Has anyone on the shielding list still not received a letter/text?

[NewChapter11]

According to Asthma UK I should be on the shielding list. I'm on Spiriva, montekulast and have taken 2 courses of prednisolone this year. Anyone else who assumed that were on the list still not in receipt of confirmation?
I'm shielding atm regardless but I will need to go out food shopping if I contunue not to gain access to delivery slots.

I think, in addition to that, you are meant to be taken more seriously if you do experience symptoms. For example, it says in the guidelines, that you should contact 111 as soon as you get symptoms and not wait for them to get worse. Otherwise, you are only meant to contact them if you can’t breathe!!

Mind you, someone was telling me how they have been identified as vulnerable. They waited 3 and 3/4 hours on the phone, to be told to go to a gp, then directed to hospital and finally told they didn’t need O2 so go home!

Asthma uk is now sharing the same advice re the letter as the NHS info that someone shared.

If you or your child is in one of these groups, you should have already been identified and sent a letter or text message advising you to shield:

You are taking ALL THREE OF:
    a steroid preventer inhaler (at any dose)
    another preventer medicine (e.g. you are on a combination inhaler, or take a medicine such as formoterol or salmeterol, or tiotropium as well as your steroid inhaler, or if you are taking montelukast)
    regular or continuous oral steroids (which means you have had 4 or more prescriptions for oral steroids in the lsat 6 months)
Or you have been admitted to hospital in the last 12 months for your asthma
Or you have ever been admitted to an intensive care unit for your asthma.

So no letter for me.

However, it still goes on to say that if you are on a higher dose inhaler (I am) and take Montelukast (Which I do) they still recommend that you shield.

I can't see that being good enough for HR if school opens anytime in the next 12 weeks if I don't have a letter for proof of not being advised to go to work.

I don't understand how the Director of Respiratory Medicine can be supporting shielding for some groups (as was originally identified by Asthma UK), but the government are just prepared to abandon a whole group of people without help.

The whole thing has been a fucking farce.

I haven’t had a letter either! I have asthma, take all 3 types of medications and have had a previous ITU admission. I agree with what someone previously said, surely more severe asthmatics are unlikely to get a new prescription for each course of prednisolone. Also I take a different oral steroid.

I guess that the GPs might be finding it hard to search to identify everyone correctly.

No letter for my Dad who has CLL. Last chemo in 2016, but regular 6 month check ups so I assume he should be getting one? Does anyone know? It says any stage of treatment, which I was assuming included “watch and wait” stage.

Also, anyone know if this is affected if your refused consent for NHS patient data sharing?

I've had a shielding letter for asthma it arrived today.
My prednisolone is prescribed in batches of 100 which I think gives my pharmacist curly hair. But means I haven't had 4 prescriptions in 6 months but I have had 4 courses.
I take courses when I need to.
I had refused consent for NHS data sharing
I hope that answers some of the questions

I received my text last Monday
I received my letter on Thursday.
I receive tips and motivational messages from NHS Corona service daily.
I log on to Sainsbury's, Tesco and Ocado but they cannot 'recognise' me as vulnerable ,

I don't know anyone who has received a letter yet but know just of the top of my head at least 6 people who should have.

Thanks Didkdt. Very helpful on the opt out. Not that then!

I have registered him on the Gov website, but that says contact your GP or consultant if you haven’t received a letter. I called the GP but they said they letters were nothing to do with them and they couldn’t help (and they have had a lot of calls about this apparently). I called the consultant but couldn’t get through so had to leave a message.

This is so frustrating!

Aha - Welsh gov say letters should be received by the 6th of April, even though PHW says 29th March...

gov.wales/get-coronavirus-support-extremely-vulnerable-person

I have very helpfully had an email from my medication provider telling me that those who should receive a letter will get one from PHE. Especially helpful when you consider that I'm not in England. 🙄

My husband has a list of ailments but according to the letter he received he is vulnerable (age 81) and must not go out for 12 weeks. A week ago I received this text: UK Gov National Shielding Service. Please expect a call from us on 03333050466 to register any needs around food, care and wellbeing.
No surprise that I haven't yet received the phone call.

On the 9 July I went onto the government website and filled in my husband’s details. I had received a text on 20 May saying they would ring me but they haven’t. After going on the website I received another text saying they would check if he was eligible. I assume he is because I have had emails from two supermarkets about priority delivery slots and a box of food. Some medical people we have had to be in contact with for his different illnesses say he is shielding, some not. Totally incompetent.

That is the one I got on 20 May and no phone call yet.

There seem to be things coming from loads of places.

I was on the shielding list, and always have been from the day the letters came out.

I decided I didn't wish to shield and as such didn't want to be contacted / take resources like shopping deliveries away from people who were shielding.

For weeks if not months I continued getting contacted by so many different places - my hospital, my GP, other agencies etc. Each time I explained I didn't wish to shield and why , and that I had consulted my hospital doctors ...but in order to get removed from lists I had to tell easily 5 different places.

In short - I don't think anyone really has a clue what's going on and there is no centralised records