC is only 4 so it would look like it could be a while away yet for us. Just keeping fingers crossed that cases remain low in our area so they can enjoy some sense of normality this summer albeit far from that of other children but any small freedom is a huge bonus to us right now and just being able to do some outdoor activities will be extremely welcome in our household. It feels like my children's freedom relies on others to do the right thing in terms of testing and isolating, hopefully to keep community spread lower. Unfortunately an increasing number of people aren't on board for this anymore now they have been vaccinated themselves and 'all the vulnerable are vaccinated' ...it does frustrate me but then part of it has also been the government's messaging about children throughout the pandemic. In the beginning I watched every briefing and I don't think once I ever heard them approach the topic of CEV children other than to make out that most of them were removed from the shielding list however failed to mention the thousands that remained on those lists and also the children who aren't on the official lists but have been advised by their consultants to shield.

This is unacceptable. I'll write to my MP (a Cabinet minister) to press this.

I know it’s a horrible situation for many but really what do people expect to happen here? 57,000 sounds a lot but it’s less than 0.1% of the population. We can’t keep everyone restricted, people losing jobs and home, majority of children missing education from continuous isolating for that. I’m not trying to be harsh as I know if it were my child I would be devastated, I just want to know what people think should happen now.

Since some consider the number of CEV children to be relatively low, it shouldn't be a big deal to vaccinate them, should it?
It isn't that these parents want the other 60 million to be restricted, it is simply that they want their child to receive a vaccination that is licensed for them and should be made available.
Certainly over 12s at the moment, and I don't think it will be long before other countries approve it for under 12s also, followed by the UK.

Yes, emailing MPs is the right way to highlight this issue at Westminster

@bojotheclown yes agree vaccines should be available for over 12s. Hopefully they will be soon.

@Racoonworld

I know it’s a horrible situation for many but really what do people expect to happen here? 57,000 sounds a lot but it’s less than 0.1% of the population. We can’t keep everyone restricted, people losing jobs and home, majority of children missing education from continuous isolating for that. I’m not trying to be harsh as I know if it were my child I would be devastated, I just want to know what people think should happen now.

I agree, which is why 12+ children who are CEV need to be offered the vaccine as a matter of urgency!

Well Pfizer has only just been approved for the 12-18 age group, so I presume CV of this age group will be prioritised immediately after the adult roll out is finished.

I also thought there was discretion for paediatricians to vaccinate vulnerable children if they thought the benefits out weighed any risks. I know of at least one child of this age who’s already had it.

@Racoonworld

I know it’s a horrible situation for many but really what do people expect to happen here? 57,000 sounds a lot but it’s less than 0.1% of the population. We can’t keep everyone restricted, people losing jobs and home, majority of children missing education from continuous isolating for that. I’m not trying to be harsh as I know if it were my child I would be devastated, I just want to know what people think should happen now.

What should happen now is that all 12+ who are CEV and CV should be offered the jab straight away now it’s been approved and it should also be offered to all 12+, as other countries are already doing.

I agree that CEV and CV 12 to 16 year old should be vaccinated asap. I'd also hope that 12-16 year old with a vulnerable household member would be the next priority.

Agree with you op