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TTC or pregnancy on prednisolone or similar part 11

999 replies

Buzzybee123 · 19/08/2013 22:25

This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

OP posts:
VillageMum · 05/10/2013 12:58

teamdozie that's fantastic news! Thrilled for you!

bakingtins really sorry to hear about the insomnia, have heard about that as a side effect, not helpful in early pregnancy when you're already feeling tired... Will be thinking of you on Tuesday. How far along will you be by then? Am keeping everything crossed for you x

ari Grrr that's not encouraging about UK clinics missing scarring. Well, I'm hoping that the sheer physical action of inserting a hysteroscope through my cervix (or pumping saline solution through it!) will unblock something. At this stage I'd be thankful just to be able to menstruate again. Who did your hysto? Was it Mr Gafar at New Life? And if you don't mind me asking, did your uterus present as normal-looking on ultrasounds beforehand? Everyone so far is insisting that the problem can't be scarring - they all keep pointing to the wonderful uniformity and regularity of my womb on ultrasound... but I know that plain ultrasound can't pick up scarring. So I'm curious to know what your experience was if that's OK with you... Off I go to take more paracetamol Sad

Arianrhod · 05/10/2013 14:27

village It was at New Life, yes, on the instruction of Mr S but I've no idea who actually did it I'm afraid. And yes, my uterus always appeared normal on all ultrasounds.

teamdozie · 05/10/2013 15:00

Ari thank you very much.. I have read some of your post and wanted to say sorry to hear about your DD. I read that you are going to Athens? Is that for any particular reason? Pardon my nosiness im Greek myself..

Baking Thank you and congratulations to you too.. im not sure ive said it before.. How far along are you? First day on steroids yesterday and like you i was up at 12.30 and awake till 4. So needless to say today im exhausted. My first scan isnt for another two weeks.. i feel really different about this one.. good different. Worried but nothing like i have been in the past..

buzzy Thank you .. hope you are ok?

Thank you village its still not sunk in..

xx

VillageMum · 05/10/2013 16:39

Ari hmmm... let's hope that the procedure works for me. Have read that the saline scan can detect over 90% of abnormalities.
Hope your DD is doing OK today?

Wonder if anyone else had had experience of hysteroscopy or saline sonohysterography (saline scan) at New Life or while under Mr S's care? Sue you mentioned you'd had a hysteroscopy just before falling pregnant - was that done at New Life? Curious to know what has or hasn't worked for you all.

team hope you manage to put your feet up for a few minutes this weekend.

Waves to everyone Smile

Bakingtins · 05/10/2013 18:24

I'm only 5+2 so still a mountain to climb. Scan on Tuesday is to confirm pregnancy in the right place, prob will be too early for HB. Last time knew by 7+ it was all going wrong though didn't actually MC until 9+ so hoping for a scan at 7+ to be more positive.
Does it fit in with the experiences of others that it seems to be wrong from the start? I had no HB at 7+ weeks last time though did then develop one a week later, but development several weeks behind dates.
I want to wish the next six weeks away rather than be awake throughout them!

teamdozie · 05/10/2013 18:53

Baking i know exactly what you mean..

How do you feel about it this time? Its difficult to explain but i feel "lighter" about this pregnancy? I have felt "heavy" previously, always thought negative thoughts and said 'well if it goes wrong etc etc...

This is my first pregnancy on Dr S's protocol so maybe thats why? i am scared but considering my history thats normal..

my last pregnancy was wrong from the start too no HB when there should have been etc etc..

Im sure your scan will be absolutely fine you just need to relax.. (by telling you i'm telling myself too) lol

Have you had intralipids yet? what is it like?
I know what you mean about next six weeks, maybe try and just aim for a week at a time? I keep saying to myself a day at time and we will be fine..

Village Thank you for the advice i am going to follow every step of it.. ;-)

xx

Bakingtins · 05/10/2013 19:06

No, I'm on Prof Quenby's protocol. Progesterone from day 21, pred from BFP, clexane once scan confirms intrauterine pregnancy.
This really is our last attempt, so it feels kind of momentous. I have 2 children, youngest starts school next year so it's either back to baby days or taking on more work and moving on to a new stage of life. I never intended to have a 4+ year gap, but life doesn't go to plan. It feels like the next 4 weeks has a massive impact on our future but there is so little I can do to affect the outcome. Trying to keep busy and not worry but being wide awake in the wee small hours is not helping.

suemays · 06/10/2013 08:31

village I had a hysteroscopy free on the nhs and could see there was no scarring. It was more to rule out any unforeseen problems. I think half the journey in this TTC business is striking possible problems off the list and then trying to treat what is left. Some of the problems use the same drugs anyway eg aspirin and steroids so we don't always know which one it is helping. I still believe its trial and error coupled with luck.

bakingtins and team I completely empathise with you on being stuck at 5 weeks syndrome. That first week of getting my bfp seemed to drag for an eternity! It helped me to do the cb digital tests twice a week to see if the hormone levels were increasing.

I have got my first scan tomorrow afternoon before intrallipids so already worrying! I will be either 8 weeks or 7+5 as I think I ovulated on day 12. DH has already told me that this is his last go of trying so no pressure there then!! My stomach bug has now been replaced by morning sickness so still feeling rough but glad I still feel pregnant!
I lost all but one of my pregnancies (not including scarlet) by 6 weeks. The other one was showing a heartbeat at 8 weeks but measured at 6.5 so it was already fated. It died a few days after the scan and I miscarried at 11.5 weeks.

teamdozie · 06/10/2013 11:36

Baking thats cool.. ive been put on clexane already (due to my late mc) i have to right a little chart with all the things i have to do.. im scared ill forget lol..

I hope this baby is here to stay for you..

Sue i hope all goes well with your scan.. im trying not to think about it.. Ive not even checked my due date.. according to my CBFM i peaked on day 19 so god know what my scan will say..

are you on Dr S? Ill be at NL tomorrow for my intralipids ...

xx

Bakingtins · 06/10/2013 12:17

Sue good luck for tomorrow.

teamdozie · 06/10/2013 12:20

write a chart even

suemays · 06/10/2013 12:55

team I am at zita west tomorrow so won't see you. Enjoy the intrallipids and take a book as they can take a while!

teamdozie · 06/10/2013 13:56

Oh shame, enjoy your too sue im taking hubby with tomorrow as its my first time..

Im excited.. stupid really but i am.. Ill let you know how i get on.. stay positive..

xx

VillageMum · 06/10/2013 17:29

Sue thinking of you tomorrow, may it all be good news x

Bakingtins and team hope the days pass quickly! x

BellyD · 06/10/2013 19:54

Good luck for tomorrow Sue, praying it is good news for you.

Baking and Team I hope the time until the dreaded first scan passes quickly and uneventfully.

Village I have had a saline sonograph at NLC, it wasn't too bad, like an unpleasant smear test (which they generally are anyway). Mine showed less than 10% scarring after 4 ERPCs and I have got preg twice since, albeit unsuccessfully.

brownstag · 07/10/2013 09:06

Fingers crossed for you today Sue.

brownstag · 07/10/2013 09:40

And for you Team, sorry!

Arianrhod · 07/10/2013 09:43

sue Lots of luck for today!

VillageMum · 07/10/2013 11:36

BellyD thank you so much for responding to my question, that's really helpful to know. I've had 5 ERPCs now and suspect I do have scarring which is causing AF complications. Did they recommend a hysteroscopy for you to remove yours, or was the saline scan as far as it went? Really appreciate that you took the trouble to reply Smile Hope next time is the lucky pregnancy for both of us x

suemays · 07/10/2013 14:37

Not great news from me as only measuring at 6+2. They thought they could initially see a heartbeat but then couldnt find it when they tried to do the measurements. So I was told it was inconclusive and to go back next Monday. Very worried as my missed miscarriage started this way - was measuring behind for the dates. George did say that as I don't know when I ovulated it might still be ok but I'm not too hopeful. I am so used to bad news!

Arianrhod · 07/10/2013 14:58

Crossing fingers sue that it is down to your not knowing your ovulation dates. I know it's an eternity to next Monday, but I hope all is well then.

VillageMum · 07/10/2013 15:20

Sue, not the cut and dried news you'd hoped for but on the plus side there is a heartbeat, and your ovulation dates are uncertain. Consultant always used to remind me at early scans that at this stage a measurement of 1mm either way can make a huge difference dating-wise, but the technology itself isn't necessarily totally accurate (this is Mr Impey at the FMU at Oxford). He used to say, 'don't go into mourning yet'. In the case of DD he was right. Thinking of you and sending you hugs xx

Bakingtins · 07/10/2013 15:29

Sue so sorry you are in limbo-land. Keeping everything crossed for lots of growth and a strong HB next week.

suemays · 07/10/2013 16:56

There wasn't a heartbeat today. They thought there might be one but wouldn't say for certain. The 'blob' looked like it was pulsating in the middle but it was too small to see if it was a viable heartbeat. I don't know how I will manage over the next week.

village I saw mr impey at Oxford last year. He was the one who confirmed our little girl had no chance of survival. He was the only one who would commit to an answer so we were very grateful. I have a scan there in 2 weeks if the one next Monday shows growth.

brownstag · 07/10/2013 18:35

Fingers crossed for you, Sue. The not knowing is all such torture.