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See all MNHQ comments on this thread

RESPONSE trial thread

984 replies

Marchgirl · 04/05/2015 19:50

For anyone who had joined or is thinking of joining the RESPONSE medical trial for recurrent miscarriage

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LouiseM1987 · 04/06/2015 07:11

Hi sorry I wrote a reply and thought I pressed post but didn't and now it's gone :(
All went well yesterday it was waving to us and moving around but when she went to take a photo it decided it didn't want a photo and just looked at it and wouldn't move haha so the photo isn't great but everything is fine:) xx

LouiseM1987 · 04/06/2015 07:12

Kazz I'm sorry you've had another bfn :( x

Marchgirl · 04/06/2015 07:28

Sorry for the bfn kazz Sad. Still time

Yay on the great scanlouise! Lovely to hear how well its all going after that worrying start!

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Kazz2112 · 04/06/2015 07:54

I'm trying my best to still stay positive. At best based on the ovulation test I'm now 11dpp bit i think 10 is more realistic. I really thought this would be our month so gotta keep positive!

That's fantastic news Louise. Very exciting..how many weeks are you now? I lose track!

girliesaints · 04/06/2015 08:01

Kazz, I had similar calamities the month I got my bfp, so keep going x

Louise, pleased your scan went well x

Kazz2112 · 04/06/2015 08:33

Thank you Girlie. Just still have this feeling that it'll be this month.

girliesaints · 04/06/2015 08:38

Kazz, there's a lot to be said for gut feeling!

Claire, are you testing yet?

LouiseM1987 · 04/06/2015 10:38

I'm 10 weeks according to trial today (from smiley) but I don't think it's right as I only measure 9 weeks 4 days. I think everyone doesn't measure correct from the trial ! X
It's not great but you can see its little arm and leg ! X

LouiseM1987 · 04/06/2015 10:38

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RESPONSE trial thread
clairemorgan81 · 04/06/2015 11:58

great news Louise so pleased for you.

kazz stay positive its still early days.

girlie not going to start testibg until early next week. my twin sis had a little boy on tues, Hes adorable. Hope everyone else is okay x

girliesaints · 04/06/2015 13:07

Claire, congrats on becoming an aunt again, hope you're ok with it? Fingers crossed with the testing.

But peeved off today as RMC study nurse rang to introduce herself as Response team have passed over my details and during conversation found out the epu unit haven't referred me due to the Response trial and have discharged me. So have to get a referral from my GP back to the RMc clinic. One step forward, two steps back!

Indiedog · 04/06/2015 13:18

Girlie, that's rubbish. I would ring the EPU, and asked why they have discharged you, after all this is your ?th (forgive me I can't remember) Loss, and it is irrelevant that your were on the trial.
I would at least want an explanation, regardless if you do have to go back to the Gp. They wouldn't discharge anyone else!
Or just a thought, get A or J to speak to them, maybe they can pull a few strings and get you "reinstated" if you know what I mean.

Good luck, and argh too! Angry

girliesaints · 04/06/2015 13:52

Unfortunately there's nothing a & j can do to pull any strings on this one as the aren't a clinical team. The Rmc
Nurse said it would be quicker to get the GP to do the referral rather than get the epu unit to admit the mistake. Unfortunately this is the second time the epu team have done this to me same issue after MC 3) so I have no confidence in them being able to referral even if they were to admit their mistake.

However the Rmc nurse seemed lovely and she's running a study on support for anxiety in future pregnancies following rmcs so I'm hoping to join that study in the future.

Indiedog · 04/06/2015 14:26

Oh girlie that's rubbish. Best get on the gp's case then Wink!

Is this other trial with a lady initial S?

Marchgirl · 04/06/2015 16:19

Grrr. That's really crap of them girlie, it's just the last thing you need when you're going through this. Hope you're gp is a bit better at getting a referral sorted.

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girliesaints · 04/06/2015 16:31

It is Indie, I assume you've met here?

Spoken to surgery and can't get a telephone appointment with a partner doctor until next Wednesday- ggrh!

Indiedog · 04/06/2015 16:55

If it is the same lady, I signed up to her trial, fell pregnant December and just over four weeks I MC so hadn't even got to contact her to start the support etc!!! It was two days before Xmas!
Then I just happened to ring and speak to Dr Cheong in January and she told me about the response trial so I swapped.
Glad they are lining you up with something else.
Xx

Choccywoccydodah · 05/06/2015 06:21

Great news Louise!! And lovely scan piccy Smile Bet you still can't believe that is in there!

Girlie how shit :( as if it's not hard enough!! Nhs are really shocking sometimes. Hope the gp referral procedure is quick.

Claire glad your nephew arrived safely, hope you're ok.

All good here, last full day/night of holiday today before we leave tomorrow evening.
Looking forward to going home tbh, but upset this is our last night abroad with the 3 of us (obviously thrilled too lol, but you know what i mean!!) xx

Kazz2112 · 05/06/2015 09:11

Another BFN this morning. Cycle us usually 28-30dats and I'm day 28 today so it's looking like I'm out this month. Gutted. :( Gonna try a first response tomorrow to be sure x

Marchgirl · 05/06/2015 10:01

Sorry again kazz. It's so depressing to keep seeing that blank. I still holds out some hope. Defo try a frer tomorrow. You might still only be 10 today, so could still come up. One of the girls on the rmc board recently got first bfp on 16dpo!

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Kazz2112 · 05/06/2015 10:35

Really? Ok... Won't give up till AF has shown!

Kazz2112 · 05/06/2015 10:36

What's the rmc board?

Marchgirl · 05/06/2015 10:41

Recurrent miscarriage thread 24 - tests, treatment and trying again. It's where my mn life started. Girlie is on there too.
Here is a link if you want to join you'd be welcome.

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Joy2713 · 05/06/2015 14:21

Hope all you ladies are doing well :)
Had another scan yesterday and the twins are doing just fab :) only 19 days to go until 12 week scab and got mudwife booking appt between then so keeping everything crossed!
Good luck to those ttc xx

Indiedog · 05/06/2015 15:21

That's lovely news joy, glad things are going well.

Have you told anyone your pregnant yet?? Have you told anyone it's twins yet?!
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