I’ve been watching this thread for so long but haven’t ever posted as I’ve never really been sure Long Covid is what I have. I seem to have had a crazy amount of the symptoms those who have been suffering with Long Covid do over a similar time line but I don’t know if it’s just coincidence/crossover of post viral symptoms.
My symptoms first started in late Nov/early Dec 19 which does make me wonder if i was too early to consider Long Covid. I joined the Slack group a while back and I know there are a couple who think they were infected that long ago but not very many.
I started with a virus that was a stomach upset in essence. I never felt fully recovered and had post viral fatigue, heavy legs, back pain, abdominal discomfort/bloating and pins and needles sensations, dizziness, dry mouth, headaches. My husband and little girl had a virus with cough. My little girl had a temp and viral rash that came and went for months. I didn’t really get anywhere with the GP or diagnosis. My husband had fatigue, sore legs, tight chest on and off for months. Then March we got another virus - this time I had really sore throat, headache, extreme muscle pains and chills but no fever. Husband had the same virus. I carried on with an array of symptoms that no one could explain and seemed to come and go in terms of severity. In May I had a frightening episode with blurring in my left eye and was sent to A&E with tachycardia. This was deemed to be anxiety. At that stage I was referred to a neurologist for my neurological symptoms but I’m still waiting to be seen. In June I identified a lump in my neck - ultrasound identified two thyroid nodules. Cytology was normal. NHS blood testing showed normal thyroid function and they dismissed any of my symptoms as thyroid related. I took matters into my own hands and have been having private blood draws for full thyroid panel - I have elevated TPO antibodies. Paid to see a private endocrinologist who suggested start of autoimmune thyroid disease a possibility, also suggested ME. I had the blood test to rule out Graves Disease and personally think I’m at the outset of Hashimotos. Had low vitamin D which is resolved and low ferritin which I’m still working on. I have early stage (stage 1) HPA axis dysfunction/adrenal fatigue - did private salivary test.
Symptoms have been so varied and strange at times I couldn’t list them all!! Have included fizzing/buzzing sensations, tingling and cold extremeties, menthol taste in mouth, heart palpitations, tight chest, SOB, feeling of something stuck under right rib, PEM, burning/prickling skin, enlarged glands, white coating on tongue which never fully goes away (swabbed and no infection) etc. Worse around ovulation/period and seem to have relapses for no apparent reason. Have considered that I have MS, CFS but I don’t have any official diagnosis.
Have tried dietary changes (currently working with a nutritionist on an elimination diet), supplements, pacing, vagus nerve exercises, meditation.
It’s over a year now - I quit my job last September as I just couldn’t cope. Have a four year old and hoped to have another very soon though that feels extremely unrealistic. I feel very alone at times and do find it helps to read threads like this regardless of whether I have the same root cause to my issues!!
I had been doing so much better since December and would say I was 70-80% back to my normal self and feeling quietly optimistic. I had a bad couple of days over New Year where my neurological symptoms went crazy for a day or 2 then seemed to settle down. Then a week ago I started with a virus (??) had diarreah for a day and it seems to have set me right back to square 1. My gut has clearly been impacted quite badly as I’m back to reflux, belching and bloating and I hadn’t been this bad for months. My tight chest/SOB and heart palpitations have also come back. I recently carried out a comprehensive stool test which the nutritionist recommended - I literally can’t wait to get the results and start on a gut protocol as I feel my gut is at the centre of a lot of these issues.
So sorry for the mega epic post
so hard to condense over a year into a few paragraphs!!
The reason I felt compelled to post @Whatnext2018 is that from reading these threads we seem to have a strangely similar symptom path. I had exactly what you describe over New Year and it did pass after a day or 2. I don’t know if that reassures you in any way!!