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Conception

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Original poster

Immune /natural killer cell treatment when ttc or pregnant (aka the 18th pred thread!)

999 replies

Hula2 · 22/12/2015 20:35

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

OP posts:
Seekingmiracles · 07/03/2016 07:49

Good luck today Trying. Sending you lots of eggy vibes for nice, mature, quality eggs! Let us know how you get on x

Drttc · 07/03/2016 09:12

Omg yes good luck Trying!!! Hope you're feeling well and positive pre and post procedure x

Tryingno1 · 07/03/2016 12:14

Hey guys

Had an absolute disaster . Don't really want to dwell on it but safe to say I may not even get to transfer.

I think my journey may have ended. I can't keep doing this :( but I wish all u wonderful ladies all the luck in the world and I might be back on here one day if I get the strength ever! But it's been too many ups and downs for a lifetime!

Seeking hope ur little beans keeps growin well :))

billy15 · 07/03/2016 12:24

No Trying whats happened??
Shit!!!! Im so sorry things haven't worked out this time. I'm really, really hoping that you find the strength to carry on. Maybe a break from all the stress and ups and downs will help with your chances.
I wish I knew what to say! Please let us know how you are as I know everyone will be worrying about you.
Sending love and good vibes your way xxx

Drttc · 07/03/2016 12:53

Trying :( I'm so so sorry today didn't go the way we all wanted. You seem very shaken and like you need a bit of time... But know that we are all here for, and believe in you.

sunnyday01 · 07/03/2016 13:28

I'm so sorry to read your message trying, look after yourself snd we are here when you need us x

Hope everyone else is doing ok

Snoopysimaginaryfriend · 07/03/2016 13:47

trying I'm so sorry Sad please look after yourself and we are here if you need us x you have been such an amazing support to me personally and I just want to say thank you for everything x

Seekingmiracles · 07/03/2016 14:14

Oh no SadSad Trying, I was sooo hoping I'd hop back and see some good news. I'm so sorry if hasn't worked out the way you hoped. You know we're all here as and when you feel ready. You've had such a tough journey I know right now it must be so hard to see a way in which it would work but don't give up on your dreams. One way or another you will be a mummy and you will be the BEST mummy there is.
My thoughts are with you, sending both you and dh lots of love xx

Lisachick1 · 07/03/2016 16:45

Oh no Trying I don't know what to say, so sorry today has been a nightmare. Try to stay strong you've been through so much, easy to say I know, i can't imagine how you're feeling. Please take care and look after yourself and if you can face it let us know how you're doing, you'll be so missed in here xx

Original poster
Hula2 · 07/03/2016 20:03

Trying - so so sorry hun. The shit just keeps coming for you and it s so bloody unfair. You know we re here for you if you need it. Sending you the biggest cyber hug ever. Xx

OP posts:
Lisachick1 · 08/03/2016 11:19

Hi all just to say Snoopy I forgot to answer your thing about the diabetes, they tested me for it at 28 weeks I think but it might be only if you have a factor which considers you higher risk (for me it was my age - 43 and the fact that my dad has it).
www.nhs.uk/Conditions/gestational-diabetes/Pages/Diagnosis.aspx

Also I think Annaif was asking if I'd had any steroids side effects, when I was on them for up to 13 weeks or so I did notice my hair fall out loads! And I had little spots on my face around the hairline. but they didn't actually make me feel ill or anything, I didn't sleep that great but not too bad - I was on 25mg a day til I weaned off. And when I weaned off that's when the awful, allergic rash started, steroids had been masking it. Crazy.

annaif · 08/03/2016 11:37

thanks Lisachick1 , not long now for me to get results back from Dr S- I am almost positive he's going to start me on a slightly more aggressive treatment plan even if I test negative for NKs, due to my medical history.

I don't quite know the details of what has happened in the past trying, only that you were doing IVF recently- if I am not mistaken. I am really sorry to read how upset and disappointed you are and I certainly have been there quite a few times in the course of the past 3 years. IVF makes it all so much harder to deal with. Big hug, hope you feel better soon, in the meantime it's time to focus on YOU. Hope you find what makes you happy (outside of the whole trying for a baby malarkey that we're all stuck into) and do it! You count more than anything hun and have been through so much... kisses and hugs
x

Drttc · 10/03/2016 12:44

How is everyone holding up?

Hope you're okay Trying xx

Seeking - how are things? Are you almost 8 weeks now?

Snoopy- getting close now!! Do you have more things in place now to welcome your little girl?

Waves to everyone else! Hope you're all doing well and making progress in the ways that you need/want to x

Seekingmiracles · 10/03/2016 13:37

Hi Drttc Smile how are you? How far along are you now?
I'm good thank you, had another scan on Tuesday that put back to where I thought I was initially. So forward the 4 days I initially went back to. 8 weeks tomorrow. See Dr S next Saturday. The next scan is the scary one - last mc was at 9 weeks. So the next one is important Confused

Sending hugs to you Trying, hope you're ok.

Waves to everyone else Smile

sunnyday01 · 10/03/2016 13:42

Snoopy - I was tested for GD as I had a high BMI - that was my risk factor. Otherwise I think you are only tested if tpsugar shows in your urine when see the MW.

Lisa - I found this website and associated fb group really useful. Plus I lost 10lb in 12 weeks whilst eating like this. www.gestationaldiabetes.co.uk/gestational-diabetes-diet/

Snoopysimaginaryfriend · 10/03/2016 14:14

Ah ok, that makes more sense. Apparently the urine samples have been fine so far. Thanks lisa and sunny

seeking that's great news! Keep thinking those positive thoughts.

drttc DH bought everything and painted the nursery! He was supposed to be starting his five week residential firearms course next week, which was crap timing, but now it's looking like his course won't happen until jelly fish is about three weeks old which is even worse. He needs to do this course because he's so unhappy where he is but I hve no idea how I'm going to cope.

trying I hope you're ok, thinking of you x

There's so many new people we might have to post new stats soon.

Drttc · 10/03/2016 16:51

Hi Seeking! I'm well :) 17 weeks (by measurements) now. I think lately my biggest personal challenge has just been not letting 'people' get to me. Despite getting worked up on occasion I do think I'm getting a lot better at calming down after being worked up... Less stress = happy baby! Congrats on another positive scan! Will be thinking of you during this important time- and looking forward to your next milestone!! Nearly there now x

Snoopy- wow what a super hubby! How many weeks are you? How does it feel walking into the nursery? Oh dear :( Not ideal him having to leave for that course then. Can you ask for extra help from a family member?

Snoopysimaginaryfriend · 10/03/2016 18:31

drttc that time has flown by! Although I'm sure it's dragging for you. When are you due?

I'm 31 weeks this weekend. It's just typical of the met, don't think I expected anything else. I'm very lucky to only be a five minute walk from my mum and she's happy to help (despite being the most disorganised person in the world) but I always pictured it just being me, DH and baby, especially since I don't think it's likely we'll have another one.

Snoopysimaginaryfriend · 10/03/2016 18:31

Oh and it's still hugely surreal walking into the nursery, just weird

billy15 · 10/03/2016 20:55

Hi all
That's great news seeking keeping my fingers crossed for the next one. Sounds like you're coping pretty well?
And very exciting drttc and snoopy!!
trying I hope you're ok. Thinking of you xx
Hi to everyone else xx

Things not too great here. Did SO this cycle - first one after the one in Dec when had no follies and my period disappeared (dr s thinks that's cause of the 2 mc too).
Scan on Monday showed good lining and 25mm and 11mm follies. I thought that was good (the 25 one) but turns out they can be too big!! FFS!! Had a scan with dr s today and 11mm one not grown and 25mm has grown and looks like a cyst!! So no go this cycle, again!! And with my high LH looks like I might have PSOC. So new meds for that. Have to have scan just after period to see if cyst has gone. So feels like another big step backwards!! SadAngry

Seekingmiracles · 11/03/2016 07:41

Morning ladies,

Thinking trying to manage your stress is definitely a good idea Drttc. Try not to let people get to you, you're the important one right now. Time to be selfish and look out for number 1.

Wow snoopy, you're so close now!! Rotten timing for hubbys course but at least you have family close by. How exciting that the nursery is done. Must seem so surreal!

Lisa sorry you've had another bad SO cycle, must be so frustrating. Especially when you're paying for it each time. Hopefully DrS can help with the pcos though. Sending a big supportive hug.

Hi to everyone else. Def think we need a stats update!

Drttc · 11/03/2016 10:24

Snoopy- I've had due dates ranging from Aug 14th to August 21st, but think by measurements it's closer to the 14th. Though due dates are never accurate I suppose! What's yours? It'll be easier for me to remember that :) Eeeeek! So so exciting- can't say it enough. How are you feeling physically? It's funny because you're about late twenties/early thirties right? I'm 29 and I'm already thinking 'surely 30 is too young to give up on having children/more children regardless your history'. It's odd to me and I think I'd likely try for more... But nothing would ever compare to this journey. Still having major anxiety (like last night) as to wether this is going to actually happen. Was checking my Doppler this morning with my heart in my throat :( I understand now why when I was thinking you should relax you still held yourself back...

Oh Billy :( That is absolute crap!!! Ughhhh! Could the letrozole have brought on the cyst or has this likely been going on undetected for a while?

Seeking - thanks! Yeah let's get a new state board going. I'll start:

Drttc · 11/03/2016 10:25

2nd Trimester
Drttc- 17 weeks pregnant, Baby boy due August! 29 yrs old, 4 recurrent chemical mcs, very high NK cells, aggressive treatment: hydroxy x2, pre-ovulation intralipids, Super ovulation programme after 5 months BFN. Went gluten free and regular acupuncture.

Snoopysimaginaryfriend · 11/03/2016 14:34

Oh billy so sorry, it just seems like one thing after the other. It's so annoying that these conditions are so hard to diagnose as well. If you have treatment can you do the SO as well?

drttc the 14th is my wedding anniversary! I'm due May 15th. I'll be 31 in September and I agree it is weird to be thinking is it too late for another one. I think if this one arrived safely I will just be overwhelmingly grateful and I'm not sure I could face the stress and pain of this process again. Yet on the other hand I understand there can be this stronge urge and I was one of three so I always imagined having at least two.

Snoopysimaginaryfriend · 11/03/2016 14:39

And the stats:

3rd trimester
Snoopysimaginaryfriend- 30/31 weeks pregnant with a little girl- 3 miscarriages between nov14 and may 15 - 1 Mmc 11 weeks but stopped at 8, 5 weeks and 7 weeks. High nk cells, treated with pred 25mg from ovulation, intralipids from bfp and aspirin with vitamins. Previously diagnosed with hypothyroidism so already taking thyroxine.