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Covid

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Covid Lungs Week 7/Day 49 and onwards

999 replies

Dandyish · 05/05/2020 23:13

Support thread for those who've had Covid symptoms or post-viral fatigue for at least 7 weeks/49 days or longer.

If your symptoms haven't lasted that long, check out the Lung 7 thread (or later).It'll be more helpful as people there will be in a more similar position.

OP posts:
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Wingingit15 · 09/05/2020 19:59

@Tangledyarn that’s so annoying for you: though I was told that it would pretty done back negative either way as so late in the day now. I said I was worried about actually having something else but as you say, they said other tests would at least tip off. It’s just still a worry as like everyone else, I’m finding the ups and downs hard to get my head around. I guess if antibodies come back negative I will have to push for some more insight though obviously it’s difficult to get appointments for chest things at the moment

LetsBeSensible · 09/05/2020 20:03

@stayathomegardener thanks for CFS scale, I actually need that for something else, to do with my CFS
Echoing @Tangledyarn this sort of recovery from a virus (lasting forever, long dark nights of the soul wondering if I will ever get better) is exactly what happens to me when I get a virus, even “just” a cold. Although in this case it affected my breathing and was an unknown virus which the world has never seen, so it was still scary.

I have had a good day, am going out soon to the shop! I also forgot that ibuprofen existed, took some earlier and they really helped.

My recovery chart would look like the government one, with the “average” orange line cutting through the spiky up and down daily totals. Overall I’m improving. Some days (and some hours) I do not feel like I am, but I am.

#covivors it’ NOT like the flu!!!

MillStone · 09/05/2020 20:08

@Wingingit15

Thanks, interesting. Such conflicting advice from everywhere. My GP advised taking only ibuprofen... for my heart pain and chest pain. After asking me if I was sure it wasn’t anxiety. Was not impressed.

By the way, yeah I wondered if this is / was something different but concluded it surely has to be Covid.

Wingingit15 · 09/05/2020 20:19

@Millstone - yes there seems a massive disparity of consensus , although not surprising as everything moving so fast clinically. And the problem is there are no answers - either for a lot of people in getting a conclusive covid diagnosis (I think everyone I’ve talked to in real life thinks I am ridiculous ) or what that even means

Tangledyarn · 09/05/2020 20:25

I've been taking naproxen again for a couple of weeks again now (I take it for another condition) but feel I'm far enough in now to not worry, but obviously use your personal judgement. In my trust the advice seems to be changing really regularly around nsaids.

Porcupineinwaiting · 09/05/2020 20:46

An exciting positive for me this evening: for the first time in 7 weeks (to the day) nothing in my body feels like it is burning- not my skin, not my lungs, not my stomach, not my tongue, nothing. Grin

I still have plenty of other symptoms- and I'm sure this one wont last - but bloody hell it feels like a breakthrough!

Dandyish · 09/05/2020 21:11

Well done Porcupine on that breakthrough Grin

My positive is being able to stand outside for over an hour and to go up and down the stairs a few times today without being absolutely knackered. I mean, I am knackered, but not totally Grin

I feel a lot more “chesty” today, like there stuff on my chest. Which is slightly concerning but I’m hoping in a way that it’s phlegm I can cough up and get rid of.

OP posts:
Norugratsatall · 09/05/2020 21:37

@sleepwhenidie that is good to hear! Hope she continues to improve! 💐

@hollieberrie yes I had blocked ears, ear pain and tenderness and tinnitus. As I'd previously been treated for blocked ears following several very heavy colds earlier this year, the doc I spoke to on the phone just sssumed it was Eustachian tube disfunction but I had my doubts as I didn't feel bunged up at all! Sinuses were clear as a bell! Knowing what I know now, of course, I feel sure it's all connected with the Covid and I did tell him I was convinced I had Covid and could the ear problems be connected? He didn't believe me however and prescribed further treatment for the blocked tubes! 🙄 ear problems are awful aren't they! It's been one of the most distressing symptoms of this virus for me.

Norugratsatall · 09/05/2020 21:38

@hollieberrie sorry to hear about your colleague too. 💐

Fishflakes · 09/05/2020 21:39

Hollieberrie Flowers

alittleprivacy · 09/05/2020 23:04

After 2ish weeks on ibuprofen I've decided to come off it. I think the worst of the inflammation is down but I've been getting really bad heartburn along with my sternum pain and I suspect the ibuprofen may be responsible for at least the heartburn but possibly the sternum pain too. I have had the sternum pain before I was taking the ibuprofen but not this bad and I had no heartburn. So I'm switching to ibuprofen gel where the last of my inflammation is. Unfortunately it's practically under my right shoulder blade, so it's a pita to actually apply the gel but I can't keep on taking ibuprofen indefinitely and I need to see if it's the reason for the burning.

TheWooisStrong · 09/05/2020 23:17

Popping back in to say don’t give up hope. I coughed a bit this morning, still slightly refluxy, but other than that I am fine. Running round the park playing frisbee with the DC after tea (ok, had to stop that quickly) but every day I’m getting better.

Moodgie · 09/05/2020 23:30

@thewooisstrong Thank you for sharing this. Need it this evening. Did you have relapses before as well? How many days are you?

Porcupineinwaiting · 10/05/2020 00:03

@TheWooisStrong that's so good to hear. It's been a long journey.

everythingisginandroses · 10/05/2020 00:07

Day 54 here. Just popping back to say thank you to everyone who has been kind to me, held my hand when I needed it and shared their experiences. @Casino218, @Lightsabre, @Quartz2208, @onlinelinda, @longshot @Gunner30, @Needsomegoodnews, @TheWooisStrong, @TheDrsWife46, @Worriesomedad, @Porcupineinwaiting. Apologies to the many others whose names escape me.

Thank you to @alittleprivacy for your post at 13:19 today - you are totally right, and we need to take comfort and keep the faith that our bodies will recover ok.

My cough has gone, my temperature has finally normalised and I can feel my lungs less day by day: still get a few aches and tingles mostly late in the day, but it's diminishing. I am still tired, but that's improving too, my energy is returning. My recovery has started to feel linear instead of up and down or stalled.

I'm going to have a break from MN for a while now, probably until Christmastime (love the Christmas board!) The tone elsewhere on MN was bothering me before I got sick and it's bothering me again now that I am well enough to engage a bit more again: there is too much catastrophising and policing of others' behaviour, and some posters are unkind to others who are unwell and worried.

That's not important though: everyone on the threads for symptomatic people here has been lovely and really supportive, so thank you again. I wish everyone a good recovery - better times are ahead for us all. Flowers Flowers Flowers

lilithxx16 · 10/05/2020 02:05

Do you worry that you're still infectious? DS2 was really ill with a high fever/cough a week before the schools closed. After nursing him I developed fatigue and tight chest. I never had a fever or a continuous cough, so I never felt sure that I had the virus. But the symptoms are still coming and going nearly 2 months on.

pinkoneblueone · 10/05/2020 03:57

Popping in on the very first hours of week 9 for me, I'll hold my hand up and say I over did it yesterday and I am paying for it with pain all to the left of my chest, reflux issues. I have just woke. With palpitations and being very hot. I did a fair bit yesterday but I also rested a lot in-between what I was doing and thought I could get away with it. How wrong was I? I am thinking that the majority of my pain is linked to gas and a tiny little fly that seems to be in our room feasting on me
🙄 I've had Gavisgon and Ibuprofen and still have the wind. I am due on in 9 days but think it's going to arrive early and trying to decide if I have sore boobs or not. I have asthma and the wind can set me off on an attack if I'm not careful. I think I will be ok if I can just get back to sleep. I was feeling pretty good the last few days not sick, not 100% but not too bad. The only complaint was that the heat was making breathing a bit more difficult this afternoon. Will see what tomorrow brings. I hope everyone is starting to feel a bit better after the 50/53 day blip. That's when i started to feel a bit better.

pinkoneblueone · 10/05/2020 03:57

(After the 3/4 day blip that is)

pinkoneblueone · 10/05/2020 03:58

*woken

Egghead68 · 10/05/2020 06:12

Day 50/51. Yesterday was my best day in ages (managed 4.5 hours of work alternating with rest/naps) and I’m cautiously optimistic about today.

I still have the chest burning/sore throat/high heart rate/breast pain but it’s all more manageable when you’ve got the energy to focus on something else for more than 5 minutes at a time.

It’s great to hear that some people are improving. Hope everyone had a better day. Take it easy @pinkoneblueone

Valsemove · 10/05/2020 07:05

Hello to everyone here. I’m new to this thread but have found reading past posts really helpful and, like others here, wanted to share some positive news. Sorry it’s a long post but I didn’t want to dripfeed.

I’m now 7 weeks in from first episodes of breathlessness (9 weeks since first cold-type symptoms). I was taken to hospital by ambulance in week 3 due to chest pain (suspected pericarditis, later discounted) following an episode of breathing difficulties. When the ambulance arrived, I had been doubled over on the bed struggling for breath after the breathlessness had steadily worsened during the afternoon. I was isolated in a room at the hospital but not tested for Covid-19 as was not admitted and did not require treatment. X-ray, blood markers, blood oxygen levels and ECG were all normal. Low white blood cell count was the only thing flagged but that had been picked up well before this illness.

The following day I experienced strong heart palpitations and what felt like a burning sensation in my heart muscle, which subsided when I forced myself to calm down. After that, I felt there was some inflammation in/around my heart, but it subsided over the course of a week. My GP has since said other patients with suspected Covid-19 have reported the same symptom and that it is not a heart attack and that unless the patient has existing heart disease then it should not cause permanent damage (how can they be so sure, when so little is known about the effects on this disease?)

My recurring symptoms since then have been episodes of breathlessness, burning lungs (only in week 4), lung pain, transient feeling of tiny pieces of glass in my lungs following inflammation, boob pain, lymph node (I think!) armpit pain, upset tummy, insomnia and a ‘cold acid’/menthol type feeling in my chest and throat. My experiences with this illness echo those of many here.

However, I’m now (tentatively) happy to report that the acid sensation in my throat and chest subsided yesterday (day 53 since first onset of breathlessness). The symptoms I have now are a feeling of residual soreness and inflammation in my chest, and stiffness in the back of my lungs, plus the odd random pain in my lungs. Think I may get a heart rate monitor as sense my heart rate speeds up a bit on doing normal things, but have read information about POTS and am hoping this is just a temporary post-viral thing.

I am resting as much as I can (bar nappy changes, minimal carrying of DD downstairs and sitting playing with DD). I overdid things earlier in the week - a bit of laundry, washing up and pottering around the house - and had mild breathlessness followed by lung pain and insomnia afterwards, so scaled back my activities again. I’m now scared to tests my limits again.

Fortunately both my just-turned 7 month old DD and my DH have not been unwell but I have had serious worries about what would happen to my EBF DD if I was hospitalised with this illness. Recovering from Covid-19 whilst EBF and DD waking every 1, 2 or 3 hours at times has sometimes felt like the fight of my life. Fortunately DD’s nighttime sleep has just started to settle down into mainly 3-4 stretches again.

I saw GP in weeks 3 and 6 since onset of breathlessness (weeks 5 and 7 since onset of cold symptoms). They are fairly sure I have had Covid-19. Listened to chest both times - all sounded normal. Blood oxygen levels were normal both times. Heart rate was a bit raised the second time, but GP said this could be because of being sleep deprived and running on adrenaline. Hmmm. GP said they would be unlikely to refer me for another X-ray at this time. Second GP suggested I might be suffering from anxiety and referred to ongoing pain in my lungs as a ‘twinge’.

DH and I have been able to access an antigen swab test this week. Negative for both.

I am just-turned 37 years old, very slim, previously fit and healthy, no pre-existing medical conditions. Had been EBF without multivitamin for myself (only drops for baby) though as suspected Pregnacare was exacerbating reflux issues in DD a few months back (she’s fine now). Also chronically sleep-deprived, so that probably hasn’t helped.

What’s helped (possibly!) - Resuming taking Pregnacare 3 weeks ago, soluble Vitamin C since 3 weeks ago.

ChippedPotatoesLloyd · 10/05/2020 07:27

Was on these threads a few weeks ago as I was an early case and just wanted to report finally being back to 100% for the past 2 weeks. All symptoms were as described here...ups and downs etc. Since wk 8 started getting there. Now into wk 11. Finally ran 5k again. Felt so good. Hope this encourages someone through the dark days. Previously fit and well. The main mistake I made was going back to normal life too hard too soon (feeling it must surely be fine now!), excercising more etc and relapsing majorly after about 5 or 6 wks.

Valsemove · 10/05/2020 07:35

Chippedpotatoeslloyd Great to hear you are feeling so much better now and have been for the past couple of weeks. Yes, rest, rest and more rest is so important with this illness. I have thought I was better a few times, resuming normal activities around the house (including for a couple of weeks in weeks 2 and 3) before relapsing again. In contrast to those fairly early days, I’m sensing the illness has now run its course but that my body also now has less tolerance for pushing limits.

IamEarthymama · 10/05/2020 08:18

Hello everyone!
I won't go through my story of CV as it mirrors the symptoms that so many of you have been through. I was on the Lungs threads and have discovered this one with great relief

I am on my second course of steroids for asthma. I have had mild asthma for 20 odd years, it flared up occasionally but I have been terrified in recent weeks. I have a rubbish record with viruses and infections, also have severe arthritis and mild psoriasis, history of IBS

I also thought I would seem totally attention seeking if I said I had CV which was a mistake.

For me the worst is over, I still get exhausted easily, struggle for breath sometimes but I can manage via walk or some gardening. The overwhelming fear has stopped too, I haven't cried in despair for a week. Acid reflux is still an issue but I am eating too many carbs so that's my fault.
I am using herbal teas to calm myself, trying to avoid SM and being kind to myself when I feel frustrated.

I want to say thank you to everyone who has shared their stories as I truly thought I was going crazy. Get well soon xx

Mummypig2020 · 10/05/2020 08:22

Week 8 here. Dh is fully recovered. Iv just started antibiotics and an inhaler, both don’t seem to be making much difference tbh.

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