Immune/NK cells - pred thread 28

[myrainbowjourney]

Hi Ladies

New thread 🥰

If you comment to hold your place. I'll try and tag as many as I can xxx

@treesall I see. I'm so sorry you're in the horrible waiting period, it's just shit isn't it. I often wonder what it must be like to get a positive and then just be able to plan for a baby 8 months later without any kind of worry!

I'm desperately hoping that this works out for you. Thinking of you xx

@treesall I hope your instincts are proven wrong and you get a nice surprise at the scan. I have a lot of friends who had lots of strong symptoms early on in a successful pregnancy and then absolutely no symptoms for the first few weeks in the next (also successful) pregnancy.

Hi everyone!

Just catching up on the new thread. I too a break while I was on holiday. It was great to get away but I’ve come back to the reality of no job (although completely for the best) and this journey which I actually thought about giving up on while I was away. The IVF clinic didn’t call me back so I’ll have to chase them tomorrow and I ended up arguing with my husband because he seems to be putting zero effort into things.

Sorry for the downbeat post. It didn’t help that while I was away I had a really light period which was later than normal and I convinced myself I may be pregnant. I never learn!

@ginandoreos your hollyoaks secret is safe with me! 🤫🤣 Honestly I just feel like I can only watch rubbish at the moment as I can't concentrate on anything else? I was absolutely howling at the bin-lid nipples 🤣🤣 we used to call them digestive biscuit nipples haha! Thank god I have you girls to keep me laughing through all this!

@treesall I know all too well that horrible feeling you are talking about....my only successful pregnancy seemed to be full on symptoms the whole time and I had no concerns, but I have also had mmc's where I thought everything was going well and they went wrong too?! Its an absolute mind feck and all this waiting is just so draining. Thinking of you 💕

@Lozfish I've had miscarriages that dragged on for months....kept getting asked back for more scans (even though they knew the pregnancy was gone) every time I went back for a scan there was a change in the size and they said they couldn't book me in for a MVA and I ended up having my miscarriages at home when I would rather it was just dealt with at the time? They said it was following guidelines, I thought it made a stressful experience far more traumatic than it needed to be? Sorry youve had such a bad experience too 😘

Well i thought it was game over for me yesterday, I was having red spotting and the most horrendous cramps all afternoon and last night. I actually left a wad of tissue by the bed as I was convinced it would be over through the night. But I have gotten up today and there is only a tiny bit of spotting (almost gone this evening), still some mild cramps but it seems to have settled a bit? My nerves are shot to pieces, I just want to get to this blood test and see what it says, cant take much more of this!! Xxx

Just catching up on all your posts ladies. The more I read the more I’m reminded of how brutal and heartbreaking and nerve wrecking this is on every one of us. It’s just hell isn’t it. All the waiting and guessing and hoping. And then you go on Instagram or FB and there’s a mama with two in her arms and a bump. It’s soo hard! So grateful for this group. Sending hugs and strength to everyone! Xx

@Lozfish good luck with your hysteroscopy tomorrow. I hope you get good news from it.

I've prodded and poked my boobs so many times in the last few days to test if they are at all tender that i can't remember what they normally feel like if I poke them. I think I've gone mad!

Hi ladies, just wanted to see how you all are ❤️.

@treesall I've been thinking of you as I know you have your scan tomorrow, really really hope it all goes well. My next one is late on Tuesday afternoon (it will be a long day!) and I just have no idea how it's going to go. Whenever I start to imagine positive outcomes I quickly have to shut it down for fear of letting myself get excited 🙄. Anyway, will be hoping to hear that everything has gone well for you ❤️❤️🤞🏼.

@Luckyducky2 how are you doing? I'm sorry about your scare, are you still getting cramps/spotting? I really hope things have settled now. After everything, it's so unfair to still have to face these moments of fear/panic. Hope you are okay. Hope the trash tv is able to distract you a little bit... 😏.

@Badlydrawngirly I really hope you were able to enjoy your time away and that you've been able to get in contact with the clinic. Don't apologise for feeling low, the emotions tied up in all of this are exhausting and unfair. Hope you're okay xx

@NImama, @Lozfish @HollyLucky and everyone else ❤️, sending love and hope you are all doing okay. Xxx

Hi @ginandoreos thankfully the cramps and spotting settled down (was scarey at the time!). I've just got my blood test results back and they confirmed we are pregnant, hcg was 254 so hoping that's quite good?! I burst into tears when the nurse called, its been such a long wait for this, just have to pray everything is in the right place as I've had an ivf ectopic/PUL before, but I'm trying to just push that worry aside for now and enjoy the good news. Too much to sort out with getting flights etc sorted down to London for the next intralipids. Just need to try stay busy and hopefully get to the scan quickly (I just can't think that far at the mo! 🤪). How are you doing? Xxx

@Badlydrawngirly sorry I just saw your post there, I hope your break away did you good. I think its totally natural to have up and down days after what you've been through, look after yourself! And yes the ivf clinics seem to be heaving at the moment, i had to wait 3 months to get my frozen embryo transfer, everything seems to take an eternity 🙄 I would defo chase them up!

Hope everyone else is doing okay xxx

Thanks great news @Luckyducky2!!! Wow though, I don't envy you having to organise the logistics of getting down for intralipids! When will that be? That reminds me of just how lucky I am to live 20 mins from Epsom.

Thank you @ginandoreos. I'm going between total despair one minute because I'm sure it's all over to desperate hope for a miracle the next.

@treesall oof it's a nightmare logistics wise, especially when the nurses don't get back to you!! 🙄 Will need to get on the phone first thing in the morning to try sort out an appointment as all the flights are booking up fast!

Good luck for tomorrow, I will be thinking about you ❤ xxx

@Luckyducky2 Amazing news !!! First step done. Which country do you need to fly from? Do you think there are perhaps clinics in your town that would administer intralipid infusions?
@treesall Fingers crossed for you for tomorrow.

@Luckyducky2 congratulations! That's great news

@treesall I'm thinking of you ahead of tomorrow, I have everything crossed.

I had my hysteroscopy today and it was unbelievably painful, I wasn't expecting it at all, felt like a total wimp! He found a couple of small adhesions so I need to go back for yet another procedure which will be my fourth just to clear out one miscarriage. Really hoping we get the all clear to try again soon.

Lots of love to everyone x

Oh @Lozfish I'm sorry it was so painful! That sucks that they have found adhesions and you need more procedures before you're clear to try again, BUT it's better they find it now than have them cause further problems when you're pregnant again. I can only imagine how frustrating it is though x

Thankyou @HollyLucky and @Lozfish, first step over with, sitting here this evening and still can't quite believe it, I don't think I want to let myself get attached? I actually can get intralipids at our ivf clinic in Glasgow but Dr Shehata has said no and that I need to attend for them at his clinic 🙄 ridiculous when it's going to cost me another £200 odd for flights down plus taxis/trains on top of the intralipids and meds....but what can you do?? Would they actually turn me away? I wouldn't have enough medication to see me through so I'll need to just plod on with the plan and get the credit card ready!!!! 💸🙈

@Lozfish I hope you are resting up (with a large glass of vino!), what a crappy day for you but hopefully that is this horrible chapter nearly finished? And you can move on to trying again when you feel ready. I know all too well how utterly draining it all is, you're a trooper, sending big hugs xxx

@Lozfish I’m so sorry to hear it was so painful, hopefully they gave you some sort of painkiller before hand! You are not a wimp, I would have probably cried !! Hang in there, almost done 🙏🏼 Hope you are taking it easy today.

@Luckyducky2 That all sounds so crazy, I wonder why the intralipids cannot be administered at other clinics for patients living abroad ! I hope you are managing to sort out flights this morning xx

@HollyLucky oh I'm not abroad, just up in Glasgow but I can't drive down next week as our car is getting fixed so has to be flights.

Honestly trying to get a hold of anyone in that clinic is a nightmare, I've called 12 times this morning and emailed 4 times between today and yesterday and just keep going through to answerphone! 🙄 it's worse than trying to get through to your GP!! 🤣 Got to say my stress levels are getting fairly high as there's not many seats left on the flights either.....aah!

@Luckyducky2 I find that as well! I think because they only have the one girl on reception and she's having to deal with all the patients who are actually there... when you think he does back to back half hour appointments, that's a lot of people in and out who need to pay etc... Really hope you get through soon, and I think if you really need to, just get the intralipids locally. I cannot see how there is a difference to be completely honest, and if you can't get through then you are not being left with much choice. Has your local IVF clinic said that it's the same thing? x

@Lozfish @Luckyducky2 Exactly, it’s the same as saying you cannot buy your Pred and Hydroxy in Glasgow. Surely it’s the same medicine? If it helps, I checked the leaflet I was given, it says 100ml bag of 20% intralipid in case you end up without a seat on the flight and needing to check with your IVF clinic xx

Morning ladies. Just back from my scan at CRP. It's not really good or bad news, kinda inconclusive. we saw an embryo measuring the right size (one day behind but I think that's ok) and saw and heard the heartbeat. BUT the heartbeat is slower than it should be which the consultant said "is a worry".

Slow heartbeat was the indicator in my last pregnancy (which was partial molar) that everything was going wrong, although that one was measuring behind dates too. Sigh. Feeling happy there's a baby but also a bit sad that we are still quite likely to see this pregnancy fail.

Also feeling overwhelmed that we have just handed over £800 to the clinic for the scan when I was literally in there for less than ten minutes. Argghhhhhhh!

Hey @treesall I have been manically checking for an update from you this morning.

I am really pleased that there's an embryo there and there is a heartbeat, those are both great. What was the heartbeat measurement? I have been told before that at this very early stage, it could just be that it's only just formed... my friend told me that when she had a 6 week scan they couldn't even find a heart beat so all is not lost. That's also what they told me in my last pregnancy though like you I was also behind dates for size. Did he explain why he was concerned?

Also... £800 for a scan? What?! Was that the consultation and the scan combined? That feels a lot given you only got 10 mins.

Sending lots of love x

Thanks @Lozfish. It was 116bpm. My manic googling seems to suggest it's not completely disastrous but the consultant did say twice that it should be higher and that it is "worrying".

I've just realised they charged me for intralipids which I didn't have today! I was so distracted coming out of the scan that when she said "your bill is £820 today, we will email you the itemised receipt" I just paid without even questioning it, despite thinking in my head I had expected it to be nearer £500. Ive just emailed back to ask them to refund £350! I hate the way they don't show you an itemised bill before you are expected to hand your card over.

@treesall I've also just had a look and that does seem really normal. I do think what we get with our treatment is absolute honesty and more caution because of our history - they don't sugar coat things do they?! One good thing is that the growth is good, it does seem there is a link with low heart rate and growth that is behind for dates so you've got one positive to cling onto. There is a really good chance that it has just started beating, I can't see anything online that says 116BPM is anything to worry about at this stage. When is your next scan? x

@treesall I also just googled and the first thing that popped up was: Your baby's heartbeat should be between 90-110 beats per minute (bpm) at 6 to 7 weeks.
Well done !! :) xxx

@treesall its so good to hear there is an embryo and A heartbeat ❤️. I also googled and lots of different websites seem to suggest that the heart rate is normal. Just need to try to keep positive now! ❤️

That's awful they overcharged 🙄. It's such an intense environment when you go there, especially when your anxious. I know the feeling of hearing a huge sum of money and just handing my card over!

Will your next scan be in 2 weeks time? Xx

Thank you @HollyLucky and @Lozfish

Arghhhhh I would really like to just hibernate until my next scan. Crp said it will be 4th or 5th august but they were struggling to find an appointment so waiting for them to let me know.

I very much feel like I'm in the danger zone now. The next scan is going to be the scariest I think as seeing a hb today has given me hope and it will feel so much worse if it's gone next time. I feel of I can get to 8weeks I'm in with a good chance. I do feel very lucky to have seen a hb today after being so sure I wouldnt. It's going to be a very long two weeks....but I know everyone on this thread is very familiar with that feeling!