Hi All,
As my name suggests, I've been inspired by all your stories to get more proactive in my treatment and to try and get to the bottom of this LPD business once and for all! So I thought I'd start by sharing my story:
I turned 41 in January and am extremely fortunate to have a 19-month old who was conceived very easily when I was almost 39. Back then, my cycles were textbook and I only needed to use EWCM to know when to do the deed! I've been TTC #2 since AF returned a year ago without success. I never have EWCM, just the wet, transparent type (2nd best type apparently, but still), which I have for most of my follicular phase, so it doesn't help pinpoint ovulation. I always ovulate (as determined by positive OPKs and subsequent temp shift), BUT my luteal phase always has a few low temps (sometimes below the coverline and often thereabouts) as well as spotting (not just brown, but fresh blood). This can all start as early as 3 dpo (!) Admittedly, my total luteal phase, until full flow, is reasonable, at 11-14 days, but the spotting and especially the below coverline temps before that mean that I already know I'm 'out' for that cycle for most of the luteal phase and can never get my hopes up or get to the stage of taking a pregnancy test.
As for diagnosis / treatment, I had to be TTC for 6 months to be seen. Then I had day 3 blood work, which was fine (don't know actual results) and normal thyroid hormone level (again, no numbers). They did ultrasound follicle tracing twice and everything looked fine, including state of uterus. I even had two follicles on of those months, not that this helped with my LPD symptoms (theory is that two corpus lutea should produce twice as much progesterone). They prescribed 3 months' of oral progesterone and told me to come back if still not pregnant or if no change in symptoms. I gave it two months and there was no change. Still got post-o temp dips and 4/5 days of spotting (after which I stopped the progesterone and then full flow soon followed). So am not happy to continue for another month, especially after what I've read on here about it being better to go straight to Clomid or perhaps even IVF. Besides, research shows that progesterone supplements do not increase pregnancy rates in women with LPD who aren't having IVF. I have appointment on Monday to discuss next step so am arming myself with info from your good selves to make sure I don't get fobbed off.
The stuff I've tried to reduce the LPD symptoms are Vitamin B6, agnus castus (tried it for one month, but seemed to make things worse), Vitamin C, acupuncture (only had it twice though) and yoga. And of course preconception multivitamin. We also use preseed in case the lack of EWCM was the problem. However, nothing has helped, perhaps because my problem is low temps and spotting rather than a short luteal phase and most of those vitamins showed an increase in LP length. I should add that sometimes my temp stays high for quite a few days after menses starts, which the acupuncturist said was even worse than the post-o dips (though I don't know why). Interesting what was said in earlier post about consultant looking at ultrasound and then saying acupuncture not likely to be useful. Could this be because acupuncture supposedly increases blood flow to uterus, so if uterus already looks good with a thick lining (as it also did for me), acupuncture may not be useful? Just a guess.
Hope this info is helpful to some of you. FYI, the paper that says progesterone supplements are not helpful for LPD (unless as part of IVF) is from the American Society for Reproductive Medicine ('The Clinical Relevance of Luteal Phase Deficiency'). It also says that day 21 proegesterone level tests and endometrial biopsy tests are not useful in diagnosing LPD, so I don't mind that I didn't get those and won't push for them. However, it also says that BBT charting is unreliable, which I don't agree with. Trouble is you can't ensure that people are using a good thermometer, doing it the same time each day and so on. If you do it right, it tells you loads. Good luck to all of you.