I'm ECV , husband just tested positive.

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Hi all. Wondering if anyone out there has been in the same situation. I was shielding since Feb/March. Have been notified again to shield when we went into Tier4.

Husband has been doing the chores and errands. 4 days ago he started to feel unwell. He had a home test and today the result came back positive. I have been contacted and told to isolate. I have no spleen. Which means very compromised immune system. I am terrified. DH is quarantined in the spare room which has an en-suite. I have washed every service he could of touched but I have shared a house with him between test and result..
Anyone out there ECV who got the virus ? How did you get on ? Did you need hospital? Have you got after affects /long Covid ?

I am CEV, I got the virus and whilst it wasn’t pleasant, I got through it fine at home. Feel fine now. Remember, the chances are you will be ok. Keep your DH isolated if you can, it’s only sensible and also will reduce your viral load so if you do get it, you get “less sick”. Keep the house well ventilated, this is super important. Try to relax if you can OP.

I have a friend who is CEV - really extremely unwell and life-limited. She got the virus and has come through it without any issue, although she felt unwell for a few weeks. But it hasn't had a bigger impact than that.

If he started feeling ill 4 days ago there is every chance you haven't caught it (or you've caught it and are asymptomatic). I really hope that's the case, I'm sure it's extremely nerve-wracking. He will have been incubating it for some time before he even showed symptoms.

My dad, 78 and very frail, with lung condition similar to COPD, you would have put a lot of money on it finishing him off quickly, got it and he sailed through isolation without any symptoms at all. The odds, although obviously worse for ECV, are still in your favour so try not to get too stressed out..easier said I know

My Granddad, aged 80, with no spleen and COPD caught it and his only symptom was a mild fever. for you and fx you don't catch it.

I am classed as CEV. My husband had COVID in March and no one else in our house got it. We didn't know that it was COVID and therefore were not overly cautious and carried on sharing the house as normal.

Also agree with pp that it is important to remember that even the most CV person you could imagine has a greater chance of getting through it than not. I totally understand how frightening it is though.

Also a paramedic friend said that they tell everyone that if they test negative 3 days after contact then they wont get it because in the vast majority of cases it takes no more than 3 days.

My mum is CEV (on immunosuppressants) and has only had mild cold symptoms.

My dad is CEV (lung cancer having chemo) and is in hospital.

No-one can predict what the impact will be. Hope for the best but prepare for the worst - make sure you have enough paracetamol, a pulse oximeter, a thermometer and plans for what you will do if you get a nasty dose (easy to prepare meals, neighbours and friends on standby to help, hospital bag packed etc) as they will help you remain calm. If you do feel unwell - lots of fluids and plenty of rest!

And it sounds like you’re being very cautious already - I hope you manage to avoid it!

Thank you everyone. That has really helped. I am not normally an anxious person. This however has freaked me out a bit - I guess because I've been so careful - that 'catching it' had become almost theoretical .. has put me in a bit of a spin. I have now developed a cough.. but how psychosomatic that is - only time will tell . !

I have an older relative who has emphysema and caught covid back in March. He was hospitalised with it but only in a few days and recovered fine. I really expected it to be a much worse outcome but he's had no long term effects.
I hope you manage to avoid it.

My colleagues sister has had it, she's late 50's, diabetic, has a lung condition and post breast cancer. She came through it fine, and my colleague never caught it (they live together). Hope you remain well xxxx

I'm CEV. Very compromised immune system. I received my test result on Xmas day - positive. I only took the test as my husband had symptoms, his came back negative. I have spent time since in isolation but have had no symptoms apart from a mild headache for a couple of days. There doesn't appear to be any rhyme or reason to this.

Also I believe that if you take high dose vitamin c and a decent dose of vitamin d you will mitigate some of the effects of the virus. I know c works very well for colds etc (if I take enough in time the cold never appears - think 5000 mg a day or even more) and vitamin d has an effect on covid 19.

I think if you were ECV with compromised lungs it would be much worse. As it stands there's nothing to say you will get it any worse than most. I know several people who have had it and been ok.

My friends DF caught it and her DM is ECV. Her DM didn't catch it, or was asymotomatic.

I am CEV and I had covid.

We tried to shield before shielding even started at the end of last February and I stopped going outside etc. But unfortunately my husband had to go into work still at that time and despite every possible precaution (he walked to work, took a packed lunch, constant hand washing, etc.) he was infected by a work colleague and then infected me.

I was quite ill through March April and May and had a couple of emergency hospital visits, but fortunately didn’t need admitting in the end. My GPs, my immunology team, london ambulance service and the covid team at the nearby hospital were all fantastic.

I had recovered from being acutely ill after around 12 weeks, but I am still intermittently ill and we are investigating whether I have a form of long covid or permanent damage.

I can answer any questions you have, but as each case can be very different I am not sure how much it helps.

Hope you are ok op :) and the cough is just a miid one x

Hey up, I understand your worry. My husband has no spleen either, we are just waiting for test results too.
I dont know if this is right but when I tried to look into it it looked to me as if the lack of spleen wouldn't effect the covid itself. That the lack of spleen is only relevant if or when there is a bacterial infection. So it's possible that if you or my husband got Ill with covid that you might be given antibiotics to ward of secondary pneumonia. But I dont know. Which is why if he comes back positive we would get in touch with his dr or 111 straight away for advice. I hope you and your husband stay as well as can be.

I am not ECV or CEV (I am not sure what they are - sorry). But I am at the tail end of getting over CV19. My Mum lives with me is aged 89 and has a lung condition and I was terrified she'd catch it, especially as I'd been preparing all her meals etc. However, she has no symptoms so far (fingers crossed). I felt pretty unwell with fatigue and I thought I might not be great for me as I am obese, but am fine. I know it's hard but please don't panic as it's certainly not guaranteed that you'll get it and if you do you may not have symptoms anyway. Good luck!!

I’m sure the original shielding letter said if you start to get symptoms even mild ones contact 111 I’m not sure if that’s changed as I didn’t thoroughly read my last letter
But I’d suggest if the cough continues contacting 111
They also said to pack an emergency bag for hospital.
On the other hand as others have said there is no rhyme or reason as to who catches it and who gets very ill.
Hopefully it’ll pass you by

Sorry to hear that, although it’s hopeful that if you aren’t feeling ill by now that you won’t!

I am CEV and totally understand how worrying it is!

Wishing you well

My DH was ECV until August- he didn't make it to the recent list which was much smaller.

We all got Cv19 except him from a trip to the pub. He was away and then stayed away until day 10. Came back and though I tried to get him to isolate and wear a mask he didnt. He didnt get it

My DD slept with her OH for 10 days before diagnosis and he didn't get it. She spent 3 hours watching a film next to an ECV pensioner and they were fine and she had lunch with my ECV mother who also didn't get it 2 days before her positive test. They both got March, August and November and December letters as ECV.

Can’t speak on the CV front but I had it and the other 3 people in my household did not get it despite sharing my bed as it was impossible to do otherwise.

I had COVID in March & DH is CEV as he’s got no spleen. He didn’t actually catch it off me. But I was able to get expert advice at the time. The main risk factor for asplenics js secondary complications - ie. bacterial pneumonia/ septicaemia. So you shouldn’t be at particularly higher risk of becoming unwell, but if you do it’s important the medical team know so can consider defensive meds.

Should have said seriously unwell - same risk as anyone else for catching it

Kate Garraway interviewed some experts recently and one thing I remember being amazed at was that if someone catches Covid, the risk of a partner who eats, sleeps and lives closely with them catching it is around 35%