The one where the BROOKERS make babies and blankets and hats and other crochet stuff!

[BeedlesPineNeedles]

I almost put this in arts and crafts, seeing as how we talk about crochet as much as we talk about babies!

There are some helpful links here of leaflets and support groups that might be able to chat about the reality of the particular heart condition:

www.bhf.org.uk/heart-health/children-and-young-people/heart-conditions-in-babies

Again, I'd say do write down anything you want to ask your Fetal Med consultant on Friday. They will do a really, really detailed scan and be able to tell you as much as they can about why this has happened. Of course, the answer might be that they can't tell why, but they will be able to look for soft markers for all sorts of things and will be looking for anything else. You really will be in very, very good hands.

Finally, I am no expert and won't claim to be, but feel free to ask anything. You are not going to offend me or upset me. Feel free to say or ask anything. There is going to be a lot of thoughts going on in your head and if you want to share them, please do.

Hope you can get some rest tonight. I'd definitely suggest lots of .

Thanks keep
And dino for coming on to chat to me.

The fetal heart consultant has put the diagnosis as 'evolving tetralogy of fallot/ double outlet right ventricle'
Everything at 12wk scan seemed ok and so far they haven't picked up anything else structural on scans and our nuchal was low risk.
I'm off to bed now, head is swimming.

Hope you managed to get some sleep Trix x

trix how are you doing today? Are you working or with n?

Not working. I have actually been sleeping quite well I just feel exhausted all the time. We pushed everything to the back of our minds and took N out for a couple of hours it's not fair on him he must be having a crap time at the moment.

Glad you got out with N. What time's your appt tomorrow?

It's an early one, which I'm glad of, 8.30am.

Brooking for you tomorrow trix

Early is good. So will you have the amnio tomorrow if you decide to have it? I really really hope the consultation answers your questions and is helpful.

Brooking so hard for you trix, I'm glad your appointment is an early one.

I doubt I would have it today but you never know. I would definitely choose it have it done at the John radcliffe though rather than my local hospital.

Brooking for you trix I really hope it's helpful and positive. Lots of love

Brooking so hard trix I hope that the appointment can give you more information. Good luck.

Brooking for you Trix and so are the Brookers on Facebook. Not all of them are able to log in on here any more but are thinking about you

Thank you all for your kind words and thoughts.
We had the amnio this morning, it was a difficult decision but after talking it through with family and the consultant we decided that was the best thing for us. It is something I never thought I would do.
Ps it's a boy!!!

Oh Trix thanks for coming and updating. Glad that you were able to have the amnio once you'd decided to go ahead and there's no more waiting for that to happen (waiting is the worst when you've decided on a course of action). When will you get the results? Was the consultant able to give any guidance as to when surgery would need to be carried out to repair the heart or did you not discuss that?

A little boy! GO TEAM BLUE!

Yes I think if I'd had to wait I wouldve changed my mind back and forth a million more Times. I'm sure we have done the right thing for us, I know it wouldn't be for everyone.
The heart op will be done in the first few weeks or months of his life. I think they decide once he's born they may do something temporary first before the main repair. Sorry it was a lot to take in so I need to chat it through again and make sure its clear in my head.

Oh the first lot of results will be on Mon or tues. Then the others are about a week, the one where the grow the cells. Sorry can't think of the right word

Another little boy trix how lovely.

Glad you managed to get the amnio done, and not too long for the preliminary results which is good. At least then you'll know what you're dealing with. Hope you've got an easy weekend planned, put your feet up and eat some chocolate!

trix I'm glad you had the amnio done so quickly, I hope you can rest the next few days. Brooking like crazy for your results on Monday and then later of course. Lots of love to you and your family

Congratulations on your boy, trix! I'm glad you were able to have a good chat with the consultant. As I've said before, do feel free to get them to go over stuff with you again and again. As doctors, we really don't expect people to take things in completely, especially bad news.

Hope you are get some rest this weekend.

Sorry, forgot about my NC!

Just popping in to say hi. Congrats on the boy trix and so sorry to read that there are complications. Hope I'm not speaking out of turn but DS1 was in the neonatal unit for a long time after he was born although for different reasons so if there is anything I can help with by answering questions about that side of things please let me know. His issue (very low growth due to placenta issues) were diagnosed at the 22 week scan and he was delivered at nearly 32 weeks. I'm sorry you have to go through this. It's not bloody fair. Thinking of you

Just popping in to say that I hope you are having a good weekend, trix, and that you are feeling a bit more settled about things. Praying for a good result on Monday for you.