Immune/NK cells - pred thread 29

[StillTrying10000]

Starting a new thread as the last was full.

I managed to get hold of one of the nurses just before they closed. She said she's talking to the doctor on Monday as he's there. There's a really tiny chance he might get me in on Wednesday, which would be massively awkward and I'd probably have to stay in a hotel. But she said it's probably not likely. Friday 6th is also a possibility. Otherwise it'll be after 16th May 😢 but it didn't fill me with confidence as she said the anesthetists only tend to confirm a few days ahead. So I'm just thinking it'll never happen.
She also said they wouldn't do it without sedation, she said I wouldn't be able to tolerate it as he'll likely need to remove tissue and its too much with no anesthetic.
I'm having a big glass of wine tonight. Fuck it.

That's good advice @MyEasterEggs I'm struggling a lot. I'm scared about what they'll find when they get in there. It's just on my mind constantly. X

Thank god its the weekend. Happy Saturday ladies.

@StillTrying10000
Good to know you are with the clinic and had good experience so far. Thanks for the recommendation on that website, I feel so overwhelmed by it all!
Fingers crossed for your transfer 🤞

@MyEasterEggs
Thanks for sharing your partners plan, it's so specific! Amazing they can work these thing out! OH has an appointment to have another follow up to discuss anything else he can do to improve.
Sorry you're feeling down, don't be hard on yourself. Enjoy the weekend and get back to it next week if you're up to it. (hanger is the WORST!)

@myrainbowjourney

Whenever you do go for the testing, hopefully the results show no issue and you can rule it out OK.

@VenusStarr
I am so sorry to hear your apt has been cancelled. That's v unlucky. It's very hard when you've built yourself up to it. Completely understand the feeling of panic and being overwhelmed. It's hard when it feels like one thing wrong after another. appreciate the worry on what they will find but hopefully you will find out what's going on and they can help correct any issues. If you have your apt on the 6th we will be surgery buddies. (Not something I ever thought I'd be saying online! 😂) Definitely have that glass of wine! I will be xx

@89Hope and @VenusStarr are you both having the endometrio as part of your hysteroscopy? What about uterine NK cell testing? I'm concerned about what they'll find too, but also trying to see it as information gathering, and there’s treatment for the likes of endometritis. I think I’ll feel much safer knowing I’ve done everything I can to uncover potential issues, but it’s still so nerve wracking. I was reading earlier that it’s best if you’ve not had antibiotics in the three months prior to the endometrio and there I was taking them last week. Obviously it was necessary but I’m now wondering if it's created another obstacle. I forgot about all the waiting and wondering and how never ending it feels. But I also try to imagine that with every hurdle that’s overcome, I’m one step closer to getting to the other side of this xx

Oh my god, just had the best phonecall! It's back on. We need to be at the clinic for 6.15am on Friday, Geri secured an anesthetist. I nearly cried. We'll have to set off at about 3am, but it's happening.

Sorry we won't be op buddies @89Hope 😂

@MyEasterEggs i had the Endometrio tests last summer before my FET and all was ok. But I am going to ask he checks for inflammation as I am paranoid that this miscarriage may have affected things. I'm not sure if he prescribes antibiotics as standard anyway.
When I did my endometrio, it is on the form have you had antibiotics within 3 months, so it might be worth checking before you start your mock cycle. I had to mimic everything I would do in a FET, including all my immune meds. So I had a weirdly short cycle because as soon as I stopped the progynova I came on. Xx

@VenusStarr

great news, so happy you're getting it this week.

@MyEasterEggs
My procedure is Laparoscopy to remove two cysts that have formed. Another £5k down the drain but its either that or risk losing an ovary if the cysts twist it.

That’s brilliant news @VenusStarr! I’m so happy someone took control. Can’t beat having a kick ass nurse in your corner xx

@89Hope I’m glad it’s something that can be treated but I can imagine that was a bit of a blow. It’s just cost after cost xx

@VenusStarr I'm so happy you are back on for Friday! What a relief. Hope you enjoyed your wine!

Hope you all had lovely weekends. I have been trying to send this message on the app since yesterday but it won’t let me post. So I’ve come back the old fashioned way and logged on online! How is everyone?

I'm impatiently waiting for my peak OPK. Forgot what this is like. Miss the days of being told when to do the deed! Now I’m having to guess and we will probably wear ourselves out by the time I get a peak. Or I won’t ovulate. Maybe my body has forgotten how to do it alone? Quite nice to feel a bit more like a normal TTC person 😂 until I get another negative!

I'm so so pleased your appointment is back on @VenusStarr! The 3am start sounds horrendous but hopefully it will all be worth it.

I'm just a few days behind you I think @myrainbowjourney, I'll be starting to use my OPKs in a few days time. I simultaneously hate and love all the tracking 🤓

@Sezmarelda1 how are you getting on. I think I got my peak last night/this morning. Now I just need to trust I actually ovulate.

Feels weird going back to this. Somehow feels less pressure.

How is everyone? xx

Hi all, I'm hoping I can join you. I had 3 recurrent miscarriages last year and was diagnosed with high NK cells. I'm now on Dr s plan of taking progesterone, prednisolone and omeprazole from ovulation. This is my 3rd cycle and I usually always get my LH surge on day 13. I'm now day 16 and still nothing and my bbt hasn't risen. Since being on the programme my cycles are now 26 days and always used to be 28. Has anyone experienced this? Usually I'm so regular and manage to get pregnant easily (although never a healthy pregnancy) but it seems since being on treatment everything has gone a bit weird. I've called the clinic but waiting for a call back and feel I'm going a little mad. Any advice would be appreciated. Thanks all x

@myrainbowjourney are you tracking basal body temp or anything to confirm ovulation? Or just trusting your body that it has happened? I had a negative OPK today, I think it's likely to be another 4-6 days for me. Interesting that you feel this approach seems less pressure. I like tracking but it gets annoying after a while, especially the BBT part.

Welcome @Freybae , but sorry you find yourself here. I'm not under the care of Dr S but hopefully someone else who is on a similar programme can answer your question. Whilst on no meds I've had the odd cycle where ovulation has happened later than usual so I've had a late BBT rise. I also picked up one cycle with no temperature rise, which I think must have been an anovulatory cycle. Everyone is different but some variation of these kinds can be normal. If it's just this cycle then I'd keep tracking your BBT for now in the hope that ovulation is just a bit later than usual, but it'll be interesting to see what the clinic say especially if it's happening repeatedly since starting the programme.

Thank you for your reply @sezmarelda1, it means a lot and although I wish none of us were here it's nice to find a group of people that understand. This has never happened to me before or at least not that I've been aware of so I'm thinking the worst and feel like I'll never ovulate again which I know is totally ridiculous! It also feels unfair that I may not have a chance this month if I don't ovulate. This journey is tough!

@Sezmarelda1 I am tracking BBT. I have an Ava bracelet so it's not particularly stressful - except the strap is about to break so at some point I'll be none the wiser. I can't guarantee waking up at the same time every morning to take my temp, so this was the best option for me.
I did get a little rise this morning, I'm tempted to stop temping otherwise I'll get panicky if I don't see it go up more, but then I also want to understand what is happening.
I think with the pressure part, I mean more that when on super ov, I feel like everything has been lined up perfectly so surely it has to work. With this, I feel less like it should happen, purely because I have done X, Y, Z. I don't know if that makes sense. Super ov is obviously good for (hopefully) knowing you have ovulated and that's done, but I think I will feel less like my body is failing me if this cycle isn't successful than when on the plan.

I am waffling.

@Freybae welcome to the thread and sorry to hear of your journey so far. I can't really help on the cycles as I did super ovulation from the start which always shortened my previously long cycles. And they would tell me when I would ovulate. It seems strange your cycles would be longer because you aren't on any meds leading up to ovulation, but I don't know what the impact could be of taking them at any point. It could just be a random cycle like @Sezmarelda1 said. But if you are usually clockwork then I really hope the clinic have some answers for you.
It isn't ridiculous to worry about things though, this journey certainly makes you think an awful lot of negative emotions. I feel cheated if I don't ovulate from my left ovary, so I know what it feels like to think you don't have a chance and it feels a waste. I hope you are just creating a lovely juicy egg 😍

I can really relate to that @Freybae. This is a very tough journey, and one where you need bucket loads of hope and patience and courage to keep yourself going.

I've been tempted to get an Ava bracelet in the past @myrainbowjourney but they are so expensive! I struggle with my sleep though and I don't think waking up to take my temperature each morning helps. I usually just take it at a random time when I wake in the night (usually sometime between 1.30am-4am) but then I often find that my mind starts racing with anxious thoughts and I struggle to get back to sleep. Then that makes me tired, which makes my anxiety worse, and it's a vicious cycle...fingers crossed that you do get your temperature rise this cycle, I too like to understand what's happening and it also helps me to know when to do a pregnancy test (and equally when it's too early to test) and when to give up hope for the cycle and expect AF. You just have to do what feels right for you I think x

@Freybae sorry you find yourself here, but welcome!
I had an odd cycle this month too. I think sometimes it can just happen. I was suspicious though as it's my first month taking supplements from Dr S and a thyroid medication that i'm not convinced i need. I haven't started the steroids yet, due to start them soon on the super ov programme. Keep us posted what the clinic says as i also worry so many drugs may interfere with things. I got pregnant previously the first time of trying (twice) so i know i will feel skeptical if it takes a while now. I did have an ectopic pregnancy in January though and now have 1 tube which may delay things and could also be the cause of my strange cycles. xxx

Good luck tomorrow @VenusStarr I'll be thinking of you up bright and early. Let us know how it goes xxx

Thank you @StillTrying10000 I've been so anxious all week, I'm looking forward to being knocked out for a rest! I'll let you know how it goes.
How are you? Xx

@myrainbowjourney thank you for the welcome. I hope you were right on the juicy egg front as I ended up getting my peak this am, 5 days later than usual but pleased my body is trying! Isn't it just @sezmarelda1? I am so pleased I have found this thread though! It really feels like I'm finally with other women that completely understand. I really get fed up with people trying to give their advice when they haven't been through it. @tgrf55 again, thank you for the welcome. I'm definitely feeling sceptical as I usually fall easily and have never had irregular cycles, however, I try to tell myself that it's better it takes longer and I have a healthy pregnancy than quick and I end up having another loss. The clinic didn't seem worried but said if I don't ovulate and if it happens 2 cycles in a row they would need to scan me to check the ovaries and to ensure there is a dominant follicle growing and assess the lining and anatomy of the womb. I'm sorry to hear about your ectopic pregnancy. Sending love and well wishes for your journey with Dr S. Xx

Enjoy your rest @VenusStarr. That’s such a good way of looking at it. I hope it goes smoothly and reassures you 💛

How is everyone else? And your OHs? I know some of the hubbies and partners are having tests and hope they prove helpful.

We had some good news today. Of the seven embryos we had tested three were normal 🥹 so that’s given me a lot of hope for the future and trust in the clinic. Still a long journey ahead but I feel relief today and that’s something. Now I just need to put an end to this Easter blow out 😅 which has been ongoing since I had my egg collection! Back on egg and sperm salad!

Hoping my next consultation (due in two weeks) can be brought forward so we can make a plan for immune testing and book in my endometrio xx

@Freybae welcome 👋🏻 I’m quite new to the thread too and don’t know much about Dr S plans or protocols yet. I haven’t had immune testing since 2018 (Chicago back then) but considering repeating with Dr S in the next month or so. Just waiting to chat with my clinic and make sure they’re going to support me if I get immunes done elsewhere.

I’m just a bit unsure about Chicago. Did any of you have those tests or have you always been with Dr S? Interested to know xx

Thanks @myeastereggs 😊 great news about your embryos. I've only ever been tested with Dr S so can't really comment. What I will say about Dr S is last time I was in clinic it was FULL of pregnant women which gave me lots of hope. 🤞

Hey! Just coming on to say I had good news, for once :) my hysteroscopy was all clear, no scarring, adhesions, polyps or fibroids. He said my uterus was looking really good 😍 😂 we've been given the go ahead to try next cycle, but think it's too late for a FET, so will plan for June... May ttc on our own though.

@MyEasterEggs that's fab news about your embabies 🥰 I'm really pleased for you.

Sorry to not do a proper message, we've just got home and I'm going to bed to catch up on some sleep. Hope you're all doing well xx

Thats such good news @VenusStarr, especially after all you’ve been through to get to the procedure! Bonus points for having an attractive uterus 😉💛

And thank you ladies. Cried happy tears when I got the call as it made the months of focus on nutrition and supplements (plus a month away from home to go through IVF) worth it. It’s taken me two years of working on my mental health to feel ready to take this step so I’m celebrating that. Date night tonight then back on prep tomorrow as time to change my supplements up again with focus being on pregnancy now. Won’t lie. I’m scared!

@Freybae I'm glad you got your peak! Really hope it's a lucky cycle for you 🤞🏼

I haven't seen obviously pregnant women in the clinic but have been aware of some there for scans etc. I hope we will all be one of those soon!

@MyEasterEggs ooh I'm so happy to read your update about your test results. That's amazing news! Those perfect little embabies just waiting for you 🥰

Sperm salad sounding as appealing as ever. What's in it again?

All fine here, I've ovulated (I hope) so now in the dreaded TWW. I'm away next week so that's going to help the time go quickly. I really need to get into some good nutrition, feel like I'm failing myself. It's hard though.

What are your date night plans? And don't be scared, be excited!!! It's so close now!

@VenusStarr this is wonderful news, I'm so happy for you! I hope you are feeling better now and get some good sleep now it's all done. Fingers crossed for your natural cycle in May but exciting that your FET is just around the corner

Hope you are all doing well and have nice bank holiday weekend plans xxx

Good luck @Freybae @myrainbowjourney!

Egg and sperm salad recipe incoming 😋

www.wellbeingsisters.com/mels-signature-egg-and-sperm-salad/

I eat it once a day with falafel, chicken, fish, whatever I fancy really! Can’t say I’ve eaten it much in the last two weeks but going to refocus from tomorrow.

Date night didn’t happen as we’re old and tired 😅 so OH picked up takeout from our favourite Indian restaurant! Yum!