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Pregnant again after 3 miscarriages

30 replies

Sarahsammy · 17/11/2021 12:20

I’m 40 and had never managed to conceive before this year. Unfortunately, I’ve had nothing but heartache, losing each one in early miscarriages, 3 since January 2021. The longest I managed to carry for was 8 weeks, but only as it a missed miscarriage.
I just found out yesterday that we’re pregnant again, and I am absolutely terrified of miscarriage happening again.
I’ve been given cyclogest which I started last night and I’m waiting for the nurse to let me know if I need to use aspirin or anything.

I just wanted to share the news with people really who might understand my feelings, I have a real sense of dread with underlying excitement that we’re pregnant but the sheer terror and fear that I shouldn’t get excited.

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Pengiundisco · 17/11/2021 21:03

Hi @Sarahsammy. Congratulations on your pregnancy! I was in your position a few years ago with three miscarriages in a row. It was a horribly anxious time and I know the emotions you are going through.

I was referred to the NHS recurrent miscarriage team but nothing showed up in the tests so it was put down to bad luck. However they told me to take aspirin (75mg) and cyclogest in all future pregnancies. I did, and the next one stuck and is now a tractor mad toddler Smile.

I've just found out I'm pregnant again today and immediately all the worries are returning. Last time I couldn't relax until 12 weeks so I think I'm going to have to just keep myself distracted and my fingers crossed. I'll probably pay for a private scan at 7 weeks (maybe even 6 weeks, I'll be desperate to know).

I really hope it works out for you.

Sarahsammy · 18/11/2021 12:37

Thank u @Pengiundisco, it’s nice to know that there are people who understand. Congratulations on ur pregnancy, I really wish u the best with it

I think it’s really hard for friends and family to totally understand how scary it is for me right now.
Every time I go to bathroom I expect to see blood and I just can’t look forward to it being ok as that isn’t my experience. I’m just expecting bad news and then worry that I’m going to make a miscarriage happen by worrying so much!

Somehow I need to try and forget about it for a few weeks so they don’t drag by but that’s easier said than done! It’s in the front of my mind the whole time

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whosaidtha · 18/11/2021 12:42

I took aspirin in my third pregnancy after two miscarriages. I'm now 22weeks. Dr actually advised against it but i Ignored her. Not suggesting you do the same but it may or may not be the reason this pregnancy has progressed better than my others.

Smiler79 · 18/11/2021 18:33

I totally understand. I’ve had 3 mmc late first trimester and a chemical. When I got my last positive I wasn’t even excited just meh it will end . Bfp = heartache.
I did a big immune protocol this time though and other meds. 75mg baby aspirin, clexane, progesterone, prednisone. I think the prednisone made the difference for me as took all rest before. Wishing you success this time. Take one day at a time. I found not looking at scan until 12 weeks really helped me 💐

Doodledeedum · 18/11/2021 19:42

@Smiler79 can I ask how you got ahold of the everything apart from aspirin? Thank you 🙏🏼

Jlcw · 18/11/2021 20:08

@Sarahsammy
So sorry for your loses. I am also 40 years old & ttc after a 15 year break (3 older kids from my 1st marriage).
Anyways, I feel your dread and pain. I have had 2 chemicals recently. Scared to keep trying. I recently started taking a daily low dose aspirin. Not sure it will help, but doctor approved the idea and the research is positive. Good luck to you and your ttc journey.

Sarahsammy · 18/11/2021 20:19

Thank u all for ur kind messages.
@Smiler79 and @Jlcw I’m so sorry to hear about ur losses, fingers crossed for good news for both of u Flowers

I’ve spoken to recurrent miscarriage today and they confirmed all my bloods were normal so to just carry on with the cyclogest. They didn’t suggest aspirin as the blood tests didn’t indicate it.
I don’t know whether to take it anyway, I’m so undecided. I’m really scared that whatever I do will be the wrong decision and I’ll miscarry again.

I so wish someone could just tell me that it’s definitely all going to be ok but I know that’s not possible, the uncertainty makes me even more anxious.

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Smiler79 · 18/11/2021 20:33

@Doodledeedum I went to dr gorgy in London , he tested my immunes and saw I had high killer cells and prescribed me the medication

Smiler79 · 18/11/2021 20:35

I don’t think aspirin can do any harm, unless someone says otherwise. Every clinic has prescribed it to me and I haven’t got a clotting issue

Doodledeedum · 18/11/2021 20:41

@Smiler79 thank u 🙏🏼

whosaidtha · 19/11/2021 12:30

I don't think aspirin will do any harm. I was prescribed it from 12weeks anyway. And 75mg is such a small amount. It's up to you. Good luck.

Sarahsammy · 24/11/2021 17:49

Thanks all for the comments.

At the moment I don’t know if I’m about to miscarry again. My boobs are no longer sore and I have a very very small amount of light brown discharge which is getting heavier and redder, it’s depressingly familiar Sad

I’m only 5 weeks so no scan is possible but early pregnancy have booked me for a scan at 8 weeks and told me to call if any happens in between

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Pengiundisco · 24/11/2021 21:11

I'm sorry to hear that @Sarahsammy, it is so awful when you start to bleed and don't know what's going to happen. It the blood getting heavier still? Cyclogest can make your cervix sensitive and prone to bleeding I was told - I bled several times during my successful pregnancy so it's not always a miscarriage. But I know the sadness you must be feeling right now, and am thinking of you Flowers

Sarahsammy · 25/11/2021 05:15

@Pengiundisco it’s very heavy now and dark red, it’s hard to feel hopeful at all having been here 3 times already.

I’m going to call EPU when they open. I don’t know if they can do anything to check what’s happening, tho perhaps a blood test. I just feel so broken, I really believed it would be ok this time as I thought the cyclogest would help so much

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Daffodil21 · 25/11/2021 05:32

Hi @Sarahsammy, I had 3 miscarriages and like @Smiler79 I took cyclogest and prednisolone for my fourth and successful pregnancy. I've just read your update and I'm sorry to hear you're bleeding again. I had heavy bright red bleeding in my successful pregnancy and the consultant said it could be from the cyclogest irritating my cervix. You can take it through the back if you prefer to prevent this. I'm not convinced it was the cyclogest personally as it was such a heavy amount in a short space of time. I don't know what it was but it was ok in the end and I now have a healthy 3 month old boy.

I really hope the bleeding isn't anything to worry about. If the worst happens I would recommend reading 'it starts with the egg' by Rebecca Fett and 'is your body baby friendly' by dr beer, which talks about immune issues as mentioned by PP. There are private doctors who specialise in this. you won't get tests for this on the NHS but you might get treatment (prednisolone) prescribed. The two main private doctors who specialise in this are Dr Quenby and Dr Sheheta, but of course tests are a bit pricey. I didn't have any of these tests done and instead took a punt, went to a different private clinic who do online appointments, got the medication I believed I needed and thankfully it was successful.

No one can know how shit this in unless they've gone through it. It is really really shit and I really feel for you. Feel free to PM if you want to know anymore info on the above, and sorry if I've told you things you already know. I hope you manage to get a scan and some reassurance soon x

Daffodil21 · 25/11/2021 05:34

Sorry also just seen too soon for a scan. I would definitely ask for hcg bloods 48 hours apart. I did this in the early scan for my last miscarriage and my successful pregnancy and the results told me all I needed to know for both.

CatNamedEaster · 25/11/2021 05:46

Have you all seen the news that came out yesterday about NICE guidelines 're women who have has miscarriage and are pregnant and experiencing bleeding? You should be able to ring your GP and demand to be put on progesterone.

It's estimated that this will save around 8k babies per year. There was a doctor on tv saying that you might have to argue it as the guidelines have only just come out but that every woman who is experiencing bleeding and has had a miscarriage should be given it up to around 16 weeks I think.

Hope everything turns out ok for you.

RainbowBabyForChristmasPlease · 25/11/2021 06:07

@CatNamedEaster

Have you all seen the news that came out yesterday about NICE guidelines 're women who have has miscarriage and are pregnant and experiencing bleeding? You should be able to ring your GP and demand to be put on progesterone.

It's estimated that this will save around 8k babies per year. There was a doctor on tv saying that you might have to argue it as the guidelines have only just come out but that every woman who is experiencing bleeding and has had a miscarriage should be given it up to around 16 weeks I think.

Hope everything turns out ok for you.

I thought they said it would only be given if a fetal heartbeat was detected first.
Sarahsammy · 25/11/2021 07:35

I’ve just passed a big bit of tissue so I think that’s probably it.

Should I take it to EPU does anyone know? This is my 4th miscarriage in a row, in one year. I am broken

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Daffodil21 · 25/11/2021 08:18

@Sarahsammy yes absolutely take it first genetic testing. Maybe keep it in the fridge for a little while in case more comes out. Make sure you tell them it's your fourth pregnancy and it needs to be karyotyped. They messed this up for me even though we filled out forms etc so only histiogical testing was done. I see you've sent me a PM - I'm sorry I haven't read it yet but I will soon. Just wanted to quickly come on and say yes do make sure you take anything you pass for testing. I'm sorry this is happening to you Thanks x

Daffodil21 · 25/11/2021 08:19

Phone them first and let them know you're taking it/ask where to take it. We could have taken it directly to the hospital that does the testing or we could have taken it to our local one and they transport it. If we had gone directly to the main hospital the testing would have been done properly as it was an admin error, but hopefully yours are more competent!

Sarahsammy · 25/11/2021 10:53

Been up to the hospital, they’re sending it off today. Just got to wait to see if there’s any answers this time

Thanks to everyone for the kind messages and support xx

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Pengiundisco · 25/11/2021 11:10

I'm so sorry @Sarahsammy. Glad you can get it tested, my third miscarriage was sent for testing (had an ERPC) and it was found to be chromosomal. Which is a good outcome I suppose to know there was a reason for the miscarriage.

I know how heartbroken you must feel. To be pregnant 4 times in a year shows you can get pregnant fairly easily, so that's a positive to cling to. My partner and I completely threw ourselves into improving embryo quality with vitamins and lifestyle changes (I read it starts with the egg and spent a lot of money on ubiquinol) and alongside the aspirin and cyclogest it seemed to work.

Did they say when you will hear the results?

CatNamedEaster · 25/11/2021 11:12

RainbowBaby apologies I didn't see that part of the report.

Sarahsammy · 26/11/2021 07:31

@Pengiundisco she said it can take a few months to hear back atm (covid delays apparently).
I’m seeing the recurrent miscarriage team here in December and have what I think is a scan in January so I’m hoping that we might have some results or answers then.

I’m completely devastated really. I’d managed to convince myself that it would be ok because we had the cyclogest and was convinced that was the answer.

I’m getting scared that it’ll be some awful genetic problem and I won’t be able to carry a pregnancy or that my partner and I are genetically incompatible, both of which seem impossible to fix in my mind.

Apparently I have quite good egg reserves for my age. I paid for that to be tested to set my mind at ease that I wasn’t going to suddenly start menopause but they can’t tell the quality of them.

So far I feel that there’s no answers, just more questions and actually very little support from my doctors which is disappointing. I know they’re under pressure etc but I just feel like they don’t consider how important this is (to me) and how desperate I feel. But then why would they I guess when they’ve got tons of other people in the same situation

Sorry that was long and rambling, I think I needed to empty my head of some thoughts ha ha

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