Chronic Pain- Daily chat drop in thread #2 All welcome

[Akire]

Hi all well we filled up the last one and now we have our newish chronic pain boards.

This thread is for anyone who has days , weeks, months at time when get chronic pain flair or lives in pain constantly. There are so many conditions that have pain and often limited understand of how it feels to be living through it. All welcome jump in and feel supported

He came
He didn’t have the parts
He didn’t know what’s going on

He’s going try raise as emergency as wheel could fall off anytime. Like I’ve saying all along and last guy said no it be fine.
He told office what parts I need.

The same parts that told me 9th Aug they had ordered and only came in this Monday !
Waiting see if can fit me in as emergency today. But if someone has chair complete stop they obvious have go those first.

Not at all surprised in the slightest! He said I should complain.. what they going do gift wrapping me next new wheel?

Arghhhhhhhhhhhhhhhb

@MedusasBadHairDay positive steps for you. Hope it stays at that level with walking distance

@Akire how frustrating!

I’m not surprised in the least!

@Akire, that’s shit, I’m really sorry. Hope they can sort it fast.

Thanks. Just want go to bed now mind! My bet is at some point tomorrow when the finally awaited sky tv will be installed. Had no Tv for 2months as signal just snow

Finally news !

Friend rang up gave hell said maybe do over weekend. Then said would come today and so they did! Front wheels fixed have check back wheel noise when go out tomorrow. Still waiting Tv man today another 8-5. But one thing off the list. party at mine all welcome!

@Akire that's something. I'll bring vodka to the party.

@Akire, hurrah!

So pleased for you @Akire hope you enjoy an outing tomorrow

Thanks everyone after Whole of August and tomorrow weeks of September it was long enough. Have popped out this morning and chair seems ok, felt anxious and sick but managed ok.

Sadly things didn’t go to well with getting Tv as sky man came and we don’t have a communial dish. No one had said we needed check this in the 7 weeks this has been on going. So goodness knows, suspect housing association decided not go to expense and unless lots of us want sign up they will say no. Even when sky man said they are pretty standard these days and he thought legal requirements. Given we can’t just pop one on our house same way someone living in house can. Should be allowed same
Options. But one less major job so progress.

Had headache last few weeks, could be weather or hormones or because all drugs. Not sure what’s going on. Not awful but because many horrific migraines even small niggle makes mind go in over drive panic. Hope everyone day started ok

I have a little win to share 🥰

I have had to wear old lady Velcro shoes since January as the motor neuropathy caused extreme foot drop and ankle weakness along with the pain. It meant I couldn't wear any of my nice boots or trainers as I couldn't manoeuvre my feet into them. I think I threw them at a wall in tears at one point 😂

So yesterday I tried to get my lovely sketchers on as I have been seeing an improvement in ankle movement! And I bloody well got them on!!!

No more old lady shoes! And no more teens laughing at me and refusing to be seen with me in public in my "granny shoes"!

That’s great although a live a Velcro sketchers lol great to wear what makes you feel good.

@cricketmum84 amazing

Yep! I really hated the Velcro shoes!!

Oh god I only have three pairs of shoes: sliders, velcro "men's" sandals, and "comfortable" trainers.

I'm very untrendy.

@SpindleWhorl

Oh god I only have three pairs of shoes: sliders, velcro "men's" sandals, and "comfortable" trainers.

I'm very untrendy.

I used to live in ballet pumps but I've lost so much feeling in my feet (even though they hurt which is weird) they just fall off as soon as I take a step. I can't wear sandals or sliders in summer as I can't do that natural toe grip thing you need to do as I can't move my toes.

Can't wait to try boots out when it gets a bit colder!!

still no sign of my medication. im defeated. im in so much pain i cant think straight.

@OneNightTimeMenaceStrikesBack

still no sign of my medication. im defeated. im in so much pain i cant think straight.

How’s think now?

I’ve had one those day where few like going pass out with fatigue and can hardly breath. But can’t sleep. Feels very long slog just get to bedtime. Even laying in bed all day feels like climbing a mountain. Sometimes fatigue hurts so much almost like a constant pain

I'm so sorry, @OneNightTimeMenaceStrikesBack. I wish there was something, anything, that we all could do for you.

ive resorted to weed to be very truthful. I dont normally partake but at this point id eat horse shit if soemone said it would help with the pain

Is it A & E level yet? I know we all avoid like plague but I’ve had times with migraines when if I could raised my head enough I would thrown myself out my tower block just to end it all. Ambulance crew usually have decent pain relief that works straight away enough try make a plan about what you want to do next.

ive spoken to out of hours, the problem is my meds im missing are controlled drugs so they cant pescribe them at A&E. i could go in for immediate relief but id be int he same position tomorrow and theres people who need a&e more than me right now. like i said, ive got soem weed which has takent he edge off so i can think at least. itll have to do even though it was sheer desperation that led me to it

So sorry you are struggling @OneNightTimeMenaceStrikesBack don't blame you for the weed at all! My high strength CBD oil helps so much.

Really hope you manage to get it sorted tomorrow x

After my steroid jab the other day my back isn't too bad. My hip keeps popping though.
one is stoned, she'll be fine