TTC/ pregnancy on Prednisolone or similar part 3

[freelancegirl]

For those who are TTC/pregnant undergoing immunotherapy treatment. Current list as it stands, do feel free to come and join us, it's moving quickly round here!:

Tuesday 22nd November

TTC
Waiting to test
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing from 21/11
Havingkittens - Upgraded from High to V High NKC TTC #1 after 2 month break/testing 29 Nov -2 Dec depending on my resolve.
Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov/ 4th cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)
eurochick - TTC#1 awaiting first appointment (in Nov)/ov expected 28-30 Nov.
BFPSeeker

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 24+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -19+1 Due 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 16+1 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 13+3 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 12+6 anomaly scan Jan

1st Trimester
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 11+4 next scan 28/11
Scooterchaser - V High NKC - BFP cycle1 - 8+1 Due 01/07/12. Scan 25/11
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 4+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 4+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 4+5 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 4+4. Scan 3/12.

When I told Dr S at first consultation that I get serverly sick from about 4/5 weeks when pregnant and was worried about chucking up the pred, he said "well what do you do to conteract that?" I said I don't know (your the doctor) and he said take steroids which will take it away almost completley!! Ref to hopefuls post earlier, basically what he said was a load of old rubbish. Because I felt sick/pregnant this last cycle too and wasn't....god who knows what's going on.
Anyway AF for me was two days early and now just panicked to get more 25mg drugs at docs for tomorrow as got line for ov on cheap stick and it's only CD8! So it's messing this month up. Oh dear I wanted bath and bed tonight now got to get jiggy with it...

Free I hope your convictions are wrong. For me, whether I've been hopeful or pessimistic does not seem to have affected the results!
Haviing a (private) 15 wk scan tonight and have spent the day convinced it will be bad news. (That bloody doppler). If it is we will not try again. Really hope I am putting myself through this for no reason!

good luck with your scan iggi

iggi be thinking of you at your scan, hope it's the reassurance you need. That naughty doppler has a lot to answer for!

choccy pm'd you. Just also wondering why they are keeping you on aspirin and vits? I was told to dispense with everything but pred but then I have had a lot of conflicting advice recently - perils of NHS communication systems!

On a train to London just getting into Victoria sorry for lack of personals.
Waving :)

Hi all - just spent the last half hour catching up - my new routine since meeting you lot is sofa, furry throw and a good catch up. Just a shame that it cannot always be good news for us - really sorry. Feeling really fed up as cannot now come tomorrow despite some very fine planning. Husband has got meetings until ten / had managed to get out of a work 'do' / arranged for a friend to come early to babysit and she has just had to cancel. It has been four and a half long years of miscarriages since my son died and in that time I have never met any recurrent miscarriage sufferers - now you're all gathered together and I can't meet you! Saying that sue I'll be up for Saturday afternoon so at least can do that.

free I'm not a good person to answer your question as pregnancy makes me very sick so pretty much can't forget I'm pregnant ... saying that there are days when I feel ok and then panic that all is over again.

Iggi fingers crossed - sure all is ok

ari scooter Choccy - thoughts are very much with you x

A quickie from me in the motorway to Hastings, obv not ms driving...

Iggi good luck at the scan! Please come back and tell us ASAP. Scooter and choccy, mr s told me to carry on with all vits and aspirin (after stopping bleeding) and taper the Pred. But pretty sure vits and aspirin should stay.

Comedy sorry you can't make it tomorrow but there will be others. I am def around more than planned too. Regardless of me flying the family have decided nan needs mote time to recover so instead of us all going home to spain we are cancelling flights and going to hers in Chester. Holiday is on ice, as it were, for the moment.

Waves to anyone I've missed, looking forward to tomorrow!

Evening ladies just a quick one from me as sooo busy with work I may spontaneously combust !!!!

Just wanted to say everything crossed for Iggi and hi to everyone else xxx

Best of luck iggi x

Hello, all was well. I really can't believe I'm typing that as so convinced there'd be no heartbeat! I think dh is planning to dispose of the doppler. It is still amazing you can have so much movement going on inside you and feel absolutely nothing (there's probably a lesson in there somewhere!)
Thanks for the messages x

Thanks comedy. I'm ok today, but I suspect thats mostly pure adrenaline and Pred making me bounce off the walls. Beginning to collapse a bit now I've sat down after running around all day.

Sorry not to see you tomorrow, maybe next time?

iggi loads of luck for the scan, fingers crossed for you :)

free and scooter the only reason I'd have had to stop the aspirin was if Mr S was worried I had an ectopic, otherwise he said carry on with all the supplements but stop the cyclogest immediately and taper off the Pred and keep on the Omeprazole of course.

free keep thinking positive and stay as hopeful as you can. You said yourself this will be a difficult week for you, given what happened earlier this year. But am I right that mc was before you were on the Pred? I'll say the same thing dh keeps telling me: you can't really count that mc in the sense that this time you know you're doing all you can to help prevent the NKCs doing their thang. Which means trying not to compare this pg, or fear too much that the same thing will happen as before. We know all too well there are no guarantees, and non-NKC related things can go wrong too, but I've got everything crossed for you that this pg will be ok.

scooter pm'd you :)

Yay iggi!! crossed posts

Iggi ? Good news! Now get dh to hide that bloody Doppler for a few weeks!!

Blue ? Sorry to hear about your losses. I would also try and scrape the money together for the test if you can. At least that way you can rule it out completely. I know someone (relative of a close friend) who had a loss at 30weeks and is now happily pregnant with Mr S?s help. As far as I?m aware, all tests on her little boy came back normal and I don?t think there was anything in the placenta to show that it was NK cells, although Mr S thinks that what caused it. I can try and check with her if you like.

Sue ? A temp rise sounds promising. My first thought was implantation bleeding. Fingers crossed for you. We need some more good news on this thread at the moment!

Choccy ? A bit of clothes shopping sounds like a great idea. Good for you!

Great to hear that you?ve got such a supportive GP Hopeful!

Sorry to hear about all the pregnancy announcements. It?s very hard to plaster on a smile when it just makes you feel a bit sick. I have to say, I?m very grateful to have my lovely ds, as I know that those announcements are even tougher when you?re still trying for your first child.

Comedy ? I don?t think I?m going to be able to make it tomorrow either. I hope you all decide to do it again some time in the new year as I really want to meet you all!

Free ? Sorry I still haven?t replied to your pm from last week. Yes, it is a pain doing an MA at the moment. I only decided to do it because I was fed up with focussing on all the MCs and wanted to do something for myself. The first few weeks of pregnancy really took it out of me this time and it made it really hard to keep up with the work and got behind. Not that I?m complaining of course (well, obviously I am but you know what I mean) ? I?m very happy to be pregnant.

I definitely found that symptoms ebbed and flowed a bit in the first trimester so try not to panic too much (Ha! Easy to say, I know) if you sometimes don?t feel pregnant.

Hi everyone

Thank-you for the lovely welcome - and you all clarified what I already knew really, need to get the NK cells test done.

I have also emailed Prof Q about the possibility of being prescribed steroids without doing the test - I probably wouldn't go down this route, but just interested to see if its possible.

Am going to load up on the Vit D3 pills tomorrow - am taking Sanotogen Pregnancy/conception vits which just have Vit D in.

I still havn't got to grips with everyone and where they're up to but will be reading and keeping up from now on.

Just wanted to say great news iggi - I remember you from when I popped in on one of the old threads. So glad this one is working out for you xx

And free - how many weeks are you now? With my successful pregnancies my symptoms didn't kick in properly until 7ish weeks, and as snoopy says the steroids are well known for masking symptoms.

xxx

YEY Iggi woo hoo

And welcome blue you've had a hard time Hunni but we're the ladies to talk to !! Hope u can find some help and comfort here xxx

Sorry ladies for the radio silence, have had some bug and bed bound and feeling very sorry for myself. Hadn't logged in since Sat morning so apologies I haven't completely caught up :(

Choccy & Mr Choccy I am so very sorry for your loss. Your strength is really an inspiration x Am glad you are back too Scooter. Am gutted this has happened to you both :(. Life is so bloody unfair.

Ari - sorry you are going through this too and things are not looking good. Sending you lots of hugs.

Sue I feel left out on the fur coat trend that is in our midst :) Will look out for 3 furry coats when I arrive tmrw.

Free - that is great about your scan!! Stay strong and as positive as one can in these circumstances.

Iggi Well done on your scan today and your risk results. We got ours back and they were good too. We just need our private scan next Tues to be good and we might breathe a bit easier. I will be 15 weeks by then hopefully.

Duggs - Does said butler look after hormonal ladies feeling sorry for themselves in the cocoon house. Could do with someone cooking me dinner and there there'ing me.

Welcome to the new ladies Blue, Lemon and anyone else I have missed.

DH cooking me dinner as cried like a big girl when he got home saying I can't function and need someone to look after me like a loony. He is a good boy! x

Looking forward to meeting those who can make it tomorrow.

choccy don't think I had a moment over the weekend to log on and say how very sorry I am about your news. I found being on pred kind of eased the massive hormone crash - hope it helps you too.

free - you were asking for hopeful stories - I lost pregnancy symptoms with DS at around 6 weeks and from then on constantly kept on forgetting I was pregnant until I was about 32 weeks and started waddling a bit (he was a non moving baby). Hang in there!!

iggi fantastic news!!

Saw mr s today who said that my nk cells were still high after mc on treatment so am being moved onto the 40mg and intralipid regime - I think that also happened to someone else? Hello moonface. You'll see tomorrow night I am round cheeked and dimpled enough already!

Welcome blue. hi to everyone else on tonight, sorry to rush off. Dh has just made a rare appearance at home so had better say hello to him.

Looking fwd to tomorrow night

X-posted Coconutfeet - that is interesting about the lady who lost a little boy at 30 wks - poor thing, my heart goes out to her. Yes, if you could check with her that would be great.

Hopeful and Ari I asked the pharmacist in Boots and they told me they don't sell Vit D3 at the strength of 25ug as it's quite specialist. It is apparently different to the Vitamin D tablets that you can buy - maybe check with NLC as I was told to take that strength but it might be different to you.

Kittens yes we certainly do have a good laugh when we go out but then I am constantly being a boring teetotaller since the whole miscarriage thing. I can't wait for the time when I can finally let me hair down once I have a baby and have a good knees up!

Snoopy glad you can make Saturday. Do you know where it is we are meeting Duggs?

Comedy can you make it too?

Ladies, wish I could catch up with you all tomorrow too so have some lovely furry cuddles for me!

Ari these are the ones I get from Holland & Barrett

www.hollandandbarrett.com/pages/product_detail.asp?pid=826&prodid=886&cid=163&sid=0

Gosh, I can't decide which of my furry coats to wear tomorrow!

Comedy missed your post saying you can make it for our out of town meet up this Saturday (10th) so ignore my one above!

If anyone else can make it, Duggs, Snoopy, Comedy and myself are meeting at 2.30pm at The Royal Oak pub in Farnham Common (Beaconsfield Road, Farnham Common, Slough, Berkshire, SL2 3HS Tel: 01753 257 473). Message me if you can come as I will mail you my mobile number. We should also try and arrange another one for us all to get to in the New Year as I would like to meet all the London based ladies too.

Free as you know I didnt even know I was pregnant with my DD until 8 weeks as no symptoms. As soon as I got to 9 weeks it was full on sickness and tiredness until around 14 weeks. In the 2nd trimester I kept forgetting I was pregnant as felt full of energy etc. I wasn't on any drugs then so the sickness wasn't masked. You would prob be feeling more pregnant without the preds so don't panic!!!

Been putting off doing the list as it meant moving choccy . But have had a bit of a rearrange because Scooter and Choccy haven't left the thread and are waiting to TTC again.

Monday 5th December
BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 26+2 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 21+0 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 18+0 next scan 14/12
Comedy - V High NKC - BFP cycle#2 ? 15+2 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 14+5 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -13+4 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 7+1 Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 6+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 6+4 Scan 8/12.

TTC
Waiting to test
Suemays - V High NKC TTC#2. OV 23 Nov, testing on 7th December, pred cycle no. 3
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec
eurochick - TTC#1 Awaiting NKC results/period due 12 Dec.
coleyoz - V High NKC. TTC #2 - Test 12 Dec

Waiting to ovulate
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2

WTTC
Hopefulfor2nd - High NKC = TTC in New Year
PQ77 - High NKC TTC #2 again from January (BFP cycle one but mc)
ScooterChaser - High NKC
ChoccyPud - V High NKC - TTC #1

Thanks digi sweet of you but it's ok. It is what it is. Nice work putting us into a whole new category - that's cool :)

Hmm That's odd sue since I also asked my Boots if they sold Vit D3 in 25mcg and they said yes - and have me the silver box I have. I specifically told them it had to be D3 .. now I'm wondering if I've been taking the wrong stuff :(. I'll get a different one .. does a lack of D3 cause MCs then? :(

Hi, sorry not caught up on the board. In terms of in laws knowing re my miscarriage yes they did. People who have not had a miscarriage have no idea what it is like. Had 30mins of how great their pregnancy was going how they had only just started and how great there life is. This is the same family that wanted me to go out for a celebratory meal (family occasion) the same day we had the funeral for my 20 week loss.

blue I think I know you from the 20 week loss board and the angel babies thread. In terms of what to do, I am quite similar in the fact had a 20 week loss where everything came back normal. I would still recommend having NK cells done. I would also recommend Mr Shehata. Have only seen him the one time. But he did listen and did make me feel like there is some hope. Something I have been lacking the past couple of days. I do think the NK cells typically cause first trimester loss but I think in case like ours you need to shift everything you can in your favour. I did not ask him if they do cause second trimester losses but knowing my history 8 week, 20 week and 6 week loss he did recommend testing for them.

Sorry did not get to read the rest of the board so hello everyone else

That's great news, iggy.

I have the D3 from Holland & Barrett too. I couldn't find it in Boots.

You got me wondering what it was for. A quick google brought up this:
autoimmunityresearch.org/transcripts/AR-Albert-VitD.pdf
which seems to suggest an autoimmune link from the headnote (which is all I have read so far). Interesting.

So is the London meeting still on for tomorrow? I'm not 100% sure I can make it but I am going to try. It would be lovely to meet some of my pred thread buddies. :)