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Conception

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dermoid cyst on ovary

89 replies

woo12woo · 05/04/2008 07:12

I have been diagnosed with a dermoid cyst on my left ovary.One of those disgusting things with hair, skin and teeth. They are apparently a confused egg that decided to develop themselves and get stuck on the ovary. I have had 3 missed abortions/ chemical pregnancies and really weird periods, irregular and very light. I keep getting sent to the hospital with suspected etopic pregnancy, because they keep seeing an enlarged ovary on the ultrasounds and positive hcg tests, with no pregnancy in my uterus.After a LONG wait I have just been to a specialist and finally after a year and a half of all of this, finally told what this is. The dermoid is not very big 4.5 cm the size of a small hen egg, but they say I will probably have to wait 4-8 months to get the surgery(have to have it removed) I am scared that part of my ovary will be removed too and I am worried that I won't be able to have children afterwards .....it is really stressing me out. Has anyone had a dermoid cyst removed from their ovary and been able to concieve a child afterwards? I am thinking of paying and getting this done privately, so I won't have to wait that long. I am 33 going on 34 and don't want to wait much longer before having a baby.Anyone had a similar experience? Help... worried and scared.

OP posts:
woo12woo · 31/07/2008 20:23

Hi khitam, awww, don't be scared, I was really by scared too, but as you can see from the people on this post that we've all had the same thing and had good outcomes! Dermoid cysts seem to be very common and it is a good idea to have them removed. I really believe that mine was causing my miscarriages, although there isn't any real proof to this...I am still a bit nervous myself, about having another m/c, only because I have had 3 in the past. My periods weren't really irregular, a little , like 34- 38 days, but that can be considered normal too... who knows. I have heard that PCOS, which is different, can cause facial hair,weight gain and really irregular periods, have you been checked to see if you have PCOS? The surgery is not major, to remove the dermoid cyst, I spent one night in hospital, but some people don't even have to do that. It is a very quick recovery time, I has 2 weeks off work and I felt so much better after just one week! So, don't worry about the surgery, it isn't bad at all.

OP posts:
khitam · 31/07/2008 20:49

hi woo12woo thank you cause u answer me ,when i read tonghit this post ,i called germany caz there is the only doctor said i have to make surgery and she said soon as possable ,i told her i have no pain nothing just the paroid not ok.but she said i have to do it if i want to get pregnat,but here in dubai 2 docters said dont remove it it s till small?really i dont know what to do now?and can u WOO12WOO gave me your docter address if he is near to me,and thank allllot and very happy for you .

khitam · 01/08/2008 06:38

good morning any women made a dermoid cyst surgery in dubai?if yes pls where?

khitam · 01/08/2008 19:11

good morning any women made a dermoid cyst surgery in dubai or uk?if yes pls where?blush

fledtoscotland · 01/08/2008 21:33

have only just seen this post but wanted to say that I had a 9cm dermoid cyst removed along with my left ovary when i was 9 weeks pregnant with DS. Apparently this type of cyst can be linked to hormones which may explain why you have had m/c in the past.

anyway, i had the op when i was 9+2 with DS and we are both fine (btw i was 32 at the time). i was told that i had cysts on my right ovary which may turn into dermoid cysts in the future and could affect my fertility. well, how wrong could they be as DS is 10mnths old today and i am booked to have a c-section in 4 weeks with #2!

khitam · 02/08/2008 08:12

hi very one, is possible to get pregnant even i have 4 cm deroid cyst in my left ovary?? even my peroid not regaler,it s coming just every 4month or more,and i went to maney doctors some of them telling me i haven t to removed it bacause still very small and i have to lose more fat because i get extra 15 kg this year ,but some of doctors said i have to and i need to make the surgery,please any advice??

fledtoscotland · 02/08/2008 12:09

well i fell pregnant with a 9cm dermoid cyst on one ovary and multiple chocolate cysts on the other.

should say i fell pregnant twice as am now 34+5 with #2

toneha20 · 04/08/2008 11:38

Good to know.. that most of u are happy mothers.
Well, I am 25 and was diagnosed with a dermoid cyst on my right ovary last yr. The cyst had grown quite bad and the doctor had to remove my right ovary too alongwith the cyst. My m/c cycles have also been more or less regular after the surgery. But, I have been scared about my chances of conceiving and abt the hormonal imbalances it might cause in future.
Now after reading all these stories by all you brave women, I feel quite good and relaxed now.

Just posting this to say Thankyou to all !!

xxxbubbles19xxx · 16/08/2008 11:56

Hi, i'm 18 years old and about a year ago i had an ulrtasound that confirmed i had a small cyst on my right ovary. The doctor told me it didnt need 2 be removed and that it might go. i fell pregnant in december and had a scan at 5 weeks, everything seemed to be fine, however, i suffered a miscarriage in march, i'm not 100% sure what caused the miscarriage but i am aware that my hormone levels were extreamly high. Could it have been the cyst that caused it, and if so does it mean that if i fall pregnant again i will miscarry?

Hopeful34 · 18/08/2008 19:38

These posts have really helped reassure me. I found out today that I have one of these alien dermoids apparently 4cm whilst being scanned at 6wks pregnant. No baby was found just this instead. Although gutted I now feel i'm getting to the route of the problem as I have had a previous missed miscarriage (last Nov) and have had irregular periods, (when previously regular as clock-work). I hope to find out on wednesday the next plan of action and hoping that this is removed as soon as possible. I am trotting towards my 36 birthday and still no children. Really needing this solved so that I can forfill my dream of holding a much longed for baby in my arms. Thanks everyone x

becca87 · 21/08/2008 19:36

hi! i have had a 5cm dermoid cyst in my left ovary for just over 2 years and it has gradually grown and will be removed this year most probably along with the ovary. the last couple of months i have noticed pain developing in my right ovary and am very converned as i dont want to end up with one on that side! does anyone know if it is possible that a dermoid cyst on one side could cause referred pain onto the other side or is it more likely i have a cyst there aswell? im so worried that i wont be able to have children

Hopeful34 · 04/09/2008 17:30

Hi, I have read that there is 11% chance that dermoids can be bilateral (ie: both sides), so it is possible. I don't think it would be referred pain, however you should get your GP to refer you to a specialist. Why is your ovary being removed with your planned surgery, is there further damage? A dermoid should be able to be removed leaving the ovary intact providing there are no complications. I am scheduled for a dermoid to be removed only therefore if it is on the other side the other cyst could be removed leaving the ovary intact. It shouldn't stop you having children as ovaries are like kidneys, we can survive with just the one. Hope this helps, but I would definately get a referral to find out and make sure they are aware you plan to have children. Good luck x

chyna929 · 07/09/2008 18:48

Hi All,

I am so glad that I found this site. After reading this I feel a little bit better. About 2 monhts ago I was having severe pain on the right side. Went to ER and they did a CT Scan(to r/o appendicitius) and found a cyst on my lft ovary (pain was on rt side)@ that time they said that it was appx 5 cm...Went to have a ultrasoud they said it was 9 cm dermoid .. then my cyle came and it was painful w/clots....lasted 17 days..I am scheuled for removal of cyst on tues sep9....I have been scared, don't want to lose ability to conceive. I am 32(33 on Sept. 29), and I have no kids. I am engaged to be married next year. I am nervous about losing a ovary and making my chances less likely to conceive. Even more nervous that it is cancerous
...

andrearenae24 · 08/09/2008 05:36

Hi just wanted to let u know that only about 2 percent are cancerous. I too was worried about that waiting for my pathology report! Only I didnt even find out it was a dermoid cyst until the report came back seeing as i had it removed along with left ovary and tube during my csection (didnt even know it was there). Please dont worry about your chances of concieving (easier said then done i know) , but i got pregnant realy fast with number 2(less than 2 months after my csection without trying) and so far so good im a lil over 4 months prego and my baby girl is 6 months.Its very scary the thought of losing an ovary as i was only 24 when i had to make that decision but obviously my dr was right in telling me that it does not decrease ur chances of concieving....he just said having one ovary is the same as two except for now there is no back up. mine was 15 cm by 12 by 8.

Poenus · 08/09/2008 23:20

My 12 year old daughter has just had a dermoid cyst removed. Unfortunately, she had to have her right ovary and fallopian tube removed as well. This was because the cyst was the size of a coconut.
I'm still in a state of shock about what has happened. My daughter has always been so healthy - very sporty and energetic. She had been suffering from occasional pain in her right side, which always came and went.
However, one Sunday in July, the pain came and got worse. She started vomiting and we took her to casualty, admant that it was appendicitis. She showed all the symptoms of appendicitis - severe abominable pain and she didn't stop vomiting. I was cross that they didn't opperate immediately. They kept her until the following day because they wern't 100% sure.
However when they finally operated, a gynacologist was bleeped. Her ovary had swollen to a size of a coconut and had twisted around the tube.They removed both the ovaru and tube.
I still can't believe it. At the beginning I kept blaming myself for not taking her to be checked out sooner. But after talking with my G.P and Gynacologist, there is nothing I could have done, it was one of those things.
My daughter has fully recovered after all this, and is going to get a scan in the near future to make sure that there is no other dermoid cyst hiding by her left ovary.
We have been told that this should not affect her life at all. She will hopefully have normal periods like everyone else and she should not have any problems having children when she grows up.
Its very traumatic to think that an innocent 12 year old has had to go through all this. As a mother I'd rather it had happened to myself.

Millie26 · 10/09/2008 13:07

Hey that's brilliant news woo!

I'm 12 weeks and I've got a dermoid, they found it on a 4 wk scan.

Can I be really nosey and ask about the period symptoms - what were they like? I have been worried sick about having cervical cancer as had funny bleeding for several months, but wondering if maybe it is just the dermoid?

Dr wont do a smear as he says they woudlnt do anything until after baby was born anyway. My last smear was 2 years ago and fine.

lilymolly · 11/09/2008 14:58

I alos have been diagnosed with dermoid cyst at 6 week scan- and then again checked at 9 weeks- they are monitering my again at 20 week scan, but concensus seems to be to have it removed yes?

Poenus- so sorry to hear about your daughter going through this. its very sad, but hopefully everything will be ok.

Millie26 I spotted you on another thread about baby bumps at 13 weeks and asked you on there what you where getting done about your dermoid cyst? I have 4cm one and want to know if I need to get it removed.

I am 13 weeks pregnant with dc no2 both concieved instantly so hopefully these things have no effect on fertility

Millie26 · 11/09/2008 20:16

Hey! Sorry lilymoly, I lose track of all the threads!

They have left my dermoid and said they arent going to anything with it as it's 3cm and they would only do something if it was over 5cm I think.

They only remove it if its big because when we are proper big pregnant ladies all our insides get shoved around and the dermoid can twist and be really painful.

Obviously my consultant isnt bothered about that!

lilymolly · 11/09/2008 22:14

oh thanks
thought you had disappeared!!
I have an apt with consultant gynae at my 20 week scan just to review cyst situation- so will wait and see, but to be honest I think I would rather it where removed post natally.
Mine is 4cm- causing no pain but still dont want it there

NKffffffffaa17fab5X11c55f7e5b5 · 12/09/2008 11:01

Hey everyone. I too was freaked out when I first found out I had a dermoid. I waited for a year hoping that maybe the size would be reduced, but instead it got bigger and the doctor found that it was on both sides. One was almost 9 inch and other was 6.5. I am only 5'1, 100 pounds so naturally, i was a little freaked out. fortuntely, there was no pain at all, just light periods.
A week ago, I had it removed and the process was not as bad as i thought. Both my ovaries were left in tact. i went home the same day, loaded up on the pain killrs and by day 2, i was feeling fine without needing the pain killers and was able to walk. this was partially because i had laproscoptic surgery and I am a healthy young woman. When i first discovered i had a dermoid, the doc said, i might have both ovaries taken out, hed cut a 4 inch incision on my abdomen and likely that i wont be able to have kids. i was very very uncomfortable with that doc and so i went to another one... he reassured me that these procedures are common and that it is a minor surgery with a slight possibility of difficulties which result in taking out the ovary(s). I asked him about scarring because I dont want a big incision and he told me it would be small cuts and thru the belly button. i felt comfortable with this doctor and felt a good vibe from him. sometims,if u dont bond or feel good with a surgeon, its best to see several and ask lots of questions to ensure u chose the best. Most of these types of surgeries are not that difficult as opposed to other surgeries but depends on the dexterity of the surgeon. I personally would go with an older surgeon as opposed to a younger one just cuz they have more experience.
dont worry ladies.. there are always solutions to everything.

Jester2 · 16/09/2008 15:15

Just to give you a white lining to your story. I was twelve years old when I was first diagnosed with an ovarian dermoid cyst accompanied by torsion. It was already the size of a grapefruit and I had to have an emergency draining to prevent rupturing. It was removed a month after, but I've had chronic adominal pain since then. In 2004, in my early twenties, I had a laparotomy and discovered endometriosis in abnormal places and severe adhesions. My left ovary and tube was soon removed then after as well. As long as you have one ovary, childbearing is still possible but my chances of fertility was very low due to the endometriosis and history. Today, I am 29 years old and have a beautiful and very healthy baby boy. Pregnancy was very difficult and I continue to experience chronic pain, but.....he is my light, my little miracle baby. My advice to you, is always get a second opinion and make sure that your specialist is up to date on the latest procedures. Do your own homework too! Take care of yourself, recovery is key!

poorbuthappy · 16/09/2008 15:26

My cyst was found at my 20 week scan 4 years ago, they didn't want to take it out then, so informed me I would be having a c-section and cyst removal at the same time...
DD came of her own accord 3 days prior to booked c-section.
Cyst removed 6 momths later - size of a watermelon...lost my right ovary and fallopian tube.

Now 24 weeks pregnant with ID twin girls - took 6 months to conceive (but I think that was more to do with me ovulating early/later than day 14 and it taking me 5 months to work it out!!)

Just another sucess story for live after cysts!!!!!

chyna929 · 21/09/2008 22:17

Hi All, sorry I have not been on here just a little dissappointed. I went on Sept 9 to have the lyproscopic, and the doctor could not do it, because the cyst had grown and wrapped around my organs. The doctor said my organs was wrapped up together and if he had tried to cut it out I might hemoriaged. Now I am scheduled to have laproscopic on Sept 23, and will take 6-8 weeks to heal. I am very nervious about the surgery and pain afterwards. Also, I am concerned with my ovaries. The DR said this is the best way to get it out....[hmmm]

smileycat · 22/09/2008 11:37

I had a large 15cm cyst removed in April this year. I had pains in my lower abdomin for about 3 weeks and just thought it was waterworks trouble, I went to the docs to get some pills to clear it up and 3 doctors and 2 scans later discovered I had this cyst, most cysts grow and sit in behind your womb, mine sat on top of by bladder and caused pain similar to a bladder infection. This was on the Fri and I was booked in for the op on Tues, they did a c-section as they wanted to removed both the ovary & tube and were worried it was cancerous...it wasn't. I went back for a scan 3 months later as they said there were 2 small cysts on my other ovary, when they checked there were now 6, but no bigger than 1cm each. The doc didn't seem to be worried as she said this was a good sign that my other ovary was working overtime to compensate and she would be more worried if there wasn't any. We already have a 10 year old son and last week we decided to try for number 2, I've been so worried thinking that my chances of concieving would be down to half with only one ovary or less with the other 6 cysts but after reading through your comments I am happy to see many of you have become pregnant with cysts already there, I am going to keep trying and hope for a good result soon, fingers crossed.

Flumpity · 23/09/2008 15:21

great thread, glad to see not alone. i have dermoid cyst diagnosed when we were undergoing ivf, was 1cm and they said to just leave it be as small, not causing any symptoms or problems. (now have 16 month old beautiful daughter). interesting to see that the surgery if it grows isn't too bad. similar to zwiggy's post they said better to leave it be unless it got really big, over 5cm and caused any symptoms. was really really freaked when first diagnosed on a routine scan as part of the ivf.