Immune /natural killer cell treatment when ttc or pregnant (aka the 16th pred thread!)

[sunnyday01]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

Ah there's some good news at last!

I just admire how well organised you are. Do you want to organise my life for me?! I do actually really want to try clexane, which is why I'm angry that I'm still being ignored by the NHS! I told my mum ( because I can't bring myself to talk to GP at the moment) I might as well just push for St Mary's or Epsom because my local hospital just aren't responding.

Well done Drttc for going on the hen do, but as others said I would keep right out of her way, she sounds like a lovely lovely lady - NOT and you need to be around positivity and supportive people. I can't believe the insensitivity re: hair and alopecia. I knew someone that had it and I would never dream of saying anything about hair if I knew it could upset! some people!! not a clue!!

Dr S said the same about me and kee[ing up at night with the 6 weekers...I think ILs before would be a good thing, and thought about trying it myself. Not sure you were on the thread then but I MCd 2 on the bounce and believe the second one went further along....could be because I had the ILs only about 6 weeks before!? It can't hurt.

Snoopy its good to have a good old cry and we will get there...I know it! We have to all stay positive even thought its so so hard! I have my fingers crossed!

Trying I think we need a spa day I feelling pretty gross just after my short pred stint...spots are back all along my neck, feel bloated but thast could be due to the fact I am CD 44!!! WTF....tried reflexology, acupuncture, vit C, I simply don't know what is going on...I am trying not to worry but its hard.

I know the appointments are like a full time job but I see that you are progressing forward and that's the main thing...

Saw Mr S last week and responded to pred so on same plan. I said that was madness and so have added hydroxy to the mix. I still think I should have thyroxine and heparin but DH & I have agreed we give this one more shot and if it doesn't work then we try something new. I don't get why my activity wouldn't respond and now it does...doesn't make sense and due to that I am slightly concerned a pregnancy is just going to flare it up again...

anyway its all pointless talking like this when I don't actually have a cycle anymore!!?!?!?!?

determined did Dr s say anything about your cycle length? It must be so frustrating, is it a common side effect of the hydroxy? I'm so glad the results were better though, and you have contingency plan. it's so hard to know what the breakthrough will be.
Do you mind if I ask have you found anything that helps with the neck spots? I have three on the right side that just won't shift. DH says I pick them but I swear I don't! Haha

Oh yes sorry determined u had seen him. Sounds like a good plan. So sorry AF still not here-what a pain. Are u going to do SO? I hope it comes soon...so frustrating :(
Oh I think a spa day for us All!

Snoopy I love la Roche effaclar-ive not had spots for 1 year since using it . It's always post miscarriage my skin goes mental!

Seeking its ur appt soon-I have everything crossed u get ur results and are ok getting them.

Not really snoopy, just that I could take some cyclogest for a few days and that should kick start a bleed! Tbh our appointment was a bit rushed if honest so I asked Louise more about it and she said it's likely to be the steroids. It won't be the hydroxy as it was late before I started it :(

No of course not, are they really under the skin ones with no head (sorry tmi). I wouldn't pick them I just put tea tree on every now (not too much as the skin goes flaky) and then and use an oil by espa instead of moisturiser (sometimes use both). Mine only just started to clear after the 6 months and literally a week into the steroids back! As if we don't have enough crap with weight gain and miscarriages!! I may try tryings product as I feel I am losing again with the spots!!

Thanks trying, well once af is here I will see. I think with my cycles getting worse I probably don't have an option now :(

Hi ladies ,
Lost the thread for a bit then! Just read posts back.
Drttc - glad you made it through the hen weekend. I don't think I'd have been able to bite my tongue with that horrible girl. I'd definitely have said something... But I am a bit of a bitch

Hi everyone else!

Determined... Sorry AF still hasn't arrived .

Im also of the 'cut the crap' out of my life frame of mind. No time for it, no need for it. So unless people enrich my life, they're not getting anything from me.

Seeing DrS on Thursday (if my results from the karotype tests are back). If not I have to postpone. Then I don't know if I ttc this cycle or not.
Having an absolute shitter I a week/weekend. Everyone is bloody pregnant. I've had so many FB announcers since my last MC. Obviously all due in Jan. feel like a massive punch in the face. I've seriously had thoughts about just accepting that we can't have kids and giving up. Maybe if I accept that I'll be happier?

But we get puppy on Saturday! Maybe he'll cheer me up!

Hi Seeking! Haha I'm very capable of being a bitch in my head, but an absolute kitten in reality. However, as these are really sensitive issues for me I'm wondering if one day she is going to get an unexpected verbal beating lol.

Is so lovely cutting those people out isn't it? I won't see this group for 2 weeks now (bloody wedding season) which has helped me go back to my happy place. The entire week in between finding out she was pregnant and going on the hen with her I was SO doom and gloom... Upon getting back the cloud has been lifted. I was like 'Free! Free at last!'

Those announcements take being sad over miscarriage to another level... Especially the ones with similar due dates to you. Shes due end of January (2 weeks ahead of what I would have been), which hurts.

I don't know what the answer is :( But you're way too young to be giving up!

Yay for puppy!!! Very exciting!

Hi seeking, sorry ur having a hard time. I'm in a similar place on alternate days!!! Some days I'm devastated and feel like I need to forget about children which breaks my heart. I then cry a lot. But some days I'm like no, I can do this it just might take years more of heartache. I wish I had a crystal ball
Hope ur results r back and yes def puppy will make y smile!!

Ps I got off facebook! It's been great ow too many baby accouncements. I told people I was wasting too much time on it when they couldn't find me. It's good too as I now only have postive happy people in my life.
Drttc I'm like u! Bitch in my mind but too scared in real life. I usually get dh revving me up before I need to say something to someone as he's much better at it!

It's so hard to imagine having a family now, all I have to relate to it is pain and heart ache. Generally I'm so optimistic, just the odd day of despair!
DH just booked Vegas for new year!! Which on one hand will be amazing but on the other I'm already thinking about where I'll be then. It's ridiculous!! I told him just to book it and we'll deal with it later if need be. I'm not putting my life on hold anymore.

Seekings that's so good about your trip to Vegas. We had the same chat with DH about travelling and decided to book a big trip where I would need all sorts of travel jabs. So was putting it off for a long time... feel like it is time to start planning things without thinking what if....

Just had my second appointment with the osteopath/acupuncturist. Had a good sleep there. Also all the crazy pregnancy symptoms I had were caused by whatever he did - think he somehow made my ovaries produce more progesterone.. at least I know I am not going crazy...

ahh seeking...im there with FB...there are loads of babies being born right now and I would have been due my 3rd...also a friend is due the same time the 4th...its so hard and the 'acceptance' thing is a good thing (not accepting not having kids I mean) Accepting what has happened and that its still painful but it is in the past and must looking forward etc etc has helped me a lot. I used to get upset all the time and now I have come to terms with what has happened and what may be going forward and do feel better (mostly). I am so excited about your Puppy...yay! he will deffo make you happy :)

We also have hols booked for next year. I said to DH how would you feel if you missed out on all these things and we were still no further on the baby front...we would be gutted...life is deffo not on hold and I am not having any regrets. I can regret cancelling a holiday...won't regret losing out on experiences that are fun! Woohoo for vegas!

Deffo book that trip nanny and glad acu was good! and glad you are better Drttc. Hope you are on a good day Trying

xx

Determined yey to holidays!!! Looks like the whole pred thread will be booking loads of exotic travelling and than cancelling the trips if the destination not suitable for heavily pregnant ladies we just need to book a good travel insurance as well

Wouldn't that be lovely x

Hi Ladies,

Sorry i ve been quiet for a few days had been having sleepless nights in run up to DS op but thankfully he had it yesterday and all went well. He was amazing with it and just took it in his stride (dh and i feel like we need another holiday to recover).

Good plan those who are booking exotic hols, when i was approaching 2yrs of ttc my DS i thought what the hell and booked dh and i 2 days of helisking and then fell preg 1 wk beforehand and had to miss it, so sometimes i think just relaxing and living your life if the best medicine (easier said than done tho).

Sorry to dr and seeking for having to deal with annoying preg people but i do believe those that make the best mums are often those that have fought to get there and you all deserve to get there.

Afm on second round of femara, scan monday.

Hula was thinking about ur ds. Glad it went well and he was a brave boy! Fingers crossed for monday

All this holiday talk is making me jel! I feel like I can't do a biggie with a potential ARGC Bill coming up! But I am off to Spain soon for some some and tapas and vino!
Seeking - Vegas sounds fun! U have been coping so so well, it's so shit what we have all been through :(..I really hope ur results r back and u can kinda close this chapter and think about ur puppy and holiday! And I hope the baby just comes naturally to u too amongst ur happy plans. And ur puppy :)

Thanks determined---- Yep today is goodish day thanks! I'm finding it really odd at work, like smiling and pretending all ok. Then when I remeber it hits me hard. But I'm at work so continue to smile. Really weird. Kinda odd?

Xx

Ah great news hula, so glad it went well for your little one ;) fingers crossed for Monday!

Spain will be a great break, tapas vino and laughter-just what the Dr ordered. :) Did you see the news recently where it said trying to get pregnant go on hols...think it was the vit D link! You never know ;)

I'm glad today was a better day for you...there will be so many emotions up and down that's perfectly normal...how long till hols?

Morning!

Glad DSs op went well Hula! Hope this round of SO works for you.

Holiday is just what the metaphorical Dr ordered Trying! Hope it does the trick to chill out and recharge the batteries.

Think having things to look forward to definitely helps in staying positive.

Hope everyone has a good day... Half way to the weekend!

hula so pleased ds's operation went well, maybe not having the added stress will help this cycle?

Good to see lots of holidays being planned, I know I can't wait for mine in September. And seeking I'm so jealous you'll have your puppy soon, looks like we'll have to wait until November for ours!

I don't know what my body is doing, I'm on cd 29/30 (don't know how the two apps got in to different days ) and seem to have a lot ewcm. I haven't been checking at all, or temping or opking, because frankly I can't be bothered and what will be will be, but this was very noticeable.

Snoopy i ve had similar before and when i looked into it i found out that you have a slight increase in oestrogen as the progesterone drops just before af so can cause some inc in cm so maybe its that ?

Oh well, I guess af should arrive this weekend then

Oh I've also just read it could be leftovers from DTD (gross ). It's just too confusing

Hey guys
Hula how is dc
Yep snoopy can be hard to tell between ecwm and DTD! But u can get some before AF too like huka said I noted it some months.

Determined im off tmrw I hope I don't get preg as dH not coming haha! He's working long hours and his friend is coming to visit and I had leave so was perfect for me to visit a friend living out there for 3 nights. I feel bad leaving him with the miscarriahe being so recent but he won't get home till 9ish and its prob nicer for him to be with his mate without me cramping their style! Plus he really wanted me to go...did make a lot of a food for him yest and buy him some tasty puddings so I feel less bad about it! I think sun and a break from UK will do me some good. I do feel like I'm a bit up and down.

I'm terrfied this won't ever work out for me, I can't imagine not having a family :( it really scares me.....

Seeking hope appt goes to plan and ur ok x

Glad dc's op went well Hula! Hope you're not too shaken.

Hey Snoopy! Good luck with your cycle... Hopefully it all becomes clear soon!

Trying, hope you're little break is rejuvenating & leaves you feeling more positive :)

Well I'm so disappointed! I got a positive ovulation test today... Usually that would be good except for 1. I have no EWCM (ARGH!!!) and 2. My intralipids are tomorrow... So same day of ovulation instead of before. Basically the plan has gone tits up. I have preseed so I'll use that in hope that it will replace EWCM... But not feeling hopeful. Even worse, I'm worried that after taking steroids this cycle it will mess up my cycle next month (just like it did the last time I took them).

So that'll be lots of time, £600 on intralipids, and anxiety for 2 cycles that are already following the exact pattern of my previous unsuccessful post miscarriage cycles (break month okay, first ttc month no EWCM, 2nd ttc month really weird 23 day cycle due to steroids). I know I should be more positive but I can't help notice similarities :( We really can't afford intralipids every month & this cycle was our one true shot without the steroids interfering.

Oh sorry drttc. hmmmm can u postpone them till next month if u don't feel like this is ur month? If that make sense?
I found ecwm is sometimes a bit unreliable and I would get it a few days before the day of a surge or even day after postive stick. I fink sometimes it's there before but just not obvious....im sure having intralipids one or 2 days here or there won't mayyer? As they will be working by implantation time?
It's such a confusing scenario all this complex ttc!

And Trying, I share your fear :( But so many women have been in our shoes and got there in the end!

Here are more successful people from this Pred thread! :

Old threads

Babies

Stogan - V high NKC - cycle#2, DC#1, Baby girl born Sunday 11/03/12 7lb13.5. Our First Pred Thread Baby!

Digitalgirl - High NKC - BFP cycle#2, Baby boy (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12 Our Second Pred Thread Baby!

BFP 3rd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks

Comedy - V High NKC - BFP cycle#2, DC#2 – 14/5/12

Iggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- 21/5/12

BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 33+2

Freelance - V High NKC TTC#1 Hydroxychloroquine, Pred, Intralipids, 400 Cyclogest, Thyroid/hashimotos. MC 1st Pred cycle. 2 Pred babies!

Cheerfulcharlie - V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred).

batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 22+4
coleyoz - V High NKC. DC#2,