TTC/ pregnancy on Prednisolone or similar part 3

[freelancegirl]

For those who are TTC/pregnant undergoing immunotherapy treatment. Current list as it stands, do feel free to come and join us, it's moving quickly round here!:

Tuesday 22nd November

TTC
Waiting to test
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing from 21/11
Havingkittens - Upgraded from High to V High NKC TTC #1 after 2 month break/testing 29 Nov -2 Dec depending on my resolve.
Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov/ 4th cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)
eurochick - TTC#1 awaiting first appointment (in Nov)/ov expected 28-30 Nov.
BFPSeeker

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 24+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -19+1 Due 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 16+1 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 13+3 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 12+6 anomaly scan Jan

1st Trimester
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 11+4 next scan 28/11
Scooterchaser - V High NKC - BFP cycle1 - 8+1 Due 01/07/12. Scan 25/11
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 4+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 4+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 4+5 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 4+4. Scan 3/12.

Hope ur all having a good natter together girls, sending hugs to u all. Please have a glass, or 5 of wine for me !!! Xx

Yes have a great night. Is there someone sitting near your table with a trenchcoat and a fake moustache? That'll be Dr S

Just got on my train heading home... Fab evening girls it was so lovely to meet you all. Rather tired hence dropping out early - I've got another long day at work tomorrow on top of everything else so I'm sure you understand.

We really must do it again - maybe a weekend lunch? In Brighton?!

xx

Lovely to meet you all this evening. Sorry I didn't get to speak to some of you much. Will have to do more mingling next time!

What a gorgeous bunch of ladies.

I couldn't help but notice that none of us smoked (in my slightly tipys, "ooh I don't smoke anymore but fancy a roll up", departure). Is that because we are all health conscious TTC/pregnant types or does not smoking (& eating peanut butter, living in central london, not eating meat) give you high NK Cells?! lol.

Hey fabulous bunch we really are. Hope you all got home ok. . .so many subjects and feelings and emotions scooter and choccy hats off to you both. how refreshing to talk to people who are not obliged to try to listen and tolerate or pity .
Speak tomorrow ladies. sleep tight x

Ari just to say thinking of you today... Come tell us how you get on hugs

Thanks choccy, I will. Sitting back in the walk-in hospital right now waiting for yet more blood to be taken, for the thyroid test the lab didn't bother to do 3 weeks ago. My life seems to be an endless round of surgeries, tests and having blood taken.

/waves to all, hope you're all doing good this morning.

Thank you for a lovely evening ladies, I had a fab time. It was great to meet you all. Definitely up for meeting again in the new year to mingle some more :)

Ari - Thinking of you this morning. xx

Hi all, great to meet those who were at the RL do last night! It was indeed so good to chat freely about this sort of thing, launching straight into the nitty gritty to people who didn't batt an eyelid at all our gruesome revelations. Not sure what the bar staff would have thought of us as they snatched bits of our conversation :)

Ari thinking of you too and I hope you get some answers today. You asked about ERPCs with Mr S - for my ERPC under the treatment Mr S was actually away and I was at my local EPU for the inconclusive scans, so I went with my local hospital. I got properly told off by him afterwards as he wanted me to have had it with him so he could send it off for analysis. I did ask the hospital to do that too but of course they didn't. I never found out how much it would have cost with him though. But I know he would have liked to have taken control of it.

I too am putting off a trip to my local hospital right now for blood tests. I just can't face the scene of so many depressing things. Also am sitting here with that constant low level nausea I seem to be getting at the moment and feel reluctant to expend my energy on something so time consuming (I have had to sit up there for a good two hours at time waiting in the blood test queue). The nausea I hate when it's here as I don't feel like 'me' anymore but as soon as it goes I am worrying like mad!

Cheerful sorry you got a bit freaked out by the HCG test but it seems within normal range doesn't it? Ari is right, after a certain length of time it doesn't double necessarily.

Kittens I am an ex-smoker - don't know about anyone else? Smoking was a huge part of my miss-spent youth. The miss-spent bit went on a lot longer than the smoking bit but the smoking bit was with me, at least as a social smoker for many a year! In fact I think in between pregnancies and miscarriages this year (the bits where I have got very drunk in between) I have also indulged in the odd sneaky smoke. Not right now though obviously...

Agh, 7.1 today by my LMP for me...6 days until next scan... tick tock....time is going so very slowly. Some people don't even know they are pregnant at this stage! Can't believe it is only three weeks today that I was having intralipids in that clinic in California. It seems months ago!

Hi ladies, haven't had time to read all the posts so will do later - hope you all had fun last night!
Just an update on my testing - a BFN this morning so I think my AF did arrive a week early and it wasnt implantation bleeding. Fed up of this waiting game and not knowing what the hell my body is doing with the preds. Louise told me that the preds can delay and disrupt OV which makes it harder to conceive.

Hi all! Great night last night. Have lost my voice this morning so am getting lots of sympathy at work with everyone thinking I am ill. Hahaha - just from too much talking.

Don't envy you Ari sitting waiting to give blood, not fun at all. Sorry about your BFN suemays .

kittens - re smoking -I was thinking that we were probably as healthy looking a bunch of women you would ever find on a night out in london!! Anyone would think that with what 45(?) or so miscarriages between us last night we would have been necking bottles of wine, smoking several packs of cigs, nipping out to do some recreational drugs and tipping back triple espressos going "What - you mean all this increases our risk of miscarriage? Why didn't anyone tell us"

free - can you get the phlebotomist at your local GP to do the bloods and avoid QE? I thought the blood clinic was one of the seven circles of hell when I went there do I don't blame you trying to conserve your energy...

It is indeed one of the seven circles of hell PQ and I was just on the phone sorting it out the GP instead. Friday at 11.15. So I can breathe a sigh of relief. Shit, like many of us I just feel I spend all my time at doctors these days! I don't know how I would have time to hold down a proper job. Am so relieved am not heading up to that hospital now today though.

Sorry about the BFN Sue but more annoying I am sure is the weird effect this whole thing is having on your cycles. It's the last thing that is needed when TTC on medication etc. Just another thing to address, so I can understand how frustrating that is.

Thinking of you this morning ari - I think you've been incredibly strong and level-headed throughout the past few weeks. I guess it's something we're used to doing now, it's easy to switch to auto-pilot. Let us know how it goes.

duggs thank you so much for organising last night. I had a great time chatting to everyone, didn't realise how late it had got when I left.
Would definitely be up for meeting up again in the New Year.

choccy and scooter was especially lovely to see you both there last night. I hope it helped in some way .

brownie thanks for joining me on the pregnancy couch. It must feel strange to be talking aloud about being pregnant when you haven't told anyone in RL yet. But it's a positive thing to do and hopefully you'll start getting used to it because sooner or later it's going to be difficult to hide (took me a while not to flinch whenever anyone in RL said congratulations).

sue sorry about the BFN. But, hey, at least you've had AF already and are already a few days into this new cycle. Definitely recommend temping to ensure you've ovulated, I personally don't think starting the pred a few days after ovulation is a problem...as long as you've started before implantation which is at the earliest 7dpo.

kittens I dabbled in a bit of social smoking from about 16 to late twenties. Was never really a massive smoker. Haven't touched a ciggie since TTC the first time round. Can't say the same for drinking though. Although haven't been on a really massive bender since PG with DS.

free These early weeks are sooooo slow. Distraction, distraction, distraction!

Waves to all those DPs out there reading along! Very brave of you guys to peek at all the inner mentalling that goes on with us recurrent miscarriers.

Right, REALLY must do some work now.

Hi ladies,

It was great to meet everyone last night. I felt uplifted when I got home- so nice to chat to others in the same situation. I'm already looking forward to the next time!

Thinking of you today Ari x

BFN for me today, still not sure when I ovulated, but already looking ahead to the next cycle and joining duggs in the superovulation room of the cocoon house :) Bring on the superegging.

Ladies..

We did say our next RL meeting would be in the new year - late January perhaps on a Saturday or Sunday - lunch along the Southbank so that more people could perhaps join.

We will post more details after Christmas but if anyone who couldn't make last night is interested do say and we will try to pin down a suitable weekend.

x
sue I'll talk to youabout superovulation on Sat - although perhaps I would be better qualified once it actually works for me ! only on 2nd cycle so need to be patient

ari how did you get on today at Dr S's? Thanks for the hcg info yesterday.

I've managed to have a bit of red spotting today. Just about to go for acupuncture though so hopefully she can sort it out.

Lurking too for news of Ari.

Sorry to hear about spotting Cheerful. What a flipping rollercoaster this all is. A friend of mine on another thread is bleeding a lot at the moment and the baby is fine, no reason found for it. It's very stressful though.

I am starving today, am on my fourth round of 'lunchtime' toast. With peanut butter this time, so being wild and crazy.

Time is dragging and I can't believe I am still only 7.1 by my LMP. I don't even dare admit it to myself that I might get any further in this pregnancy than the next scan, but I also can't help looking ahead to the calendar to take a sneaky peak as to when specific milestones would be - 12 weeks, 16 weeks, 20 weeks. It's such a comparatively short period of time to wait, but I feel like there is potentially a gaping gorge between now and then.

Something else that freaks me out is that I often feel cold. You hear of pregnant people feeling hot not cold. I worry it is a bad sign.

How is everyone else today? Quite quiet on here in comparison to other days. Waves to Digi, Cherry and Duggs too. I am definitely up for meeting and yes lunch on the South Bank sounds good. I notice there is a Christmas fair there at the mo. Lovely to see Digi looking wonderfully pregnant and flying the flag as the most 'pregnantly advanced' person at the RL meet up! And Brownie you are doing so well too.

Making an attempt on the list. Let me know if I screw it up!

Weds 7th December
BFP
2nd Trimester

Stogan - V high NKC - BFP 9/7/11 cycle#2- 26+2 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 21+0 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 18+0 next scan 14/12
Comedy - V High NKC - BFP cycle#2 ? 15+2 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 14+5 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -13+4 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 7+1 Scan 13/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 7.0
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 6+6

TTC
Waiting to test
Suemays - V High NKC TTC#2. OV 23 Nov, testing on 7th December, pred cycle no. 3
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec
eurochick - TTC#1 Awaiting NKC results/period due 12 Dec.
coleyoz - V High NKC. TTC #2 - Test 12 Dec

Waiting to ovulate
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2

WTTC
Hopefulfor2nd - High NKC = TTC in New Year
PQ77 - High NKC TTC #2 again from January (BFP cycle one but mc)
ScooterChaser - High NKC
ChoccyPud - V High NKC - TTC #1

Hi ladies ... Well, back from Mr S, and no pregnancy at all visible on the scan, no pregnancy sac, nothing. Another early miscarriage, then.

Mr S was really, really nice, he said I mustn't give up on him yet, and seemed to take it almost personally that the pregnancy had failed. I kind of felt like reassuring him, I was sure right from the start it wasn't right, and as we've all said before, we're liable to "ordinary" factors for miscarriage just like any "normal" person. As with you choccy he wants to see us again in the New Year for the next plan, and he mentioned the hydroxchloroquine same as you free. He had an hCG test done, and also retested my NK cells - he said he'd let me know the outcome of those tomorrow (but he said that before when he took a blood sugar test last time I saw him, but I never heard back from him with the result so perhaps I have to contact him? I don't know). Mind you, the nurses couldn't get blood out for the tests - they took three attempts before they could get any blood! So four lots of needles for bloods today :(

In a way (and I'm sure you'll understand me here), Mr S seeing absolutely nothing at all on the scan is actually a bit of a relief, inasmuch as I am not faced with potentially having to wait for my body to sort itself out for weeks. I was dreading that. I'm not sure now how long it will take for my natural cycle to kick back in, I'm having acupuncture tonight so will ask her to give my body a bit of a helping hand in that department. And then it's back to the waiting game.

cheerful So sorry to hear you've had a bit of spotting, it's a complete head-f*ck this early pregnancy lark. Hopefully it's absolutely nothing, and your own acupuncturist can sort it out for you.

free if it's any help, I was really cold in my first trimester of pregnancy, I only started feeling hot (or rather, not feeling the cold) in my third trimester. That may just be me, but remember your hormones are adjusting all over the place, and everyone is different. I feel for you in the wait between scans, relevant dates, etc - hang in there, and vent to us :)

I'd like to meet up if poss when you do if it's late Jan - early Jan won't be possible due to birthdays/parties etc, but I'd like to try to come along if you make it late Jan.

Redoing the list so no-one else has to face moving me :)

Weds 7th December
BFP
2nd Trimester

Stogan - V high NKC - BFP 9/7/11 cycle#2- 26+2 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 21+0 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 18+0 next scan 14/12
Comedy - V High NKC - BFP cycle#2 ? 15+2 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 14+5 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -13+4 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 7+1 Scan 13/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 6+6

TTC
Waiting to test
Suemays - V High NKC TTC#2. OV 23 Nov, testing on 7th December, pred cycle no. 3
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec
eurochick - TTC#1 Awaiting NKC results/period due 12 Dec.
coleyoz - V High NKC. TTC #2 - Test 12 Dec

Waiting to ovulate
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2

WTTC
Hopefulfor2nd - High NKC = TTC in New Year
PQ77 - High NKC TTC #2 again from January (BFP cycle one but mc)
ScooterChaser - High NKC
ChoccyPud - V High NKC - TTC #1
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2

oh @rse, I messed up the bold bits. Trying again:

Weds 7th December

BFP
2nd Trimester

Stogan - V high NKC - BFP 9/7/11 cycle#2- 26+2 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 21+0 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 18+0 next scan 14/12
Comedy - V High NKC - BFP cycle#2 ? 15+2 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 14+5 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -13+4 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 7+1 Scan 13/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 6+6

TTC
Waiting to test
Suemays - V High NKC TTC#2. OV 23 Nov, testing on 7th December, pred cycle no. 3
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec
eurochick - TTC#1 Awaiting NKC results/period due 12 Dec.
coleyoz - V High NKC. TTC #2 - Test 12 Dec

Waiting to ovulate
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2

WTTC
Hopefulfor2nd - High NKC = TTC in New Year
PQ77 - High NKC TTC #2 again from January (BFP cycle one but mc)
ScooterChaser - High NKC
ChoccyPud - V High NKC - TTC #1
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2

Lurking for news from ari hope you're ok.

cheerful boo to the spotting, hope acupuncture sorts it out. Good luck with your scan tomorrow.

Today's list - breezy you weren't on the list, so have added your name. Feel free to add your details

Wednesday 7th December
BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 26+4 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 21+2 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 18+2 next scan 14/12
Comedy - V High NKC - BFP cycle#2 ? 15+4 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 15+0 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -13+6 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 7+1 Scan 13/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 7+0 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 6+6 Scan 8/12.

TTC
Waiting to test
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec
eurochick - TTC#1 Awaiting NKC results/period due 12 Dec.
coleyoz - V High NKC. TTC #2 - Test 12 Dec

Waiting to ovulate
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2
Suemays - V High NKC TTC#2. OV 23 Nov, testing on 7th December, pred cycle no. 3
Breezyweezy -

WTTC
Hopefulfor2nd - High NKC = TTC in New Year
PQ77 - High NKC TTC #2 again from January (BFP cycle one but mc)
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1

oh arse - I've x posted

ari glad to hear you're ok and that the scan was a relief in some ways. Sorry you're back to square bloody one again, it's f**kin shite. But pleased you're not giving up hope. We're here to back you all the way.

Have list-merged:

Wednesday 7th December
BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 26+4 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 21+2 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 18+2 next scan 14/12
Comedy - V High NKC - BFP cycle#2 ? 15+4 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 15+0 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -13+6 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 7+1 Scan 13/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 6+6 Scan 8/12.

TTC
Waiting to test
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec
eurochick - TTC#1 Awaiting NKC results/period due 12 Dec.
coleyoz - V High NKC. TTC #2 - Test 12 Dec

Waiting to ovulate
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2
Suemays - V High NKC TTC#2. OV 23 Nov, testing on 7th December, pred cycle no. 3
Breezyweezy -

WTTC
Hopefulfor2nd - High NKC = TTC in New Year
PQ77 - High NKC TTC #2 again from January (BFP cycle one but mc)
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2