Immune/natural killer cell treatment when TTC or pregnant (aka the 14th pred thread)

[sunnyday01]

Continuing from 13th thread

Yes hope I've read similar re the asprin. I asked mr s about it and he gave me all sorts of reasons why not but I couldn't help but feel negative about it so I stopped that. My dad didn't have any opinion on it which wasn't helpful!

Know wot u mean about getting into the underwear! I was so not in the mood yest but tried my best so DH didn't feel the pressure! The mad things we do....

I'm still feeling hopeful! If not this cycle it will come soon!

When we first started trying it was fun, then a few months later I tried yo make it interesting now I don't bother doing anything special! I just tell dh when we need to do it and he us ok with it. I have found trying for a baby takes all spontaneity and fun out of it! When the week or so of bd is over I am usually relieved!

Glad it's not just me! It's such a shame it takes the fun out of it. But I suppose 1.5 years of clinical DTD does that! We still manage to enjoy it but usually when we are away from home Relaxed and not I'm not ovulating! Another pants side of this
Journey!

Guess what ladies it's nearly our year? ( I know I have said it for past 4 but I have good vibes! ) 2015 has a good ring to it!
I would like to wish you all a happy, healthy and beautiful rainbowed new year!
To all the lovelies that have been blessed already may you to be blessed with happy health and gorgeous times with your well deserved rainbows xxx

Thanks all, means a lot! Don't know how I would cope without this thread! Good to talk to people who understand!! Still not sure what I will do yet as I never really know what my biggest battle is (PCOS, MTHFR, thyroid or NK cell)...obviously all of it is but it's hard to manage it all, tablets for this, special diets for that, special supplements for the other. Anyway new year new positivity!!

Dildoos yes have hols in jan (mum lives in France so seeing her for a week). Cannot wait!!

Wow 3 eggs sunny!!! 3 is a magic number- busy time for you at the mo and trying too!! :) good luck!!

Hope hope you are keeping well and feeling good at this stage?

So as Dildoos said its so nearly our year!! A new beginning in 2015! I want to wish all you lovely ladies the happiest, healthiest, fun and exciting and RAINBOWED year ahead! Happy new year!!

Xxxxxxx

Morning girls!

Glad u know u can come on here and moan determined! I know sometimes it feels like everything is against u but u will get there at the end! I only have nk issue but still no success! Nature is very weird indeed. The thought of having another miscarriage is almost too much to bear so I'm hoping my next bfp is the one!

Happy new yr to u all. Like the others I wish u all a happier healthier blessed year! We will come out the other end even if it may take a while and try us along the way. Have a great night tonight whatever your up to as well.

Happy new year everyone for tomorrow.. Hope we all feel lucky and fearless ??
I'm pretty sure I'm out again this month but don't find out until end of next week. Just been reading about gestational surrogacy though. Anyone considered this? X

Hi rosa. Been thinking of u.
I looked into it after miscarriage 2 actually. But not in great depth. It is something I would consider if I have no luck in time to come. It's pretty exp and I know some people go abroad to do it.

I know it's hard but hope u haven't give up all hope. Have u had ur Dh sperm checked? Have u been to your Gp and get a few day 21
Bloods done you can double check your def ovulating and any other first line "why not getting preg". I'm on month 6 and aged 30 and I'm still not preg. So sometimes it just takes longer?

I read on mumsnet just last week when I was stressing out (!) of a lady who got preg in 3
Month (miscarry) then 2 (miscarry) then it took her 14. She was 38 and had her last preg which i checked worked out!! She said she said done everything including acu/herbs/drugs/relaxation and it just didn't happen till month 14 for whatever reason. Not sure if that helps u?! I suppose I'm saying is hopefully it will happen for u soon. But maybe it's sensible to look into anything that may be stopping it? (Hope that doesn't sound harsh/u get wot I mean)

Hi rosa, I looked into surrogates a few months ago when I'd really had enough. My friend used one to have her little boy and it was such a positive experience for her that I wondered if it might be an option for us. I looked into doing it through CRM in London as we were going to do it with PGD and IVF. That was the expensive bit rather than the surrogate as far as I could see though. I think we might have pursued it if I hadn't got pregnant as I just couldn't face any more heartache. I think the tricky thing is finding a surrogate, although it is much easier if you are using your own eggs. The thing is, you probably will get pregnant soon, but if it makes it easier to handle maybe you could look into surrogates at the same time. That way you have a fall back plan. I liked having a few plans going at the same time! It will be interesting to see if anybody else has thought of this!

Happy new year! Let's hope this is our year!

I'm ovulating today as had my trigger shot on Tuesday night so back on the pred!

Happy New Lucky Year everyone again!
Trying & Hopender- thanks for your replies. The stories and suggestions were really helpful.. I think will get bloods done this month to check and also look a bit more into surrogacy as a plan B as really feel time ticking. I've always, even when aging didn't scare me, worked out at NY what my age would be next year.. Which of course ages you by 2 years and not a helpful thing to do right now!
Sunny- best of luck. Did you do your trigger shot yourself? I've drugs lined up for this too but wanted to get bloods done first. I'm so convinced I'm out this month (just a strong feeling- or lack of a pregnant one), that not taking pred. I've had some Christmas drinks so prob didn't help anyway.
It's a numbers game - we are all mostly doing the right thing.. And often people get lucky even when they are not - so I am going to try harder this year to take a philosophical view.. I do badly want a child, but I'd really regret not living a full life while trying no matter what the outcome. Maybe babies are like boyfriends, and they come along when you're not looking/ trying so hard
Whatever it is, whatever the trick, whatever the brand of luck- wishing it happens for all of us this year.. Would be amazing if everyone reading this thread has their dreams come true in 2015.. It's possible!

Sunny I'm ovulating today too! Well got my lh surge on stick yest so most likely today. We still in sync totally!

Decided not to take pred this month. I'll take it next month if out again this month.

Rosa that's completly the attitude i adopted. Till it happens might as well try enjoy life. Me and DH try go on holidays lots, nice meals etc and tell ourselves it will be much harder once a kid comes to just drop everything and do simple things like pop to the cinema. So for now we enjoying Eachother and hoping a baby comes our way (i hope soon)! I'm not too hopeful this month as also had a few (a lot of!) Xmas drinks as did DH and ive decided to go tee total for a while as I'm not a big drinker anyway.

First 2 times I got preg I was eating drinking and having coffee like a normal person and got preg at a blnik of an eye. Since stopping things and having a million supplements and acu it's taking much longer?! Can't really understand that! Except that my body needed some time to recover post multiple miscarriages?

Happy new yr girls. Lots of luck to all of u. I'm sure most or all of us will get lucky this year x

Hi rosa - yes I do the injection myself, it's very easy. I am the worlds biggest wimp when it comes to needles and use to cry if I need a blood test but after so many blood tests in the last year I have got over my fear! The trigger shot has a very fine needle - you can hardly feel it!

Hi,

Please can i join you lovely ladies ?

I m just starting out on this immune issue journey and would love to be able to share it with people who really understand this rollercoaster.

I m very lucky to have a LO who is 3 years now and despite taking nearly two years to conveive him with nothing on standard tests except low amh i had an easy and uneventful pregnancy.

We started trying for no 2 eighteen months ago (i still have a low amh of 2.1) and after only 6 months i fell pregnant but sadly miscarried at nearly 10wks.

That was april and we ve had no luck since and my acupuncturist recomended checking for immune issues with Dr S and it turns out i have high nk cells with borderline activity and borderline cytokines. He recommened the complex nk programme and humira. I wasn t sure about humira straight off so have decided to do a couple of months of just steriods (plus vits/aspirin) then think about humira and starting superovulation.

Yesterday was test day after my first cycle of steriods and it was a bfn I hate testing early and it seems even worse when there s now all these extra measures involved.

Anyway thanks for reading and sorry for all your losses. I hope 2015 brings all those much deserved rainbows.

Hi hula,

Sorry u find urself here :( . Of course ur welcome on here! I find a BFN more upsetting than AF plus a waste of money! I hope u find the pred ok-apart from inability to sleep after a few days on it.

Sorry sent too soon.
Yeah hope u find the pred ok-I get a bit sleepless twds the end of my 10 days but ow been fine.

Thanks for the welcome trying. Yep pred was ok, just felt a bit wired which actually was quite good for getting things done but not so good for getting to sleep (and back to sleep, my LO still wakes at least once a night) otherwise no other probs. However feel i have a limit of about 6 months for it and tbh at nearly 40 (aahh !) this needs to happen soon or i m going to be over the hill anyway !!

Happy New Years girls!

Welcome Hula ( sorry your here suffering too, but it is a lovely bad thread to be on )

Well I rocked New Years! Shots? ( decided to Jeremy Kyle it all the way!)
Prosecco I between!
Allowed my 6 nearly 7 year old DD stay up ( first time ever!) then walked her home in dark at 1 am! ( again very jezza Kyle!)
But blast me it was fun! Fun! Fun! Xx

Welcome Hula2... I'm on the same programme as you so message me if any Qs.. I'm not an expert of course and have no success yet but feeling good about this year

Sounds fun dildoos! It's nice to forget about all the TTC constraints all the time and let ur hair down. I did that on Xmas day!

Rosa keep going with the postive feelings. I really hope 2015 is one for u.

Sometimes after not getting a bfp for so long, I feel like I've forgotten what it's like to get one?! I don't know if that makes sense? Feels like a million miles away rather than something realistic?

Hope when is ur next scan again?

Hi there happy new year. Just wanted to say I had 7 miscarriages ...no previous children, I'm 38; but had a beautiful little girl in September after 3 years ttc. Dr s found I had high gliadin antibodies which turned out to be ceoliac disease which can be linked to RCM. I also had high cytokines / tnf alpha and after a bit of research found people had some success after taking high dose fish oil and reservratrol instead of the hugely expensive humirua option. I took the fish oils and reservratrol for about 3 months and my last bfp resulted in my little girl. I also have hughes syndrome - also immune related like the gliadin antibodies so was also treated at st marys with aspirin and clexane. I thought I would never get there so all of u who are sooo ready and wishing for a baby please do not give up. I will be forever pinching myself looking at this little bundle and I only want that for each and everyone of u. I also had a high fsh and pretty low Amh, so do not give up. I was told ivf with donor eggs my only option but we decided to continue ourselves. Here's to a stork-tastic 2015 x x x x

La what a wonderful insight, thankyou for sharing your journey and you are an inspiration for us all. X

Hi lalaker. What an amazing story! Thanks for taking time to
Come on here and telling us all. stories like yours keep us all going and make me not give up. It really Means a lot.

Congrats on ur little one and enjoy every moment with her!

HAPPY NEW YEAR!

Sorry I didn't post yesterday was away with friends and a little but jaded yesterday after NYE celebrations! I hope you all had fund whatever you did!

Rosa - love that philosophy and intent on practising more of that this year! what we be will be but I don't want to waste what precious time I have not living life to the full!

Welcome Hula, so sorry for your losses, its horrible you find yourself here in that situation but this board is great for support with people who understand what you are going through :)

Thanks for your story LALaker - every time I hear an inspirational story like yours it helps to keep me going when I am doubting and losing confidence! I hope you had a fantastic Xmas with your little one! :)

So 2015 is here! I'm confident its going to be a good one!!!

xxxxxx

Thanks also LALaker- your experience really does give me hope, it's so great to hear happy endings from anyone who has experienced similar struggles and heartache. As everyone says- enjoy every second with your little girl and thank you so much for taking the time to share your story x