TTC/ pregnancy on Prednisolone or similar

[freelancegirl]

I am not sure there are enough people here to start a thread but have been chatting on one on the pregnancy boards and was wondering if I could find any fellow ttc'ers on Prednisolone or similar?

I have just received a diagnosis of very high NK cells. It was a bit of a shock actually as it turns out I have some of the highest levels - 3.79 when anything over 1.8 is considered 'very high'.

Am trawling through Dr Beer's book and Dr Google and trying to found out more. I have been recommended 25mg prednisoline steroids for two weeks starting with ovulation, increasing to 40mg if/when BFP and then Intralipids Cyclogest too. I still have 13 days until I pop my first Pred.

There now just seem like so many hurdles - actually getting pregnant being the first one. I was prepared for high NK cells as I have high thyroid antibodies but it was shocking to be in the top 5% of people treated at the clinic. I am not sure if that gives me much less of a chance of being successful.

It would be great to hear from anyone else who is undergoing treatment and of course also if you've had successful treatment.

Morning,

Great news Digi-another great scan. Are you starting to feel a little bit more confident?

Georgie, really hope your scan today is equally reassuring. Everything crossed for you.

Freelance, sorry to hear you have got RSI-sounds painful-not what you need right now!!

Kittens-so sorry to hear about your mum-really hope you both get a bit of good news soon-life is so unfair sometimes.

All 2WW's wishing you all good luck.

Unfortunately its all over for me this time-started to bleed at 6wks. Glad that I didnt go for any scans, seems a bit easier and more natural this way. Think i may call it a day now, I have 3 lovely healthy children and have now had 5 early miscarriages in the last couple of years whilst trying for number 4. I get pregnant really easily but none seem to develop. Something has obviously changed in my body (apart from being older and more knackered!!).
I wish everyone loads of luck for their journey in trying to have their babies-it truely is worth it.

oh libby I'm so so sorry . I hope you're not in too much pain and you make a quick recovery. I completely understand why you would want to stop trying after so much heartache. Take care of yourself.

Oh Libby I'm so sorry. Massive hugs to you hunni. At least you have your Wonderful children to help you through it and it's totally understandable uve had enough heartache.

Bless u Hun, take care x

So sorry to hear you're going through this again libby . Look after yourself. x

Libby sorry to hear your sad news. I hope you ok and not in too much pain. Really sorry for you. I understand why you now want to stop trying and hope you other little ones help you through. xx

Thanks for your well wishes for tonight - I am so afraid I cant do anything today. Just waiting for hours to pass. I have left my diary free in case the worse happens and I really am trying to be positive but I have heard those words "Sorry there is no heartbeat" too many times. Eating, thats all i can do.

x

Keep eating georgie u will be grand be thinking of u hunni and got everything crossed for you, time is ur appt.? X

Its at 8pm tonight at Epsom. Im 8 weeks tomorrow so not sure if internal or external! Just had sandwich now its time for cake!

Thank you so much for all your kind messages. Pain not too bad at all just like a heavy period-guess because it was still v early. Managing to carry on as normal.
I am counting my blessings in that I already had children (sorry thats not meant to sound smug) before the miscarriages started.
Good luck to all, will keep reading hoping for good news from you all.

Hi all, just a quick break between filming so I thought I would catch up. Sorry to hear your news Libby, it's awful to have to go through as we know. It's lovely that you have three healthy children already and yes, maybe it is not worth putting yourself through all this again, but if you really wanted a fourth I can see how that might be difficult.

The left hand is still hurting and yes Digi I have a sneaking suspicion if might all be related. I think coming off the Pred has hit me harder than I thought. I sometimes think am fine but then do get moments of crushing tiredness and lapses in concentration. This morning I've really started being so clumsy, bumping into things and dropping things. That's also how get when period is due so hopefully, 4 weeks to the day if ERPC, it might not be far away.

Strangely I have also become rather disinterested in the whole baby thing, not sure why. Have returned to my pre first mc of the year self who is not thinking about babies etc. I guess when I start to TTC in November I might feel differently. Of course I really do want to get pregnant and have a baby as I want to have at least one child in the long run but I can see how people stop trying!

Good luck with scan georgie! Hope everyone else is well xx

libby - I am sorry :( I hope you are as comfortable as you can be xx
georgie I think at 8 weeks it will be external, and also I think you will be fine, but completely understand the mentalling. xx
free - You could be me with your thoughts on the whole baby thing. I really do want a baby, but at the moment, I am trying to move house, etc so have other things on my mind which is good I suppose.
digi hello upduffed lady xx :)

Went for a scan today as I asked my gp to refer me for lack of periods. I am due on today - she measured me and said it was a bit thin - 7mm but all ok otherwise. Now, I have looked at my last scan that was taken when I had AF and it measured 2.89 mm so a big difference, with this one being better I thought? And - I have had the tinniest bit of spotting so I hope AF is on her way. I also have accupuncture tonight too xx

Will check back in later to see scan results xx!

Good news - phew. Baby measured 7+4 and good heart beat of 150. I cried Mr S said everything looked good but as mentioned previously he is happy after 9 weeks. Bit longer yet. I will book another scan with him for 2 weeks time but have one already booked at EPU at East Surrey Hospital next Thurrsday.

Battery hope you enjoyed your accupuncture. x

Lovely news :) I bet you are so relieved! xx

I had a lovely accupuncture session - we talked about my last MMC and she asked me 'have you thought about being tested for natural killer cells?' I could have kissed her - then she asked about how high mine were and if I would be needing intralipids etc. This just confirms to me how good she really is !

Fantastic georgie!

And what an insightful acupuncturist you have battery!

Great to hear your news georgie. Nice to be hearing a few positive stories actually!

battery that must be heartening to have such a switched on acupuncturist. Where are you based? If I don't get lucky this month I may think about acupuncture for fertility after my break.

Actually, if I'm not pregnant this month it might be a blessing in disguise, along with my 2 month break being timely. Things with my mum's operation didn't go quite as hoped today. They had to leave a fair bit of what they now pretty much suspect is cancer behind as it was attached to her bowel and bladder, and are now planning to tackle it with chemo. Considering it grew an inch in a week I'm pretty scared and am planning to go over next week for a couple of weeks to give some support and spend some precious time with her. I suspect that will be the case, on and off, for a while. I have no idea yet exactly what we are dealing with but it's looking very scary. I do feel a bit like one of those attention seeking forum trolls with all the doom and gloom I've posted over the the course of the year about what's been going on with my life and family, but I only wish it was all made up! Sorry, I've probably been a bit hard work to listen to/read over the last couple of weeks (or maybe more).

kittens -I am sorry to hear your mums op did not go as well as expected. Don't worry about being doom and gloom - this is your life, and what is happening is crap at the moment. Does your mum live in another country or just a different part of this country? Sending my love to you xx

Oh - and I am in Lincolnshire xx

Congrats georgie Yey

I'm off to the docs today to see what they recommend for reducing my working hours, I'm exhausted all I do is work 12 hours a day and sleep the rest . My house is a complete bombsite and I just look at it and cry, I'm stressed at work as my boss is not support g me which is making my steroid withdrawal headaches unbearable and I'm an emotional wreck !!! To sum up imnot coping at all, constantly looking for reassurance that baby is ok and worrying that it's not

kittens I'm really sorry to hear about your mum. You do have an awful lot on your plate at the moment so maybe a two month break will help ease the pressure. And ditto what battery said, you can be as doom and gloom as you like, we're here for the downs as well as the ups.

Xposts stogan sounds like you need some time off. Could you get a cleaner in temporarily to sort the house out? And maybe go away for the weekend? When's your next scan?

I ha e a cleaner but she only comes once every 2 weeks. Next scAn is next we'd with mr s so I'm thinking alot of my anxiety is worry for that as he will hopefully sign me off but I can't help thinking there will Ne no heartbeat, so angry with myself why can't i stay positive

stogan you need some time off. That is what you need to say to your GP. End of. This baby is more important than work, or house work. If he won't sign you off - then self certify for a few days, and balls to everything else. Don't beat yourself up about worrying - I am worried already for my baby - and I am not even pregnant yet!

Quickie update - I had accupuncture last night and told her I was really concerned as I had no period and am 13 weeks post ERPC, so she saID she could help me with that - and I really did feel the needles last night. 2 hours later I started to spot, and this morning, full on AF. Relief is not the word. I am so pleased. xx That is the only time I will welcome AF!!

Stogan, I agree, you need to give yourself a break. I think you can self certify for 7 days can't you? And then get your GP to sign you off if necessary. Work needs to be your second priority right now.

battery, that's amazing! I can imagine it's a massive relief to get your body back on track. I am in London by the way, and my mum lives in France.

Thanks for all your kind wishes. I am in a bit of a state at the moment and the only thing keeping me normal is the fact that I am now trying to organise cover for the work that I am going to need to cancel, which is quite stressful in itself. I need to call my mum back up but I'm trying to get myself into a place where I don't fall to pieces on the phone again as she needs me to be brave for her.

Kittens so sorry to hear about your mum's operation and now needing chemo. You have indeed had an awful year. Don't think for one moment anyone minds you talking about it! In a way that is why we are all here, because as well as RL kicking us in the head sometimes we have the whole TTC, pregnancy, autoimmune shit kicking is in the head too.

Stogan it sounds like you are experiencing a head kicking week too! I can echo the others in saying dont worry about the hosework etc. Most of the time I live in a real mess. I would love not to as it makes me feel so much better when the house is lovely and tidy and welcoming, but obviously this draw is not enough to get me to tidy up after myself. I too am doing 12 hour days and tbh, when I get home there's much nicer things to be doing than tidying. I have a cleaner here as we speak! Am hiding in the bedroom having been out for breakfast with DH. As soon as I have just one flat (we have two at the mo but one is selling) she will be coming to clean every week.

Battery that is so brilliant about your af!! It must be such a relief. Wonder if the acupuncture worked. I need to get my arse back to acupuncture too, just been too busy to remember.

Had a lovely night out with an old friend last night, shared a bottle of gorgeous champagne (she is loaded and doesn't drink anything else :) ) over dinner and then a cocktail and had a good chat. She is in her mid 50s and child-free, lives and works all over the world and gets paid fortunes and is really interesting to chat to. It's a gorgeous day today so am taking my work down to Brighton for the weekend. As we are moving out of that flat we have no interent connection down there so I guess that will save my aching hands for work only and no random mnetting and dr googling!

Have a good weekend everyone. Be positive xxx

Thanks ladies, I just hate not finishing stuff and thinking that some other poor soul will have to do my work. Spoke to HR today and they suggested reducing my hours for a few weeks to see how I get on, think I'm up for it but going to docs at 4 so will see what he says and then discuss with OH. thanks again xx

Hello.
Sorry for the problems with your mum Kittens, is so hard - especially when you're not near at hand.
Yea for the good scans and the arrival of a wanted AF!
Well - today I have been offered the job I was interviewing for, and followed this up by poas and getting a bfp! Day 12 po today, but it came up really fast.
This is too much for me to process!

Libby I have just read your news, so sorry
It would be much easier for you if you'd had the mc first, and then your dc, as you'd get your "happy ending" iyswim. Hope you get lots of time to feel better and support.