Hello lovely people.
I'm really desperate, I was admitted to A&E in England on Saturday as the pain was so bad. Jaw/face/neck/shoulders. They gave me a steroid and told me to get in touch with my GP on Tuesday.
I have tried most of the drugs years ago and didn't really stick to them that long as the side effects fro me were awful. I have two children and trying to keep my job.
I just don't know what to do. I can't stop crying from the pain, and I now feel really anxious, with terrible tinnitus.
Has anyone had any experience with nortryptyine please? Which is what I think they'll suggest.
I'm really asthmatic so can't take propranolol.
Thank you :)
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Chronic pain
chronic migraine / desperate / nortriptyline
daisyji · 19/09/2022 08:02
GlamGiraffe · 19/09/2022 18:37
I am seen by a neurologist who only deals with severe migraine. I have been instructed to start taking the following supplements. There is apparently a considerable amount of clinical evidence that these do act as preventative for chronic migraine sufferers and even if uou do subsequently get headaches, the severity should be less severe and duration shorter.
vitamin B2 400mg a day
Magnesium 400-600mg a day
Feverfew 1 tablet a day.
Apparently they take 3 months for peak efficacy but do start to work before that. I was surprised to be told this by a top hospital.
Topirimate a preventative is also worth trying.
I've found eleytriptan, one of the newer generation of triptans to be the only one that works.
I've also been told to ensure never to rake painkillers fir more than 2 days in any month for headaches as they cause rebound headaches.
With EDS with might be worth seeing a really good osteopath (not chiropractor as they mobilise even over mobile joints) to have your neck checked as this can give time to migraines too.
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ImHavingAnOldFriendForDinner · 01/01/2023 22:05
@daisyji sorry haven't read all of the other replies but is there any chance it could be a problem with your jaw (TMJ disorder or similar)? I have TMJ disorder and when it flares up the pain can be horrendous, it goes from the top of my head to my shoulders and I could seriously cut off my head.
I've had botox twice now in my jaw and it has really helped to loosen things up plus when it was bad before Christmas I had some physio which worked really well. Apologies if I'm way off and giving pointless advice.
I also take Nortriptyline for IBS and abdominal pain and it really helps with the pain.
Fingers crossed you find something that helps.
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