TTC or pregnancy on prednisolone or similar part 11

[Buzzybee123]

This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

As a fully trained, albeit lapsed, hypnotherapist myself I can second choccy on this - if you get a good practitioner (I know several, obviously!) they can really help. I'm disgusted at how you were treated mollie - I also started training as a counsellor and we were firmly taught that you are NOT there to 'give advice', no matter how well-meaning. Hugs to you and hope you find someone who treats you as you should be treated, with compassion and empathy.

Well done choccy, last pred is big relief!!

Thanks for suggestion, hypno worked well for you did it? I wondered if CBT would be any good too...

Thanks free, must be great having a counsellor dh.

Xx

accidental sorry to hear that your TTC is on hold at the moment. I still think its best for you to get to full strength first. I know you said lupus can take a while to be treated but you never know, it might get sorted sooner than you think and then you could think about TTC again. Maybe I am too much of an optimist but there must still be a chance you can try again in the future.

mollie I was offered counselling from the bereavement midwife at my local hospital but decided I wanted to work through things on my own. Have you not been offered that? They phoned me a few times to see how I was getting on. I found talking to other friends who had lost babies at a late stage was the best counselling for me as they had been through the same thing. It took me about 8 months to come to terms with what happened and stop blaming myself so try not to rush the grieving process. I still have bad days now though, especially as the year anniversary of her birth is coming up on the 25th. My DH said he keeps having flashbacks. I am happy to meet up if you need to chat to someone who has been through the same thing (not sure where you are based but I am in bucks).

duggs hope you are staying positive and resting up.

I did another test this morning and the test line was as dark as the control line on FRER so I am hoping this pregnancy won't end as a chemical. Part of me wishes that if it is going to fail it would happen early as I don't want to get to 20 weeks and it happen again then.

I'm no expert but I have had a bit of counselling. Jane knight was very good at zita west but not cheap at £150 a session I think (hence I had 3) summer 2012.

Just had my nk cell retest results back. I am now very high 1.93 - CD69. They were 1.79 2 years ago. I blame my healthy living and strong immune system. My count was 200.7 so that is higher as was 165 in 2011.
At least I have a reason now and I hope chromosome results come back normal.
I'm going to see dr S again to get a new plan but I guess it will be hydroxy and 40mg pred and intrallipids. I know many of you have had successes on the programme with v high counts so I'm
Hopeful. Makes 6 mc more explainable than bad chromosomes. Freelance I need to edit my TIMES article

Good news sue
Waves to others x

Another version of prof Q findings theconversation.com/natural-killer-cells-play-role-in-recurrent-miscarriage-18126

sue whispered congrats, lovely news. Yes I defo know what you mean about wanting it to fail asap if its going to, but hopefully this is your time.

That's so kind of you offering to meet up esp as its hard for you at the moment. I'm in Wales so it's a bit far. I might even try a sands group. There is no bereavement midwife any more in my area. I'm completely battered and heartbroken from losing two sons and having 7 mcs, you have to get through as best you can I guess without cracking up.

duggs £150 a session, wow that's steep, glad she was good. I expect you're relieved to find some answers now are you? Glad you're keeping positive, it's good to know what's wrong so that a plan can be put it in place. Gives you lots of hope for the future.

Xx

I'm sure it can't have been that much looking back .... Surely now? I must have been in a bad way if so. Sue might know, but it was a lot. The difference was her specialisation in loss of pregnancy and child experience.

Sue glad to hear that your line has got darker. I hope this is your time, goodness knows you deserve some luck after losing Scarlet.

Mollie I have also been to see Jane Knight and she is as good as she is expensive, but as you say probably too far for you. Have you tried the charity Winston's wish? A friend of mine used them when she lost her son a few weeks after he was born and I know she found them to be brilliant. Also she had cbt which I think she also found to help her deal with her loss.

Sorry I don't know how much Jane Knight is. I now my DH went to Cruse after he lost his brother and they also discussed all the babies we had lost. He found it very helpful plus it was a free service. I think they are across the uk.

mollie my uncle lives in Carmarthen so if I ever go and visit I will try to arrange a meet up with you.
There is also the child bereavement charity who do telephone counselling so maybe that might be good for you?

Hi Sue ok fab. Thanks re counselling advice too.

Waves to all x

THIS in the Times today!

free
Bought the Times first thing following the kick starter email. Congratulations. I sobbed if I'm honest. So much of my unvoiced grief within it. Familiar experiences. Thank you for putting your head above the parapet x

Not sure if I've said congrats to choccy for passing such mega milestones. Pred free!!!
And also to sue for being on that first step. Lovely news

Freelance - SUCH a good article. xxx

free I can't read it, I don't suppose you could link to an alternative way of seeing it?

Same here.

Thanks everyone. Yes the times has a pay wall and I don't subscribe either so haven't see the full thing yet myself. An going out to buy it in a bit so will see if I can scan and post.

I think I forgot to say wooooooooooo!! To Choccy too!

Thanks guys!

I braved the pouring rain to go get the Times - somehow it's easier to risk getting soaked when I think how important for the baby it is to keep moving and get some level of exercise each day. Still can't think too far ahead though. Anyway. Great article free well done. Every little helps to get rmc into the popular conscience. Even if only to make more women aware that they aren't alone.

I think that's key here. The not being alone bit, I mean.

I remember reading Dr Beer's book and the chapter where he talks about the amount of times he has heard from some poor lady who has contacted him at 3am after trawling the net searching for answers, not being able to sleep, and craving any answers. To try to make sense of the cruel situation.

It reminded me of how alone I felt. In bed in the middle of the night, with just the glow of my iphone as I scanned articles, forums and anything else I could find in the hope that I might stop the noise, confusion and hurt in my head.

Everytime I read that section in Dr Beer's book, tears stream
down my face, because its so sad for them, for us and everyone who has been through this. Desperate, and I mean, DESPERATE, to find out why this has happened and so that we might find some peace again.

Thanks again Freelancegirl, for a brilliantly written article.

Great article Free, a voice for us all. It sent shivers down my spine as I read it in the supermarket car park (couldn't wait until I got home). As Clabbage said, thanks for being brave and speaking out about your journey. X

Yay, Choccy!

Great news choccy and well done free.
After getting a bfp sun on frer and af due today I've just got bfn on frer today. So looks like a chemical, how cruel I've never had one before. I've just had uterine biopsy not so long ago. HAs anyone had a chemical on hydroxy/ dhea / restravatol then gone on to have a more successful bfp??

I actually subscribed to the Times online just so I could read it, couldn't get to a shop in time to buy a paper! Great article free, so glad that a mainstream paper is prepared to run an article on this. free If you do read the online version you'll no doubt be amused to see that your name is Linda Rand, according to one commenter!

mel Chemicals are cruel indeed, but unfortunately a sad fact of our lives. It won't be anything to do with what you're taking, don't worry, just an odd chromosomal hiccough I expect. Big hugs to you.

Ahh Mel that's a shame. Chemicals are more common than we think and I guess if we weren't TTC we wouldn't necessarily know about them as wouldn't be testing. But it's certainly a way to get hope up and then have them dashed.

Thanks for all the comments on the article. Gosh Ari I forgot that people might have been commenting. Are there by nutters on there? There usually are!

Yes, I'm afraid there are free - your usual count of idiots and merchant bankers. Ignore them!