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Has anyone on the shielding list still not received a letter/text?

65 replies

NewChapter11 · 29/03/2020 13:12

According to Asthma UK I should be on the shielding list. I'm on Spiriva, montekulast and have taken 2 courses of prednisolone this year. Anyone else who assumed that were on the list still not in receipt of confirmation?
I'm shielding atm regardless but I will need to go out food shopping if I contunue not to gain access to delivery slots.

OP posts:
quirrels · 29/03/2020 14:49

I didn't get a text but did get a letter. I fit three of the criteria so well and truly vulnerable. Still doesn't get me a supermarket slot.

NewChapter11 · 29/03/2020 15:21

Mendeleev you maybe right but the original info listed my meds in the shielded category, although the goal posts seem to have narrowed to which dates the meds were prescribed judging by your link and whether the pred is taken continuously.

OP posts:
champagneandfromage50 · 29/03/2020 16:03

My DH got his letter on friday and received the text a week ago

Wingedharpy · 29/03/2020 16:17

I've not had mine yet either but know what I should be doing and am doing it anyway.

Goverment document put out yesterday said they had sent out 900,000 letters and there are approx 1.5 million people in the extremely vulnerable group.
Presumably, the rest of us should hear sometime this coming week.

I'm at GP's on Tuesday, for essential appt, so will ask then if I haven't heard and report back IF what I learn may be of use to others. 👍

DrMadelineMaxwell · 29/03/2020 16:47

I think asthma uk advice massively overstated the case and is not what the NHS have used as triggers for the letter.

I'm also on montelukast and the combi seretide. And have had 2 lots of steroids since Dec.

On their original advice, I would have had a letter.
On the NHS's new advice, I'm 2 courses of pred short to get it.

MadisonMontgomery · 29/03/2020 16:53

I work in a GP surgery and we were told to tell people if they hadn’t received a letter they need to self-register (which I believe gives some indication as to whether you qualify or not) and then next steps would be for hospital consultants to advise the government of those patients they felt met the criteria, then at some point GP’s could also advise. Dreading the calls tomorrow as the cut-off date for letters is today, and most people seem to be under the impression we send them out and/or can add anyone who feels like it to the list 🙈

Needtobepositive · 29/03/2020 16:56

Expected one for my type 1 diabetic but didn’t get one. We are staying home anyway but did think we’d get one.

Didkdt · 29/03/2020 16:58

I get my prednisolone prescribed in packs of 100 so I've been on it 6 times since last June but not had 4 prescriptions I am sort of shielding staying in the family are only going out for walks I'm not even doing that I'm relying on Prime now and Meat boxes to feed us I'm not sure whether to call my practice to see if they think I'm vulnerable or carry on

porolli · 29/03/2020 17:04

I have cancer and am recieving chemotherapy (or should be, my treatment last week was cancelled though). But no letter (although I did get offered a vulnerable person delivery slot from sainsburys and don't quite understand where they got that information from)

Floralnomad · 29/03/2020 17:06

From the original list I should have qualified for a letter , I haven’t received one so on Friday I emailed my GP surgery to enquire and they said it’s nothing to do with them . Frankly I’m self isolating anyway ( mainly because I get nagged otherwise) and I only wanted the letter so I could jump the queue for an Ocado slot but I’ve now arranged for food deliveries for our household from my sister and adult son ( he is with her) so I’m not bothering to pursue it . It must be very difficult for people who are trying to stay isolated but have nobody to shop etc for them .

BamboozledandBefuddled · 29/03/2020 17:08

Sounds as if this is an utter shambles with everyone saying 'It's not down to us'. DH isn't going to like it but I'm going to draw a lump sum out of my pension plan, enough for us to live on for a year. It'll be frugal but at least we'll have something. If he gets official notification to stay off work for 12 weeks (plus several months more in all likelihood) we can look at what he can claim. But living on my Carer's Allowance isn't going to last us long.

BeyondMymymymyCorona · 29/03/2020 17:19

Yep. Luckily I'm not working so not relying on this letter to sign me off, but I really feel for anyone who is :(

Mendeleev · 29/03/2020 17:20

I think it is a shambles. Worsened by Asthma Uk trying to speculate.

I have to say though, I am really quite worried. It’s just been good fortune that I haven’t had a cold that went on my chest over the last few months. However, any other year, I could have been in the group. I know how my lungs react to normal cold viruses, let alone COVID.

I’m staying at home but my DH is a heating engineer so is still going in and out of houses. We have a very small house so it’s incredibly hard to distance myself.

Wingedharpy · 29/03/2020 17:21

SEE POST AT 16.17

There are approx 6000,000 letters still to go out.
9000,000 been sent so far.

Source: Gov.uk document "Food parcels delivered to clinically vulnerable people", published today.

Though it feels like yesterday when you're under house arrest.

BeyondMymymymyCorona · 29/03/2020 17:22

Is that just England though? As I said, I've heard from some people that the welsh gov aren't doing it - but is that cause it isn't devolved?

Floralnomad · 29/03/2020 17:25

I reckon you need to be actively under a hospital consultant , I was signed off by the respiratory team and care handed back to the GP about 3 months ago , yet I’ve been on the same inhalers for a couple of years now and my chest is probably as bad as it’s ever been .

VivaLeBeaver · 29/03/2020 17:32

My friend who hasn’t got a letter is still under the hospital consultant and has annual checkups.

BamboozledandBefuddled · 29/03/2020 17:46

DH isn't under a hospital consultant Sad One reason for his review was to see if he should be referred to hospital.

DrMadelineMaxwell · 29/03/2020 21:25

Yes, Wales are doing it.

The original 'deadline' was for 29th, but online I've read that the letters may yet arrive tomorrow in Wales, and later in NI.

No similar page available on NHS Wales to check whether their criteria are exactly the same or not.

BeyondMymymymyCorona · 29/03/2020 21:39

Ah great, thanks. Do you know if that is allowing for us only getting post every other day atm?

NotAnotherUserNumber · 29/03/2020 21:46

I haven’t had a letter or a text, but I have conditions on the extremely vulnerable list and my GPs have called me several times to check on me. I registered online on the gov website, but haven’t heard anything from them.

I had actually already been shielding since February because I was advised to start earlier, so haven’t been outside for weeks already.

Hearhoovesthinkzebras · 29/03/2020 21:49

The government press conference that they held today the minister said that they had sent out just under one million letters so far. Given they've said one and a half million are in the shielded group that's a lot of patients that haven't been sent a letter yet

BeyondMymymymyCorona · 29/03/2020 22:35

I've only been outside of my front door three times in March - once to visit PiLs, once out for DPs birthday, and one hospital visit. The DCs only finished school a week before everyone else though, so we are only on 16 days completely isolated.

I'm now curious if for some reason I won't be on the list (though afaik I should be) and wondering what difference that would actually make...?

Hearhoovesthinkzebras · 30/03/2020 09:42

BeyondMymymymyCorona

I think the only difference that being on the list makes is your entitlement to access help eg you are meant to be able to get food supplies delivered to your door, although this only applies if you have no friends, family or neighbours that can do it and from what I've heard on TV the supplies are limited to the very basics, they will get your medication delivered by community pharmacies again if you have no one else able to do.so.

There's local hubs available where you can phone to access these. If you work then I suppose this gives you something not show your employer in order to justify your need to be off work.

In reality of you have someone to do your shopping, collect medication and either you don't work or your employer is supporting you without asking for evidence (mine is as they have plenty of evidence including from occupational health that detail my condition as it's been on going for many years) then I don't think.being on the list would really change much. Although I suppose it might if it carries on longer than 12 weeks.

From what I'm hearing there seems to be an issue with being added onto.the list if you think you've been left off - no one seems to know who is responsible for adding you on but maybe processes will be put in place for that.

BeyondMymymymyCorona · 30/03/2020 10:10

I have a recurring food delivery slot anyway as I don't drive. Then I have my prescription delivered already too, and I don't work. So seems it won't make any difference to me Grin

Rather selfishly (given others have proper reasons) I hope I get one just for me though, cause without that piece of paper I feel like a hypochondriac. That's a side effect of being undiagnosed for years with other things, I think.