Immune/NK cells pred thread #33

[Jecca88]

Hey Guys, starting a new thread as we have run out of space - hope i have included everyone and sending lots of love x

@venusStarr
@Gizmo1983
@Carportforme
@Meg310532
@Newbeginnings22023
@recurrentmis
@hopefulH
@v60
@lozzmax
@fleur89
@motherofshihtzus
@sunflower360
@kea1990
@sprinkleofbabydust
@star2022
@rumandspinach
@ems123456789
@rainbowsunshine81
@mamaw05
@thornters
@elarcoiris

Hi @Hopeandfaith1990, thank you. Next scan is actually on Wednesday next week. I will be glad when it is done, whichever way it goes but obviously praying for good news. Hoping everything goes well for you

Hi Gizmo1983 you are understandably stressed hun, I would be too. It is sort of easier for me because my losses were so early, apart from the MMC fund at 12 week scan. That said, the embryo had only got to 6 weeks so if they find cardiac activity at my scan next week I will have got further than previous pregnancies but I absolutely get your different situation. One day at a time for you now hun but I know it is so hard to be positive. My scan is Wednesday next week. I am currently feeling slightly nauseous a lot of the time and there are a lot of foods I cant eat because of it. I have actually been suck a couple of times now so i dread to think how awful i would feel if i wasnt on the pred. I am trying to avoid telling all but my immediate family but I am ridiculously bloated and my boobs are huge already (I was exactly the same with my MMC pregnancy)) so I am getting suspicious sideways looks from other people already, which is annoying!!
I have it all crossed for your scan and NIPT results hun x

@CarpeDiem75 All okay so far but we all know what this journey is like.
Sorry you feel so exhausted but I absolutely get it. Hope things start going your way too x

Thank you love @Newbeginnings22023 , hope you're ok too.

Thanks @Meg310532 thats very sweet :) So we have our Genetic counselling tomorrow and I am not sure if we can start on my next cycle - so it might be start of august that we will start, unless i get pregnant this cycle as i had pre-ovulation intralipids last week.

Hoping your scan goes well @Objectiontime this week and you get to see that longed for heartbeat. Rooting for you :)

Good luck @CarpeDiem75 - i really hope this works for you. What about Saturday morning for intercourse too?

Hi @Jecca88 I completely agree, I am so desensitised to it all I don't think anything is extreme anymore haha. Even the IVF injections I was anxious but just like 'oh its just another thing we have to do' lol.

@Gizmo1983 sending you a huge hug and hope you're feeling a little better physically and mentally.

@Meg310532 So nice to hear that the anxiety can ease off a little, and so glad to hear everything is still going well for you!

Thank you for posting @ForeverDreamer I love hearing success stories.

I listened to Mr Shehata on the podcast referenced above, I thought it was such a good listen. It really reaffirmed my belief in the treatment and made me feel a little more hopeful. Thanks to whoever shared :)

Still awaiting PGT-A results here. Good thing I'm so patient (not)...!

Good luck for this cycle @CarpeDiem75 & hope you're feeling okay on the Hydroxy xx

How is everyone doing? I'm getting ready to go off on holiday on Saturday. Mildly annoyed that I'll miss the first opportunity to try since the MMC in March, but realistically starting a load of steroids on holiday probably wouldn't have been much fun.

A QQ for the CRP patients- Shehata mentioned that I'd need to see him in 3 months if not pregnant and I see on the website tests will be re-run.... does anyone know which tests they are? I'm hoping it's not another 3K I need to find in a few months time 😥.

Thinking of you all, especially those with scans coming up this weekend and next week. I have absolutely everything crossed for you. x

Hi ladies honestly thank you so much for your kind words they have meant so much today.
i think this has been my hardest week by far just coping in in my own mind, ive had to book my midwife appt on Tuesday and i dont know how i will manage it im terrified, my main milestone is having a heartbeat at Sundays scan and getting the nipt results ( I’ll be 42 next week 😬)
ive just read through all the posts crikey things move quickly don’t they.
@Objectiontime everytjing is sounding the way it should be ☺️ got everything crossed for wednesdaY.
@Jecca88 fingers crossed, I had my intralipids this week I think u must have been thirsty as they only took half an hour lol.
last pregnancy I made it to the nipt and that’s where the heartbeat had stopped and the one before that found the cystic hygroma. So I guess I just need to get this done and get the results and deal I keep telling myself pint of worrying will change anything.

Fingers crossed all round @Gizmo1983. We are both heading for milestones and we can but pray and stay as calm as possible I guess. My God it's hard though! Xxx

@Fletchasketch Are you just on drugs at the mo? I did just the drugs for 3 months and I remember feeling dreadful because nothing happened. That's when I had an appointment with Dr Edge and she suggested Superovulation. She also was the first person that gave me hope after feeling abandoned by the NHS and tbh the first appointments with Dr S were a whirlwind, can't say I had a clue what was going on, I just went with it because I felt out of options. I didn't have any other blood tests. Just have to have the Wellbeing Bloods every 3 months which I do at GP.

To wveryone else, I am following and I am willing you all on from afar hoping it is your time 💕 Lots of love & strength 💕

Thanks for this. I'm on drugs for the moment, but will be on intralipids from the next cycle. Three months is a really short window to try and conceive, especially as I'm over 40. I'm really not keen on going down the superovulation route or adding any more drugs to the mix- it already feels like so much, plus it means additional appointments and cost.

Really good to know it's just the well-being bloods that they ask for, mind you it takes a month to get an appointment at my GP so probably need to be requesting them now!

Thanks again for the advice and I hope it's all working out for you x

Hi ladies, sorry to jump in, long time lurker here finally joining the conversation... I don't really know where to begin but I've just had my 8th miscarriage, the first one under Dr S. I had surgery on the NHS and finally got the cytogenetics back, it was normal. The only other time I've managed to have testing (my 7th) it was normal too. All natural pregnancies, all very early losses. We did try one round of IVF after my 7th loss, before starting with Dr S (privately, but abroad for cost as not eligible under NHS), but did PGTA and all embryos came back abnormal, so we didn't go any further down that route.

So... we're going to give it another try with Dr S. Currently waiting for a consultation to see what he says and if my protocol needs to change. I presume so, considering it didn't work - although we did get further than previous pregnancies with this one (nearly 8 weeks), and saw a heartbeat for the first time.

In the meantime I'm trying to organise well being bloods and my GP has refused :( They did it for me around 3 months ago, but are now saying that they can't do regular repeat tests and that I need to get them done privately. I feel so let down that they can't do this simple thing, considering my history and all stress I went through under the NHS recurrent miscarriage clinic (that I won't go into here!) Has anyone else faced this issue and got their GP to agree?

Thanks so much for your help xx

@Jecca88thanks Saturday would have been great… but I am so annoyed I triggered at 4pm on Thursday and my ovulation has still not happened so I am so frustrating (over 40hrs!)… we have only had intercourse on Thursday around midnight … and my partner fell sick yesterday so we can’t do it again for this cycle as I am going away without him… sometimes I am just like a tiny bit of luck would be great… I feel so frustrated and upset that I have wasted £500 and a cycle now for nothing… 😭😭 I have never got pregnant with doing it 2 days before… only when I do it the night before ovulation. Anyway I just needed to vent my frustration as I have nobody to talk about it around me..

@MC8 so sorry to hear about your losses and welcome to the thread, although I appreciate you would rather not be here! I can’t answer your question but just wanted to offer virtual support. We are all here for you.

@CarpeDiem75 That is so bloody annoying isn’t it!! I completely get your frustration. It would be annoying if you didn’t have to pay, but!!
Trying to air on the positive side, the fact that you haven’t caught from earlier bd before isn’t necessarily an indicator that it can’t happen so I’m still crossing my fingers for you hun xxx

@CarpeDiem75 ugh just sometimes wouldn’t be great if things could just be easy just for once. You never know it could happen xxx

Hi @Gizmo1983 - I am unlikely to get a chance to get back on here until tomorrow night so I just wanted to hoo on and wish you the very best of luck for tomorrow. Will be thinking of you hun xxx

@Objectiontime thank you so so much 🤞

Thinking of you @Gizmo1983 xxxx

Katherine Ryan speaking about NK Cells and Dr S

https://vm.tiktok.com/ZNdyo4vR5/

@Hopeandfaith1990 thanks so much sweet appt is 4.30 so a while yet 😬😬😬. How are you doing sweet? Not long for those results now xxx

Gosh I bet this is going to feel like the longest day ever!

im okay thanks, had a big wobble at the beginning of the week which I think was sponsored by AF arriving after the egg collection and a huge hormone crash. Just couldn’t stop crying for about 2 days 😂 but feeling much better now and hoping we get pgta results back soon and then we will know next steps!

Too scared to think of anything as a certainty still. Focussing on booking a holiday to take my mind off it!! How are you aside from the waiting game? Xxx

@Hopeandfaith1990 i was the same when my period started after the collection it almost felt like a waste and I should have had something implanted which I knew was ridiculous but that’s how I felt. I was mourning my lovely thick wasted womb lining I think 🤪.
a holiday sounds like an amazing thing to do just leave it all behind for a while I think going away more often started helping me realise there was more to life than this.
I’m so sorry I’ve not been here much I’ve been really struggling I’ve not left the house for 4 days and I know I can’t live like this.
my migraines were horrendous last week literally one every day but this week they seem to be settling a bit thank goodness, my consultant told me not to take my triptans so thats been a kicker. Hopefully today goes well, one step at a time xxx

@Gizmo1983 exactly! Just keep thinking I could have had one of them transferred by now 🤣 but I know that the pgta is worth it.

do not apologise!! You’ve got so much on and the migraines sound like a horrific icing on the cake. Yeah we’re excited about a holiday but also so unsure about when and whether we can go cos of the potential transfer timeline. Gosh all elements of this really rule our lives don’t they xxx

@Hopeandfaith1990 they totally do take over at the beginning of this year we put stuff on hold a few months to do Florida till we got back to do the zika test and get our results for that before we started with the donor egg. Lol. I was quite resentful my husband wanted to delay it but then I realised how many years we’d been on this rollercoaster and thought I need to enjoy something and I really wanted to escape my reality so we went xxx I’m sure you will find a lovely holiday that will work around everything xxx
im back and we still have a heartbeat and movement so we are still fighting. Argh the new nipt tests you have to stop any blood thinners for 24 hours this was all new so there was a bit of argh there but I just so grateful to be still going. Thank you all so much for all the good wishes they did the job xxx