CHRONIC PAIN - share your moans and achievements

[doadeer]

Hello,

This thread is to share the day to day... The moans, rants, fears, anger of day to day living with pain... And let's be positive where we can too... Little or big achievements.

I've had a tough day with my grumpy toddler who is obsessed with biting, he made my shoulder bleed today 😢

On the plus side, had a great pilates class and managed some tricky stuff despite feeling exhausted... I couldn't have done it unless my teacher was on Zoom telling me to hold it!

Just me with strength to moan today
Hoping you all have much better and more exciting things to do than be on MN!

Sorry I've been quiet. @Akire I'm so sorry for you, how has today been?

Can we do anything for you? TV, book recommendations? Funny memes? 💐

My back is burning.. Managed an exciting trip to sainsburys which then needed a nap after 🙄 I find the mental side of dealing with this such a challenge. But I stay busy with work... I think without it I would slump into a depression

I'm having a bad day today. I work with the general public, and someone commented negatively on my scar - I had wrist surgery last year so I have a large scar on my hand/arm and it's still fairly visible but it's obviously a scar and not an open wound. He said it looked awful and now I feel like everyone notices and it's judging me for it.

Commiserations to those who are having a bad time. I'm paying for my productive weekend though I think it's made worse by some post vaccine symptoms and the fact that the weather has turned horrible here. The biggest thing I've achieved today is typing up about half the minutes of a meeting that I really should have done last week. Still, tomorrow is another day.

Wow @DuckWithOneWing that's so vile and insensitive what a complete bone head.

If I saw a scar I would think that person was immensely brave and had been through something tough.

Akire Migraines are so difficult. Hope you're feeling better now.

doadeer The mental side is exhausting. I always think I'm coming to terms with my diagnosis and what my body is doing, and then I have a terrible day and it all goes back to Too Hard. Like today. I'm glad you've got something else to focus on.

Duck Most people would neither comment nor think negatively about a scar. He was a prat.

MrsA Definitely re tomorrow being another day. Hope you have a restful evening and feel more the thing tomorrow.

I have had a Bad Day. Just completely exhausted despite getting (apparently) a decent amount of sleep. And sore. So I probably am paying for yesterday.

But my DD1 has really stepped up and is putting her sisters to bed tonight to help out (they think it's all very exciting) as DH has to run an errand for his Mum. She's only 9, and we've had a difficult few years as we're still getting over my awful rages from when I had PND after DD3 was born 4 years ago. She is a very loving child, it just gets hidden behind a lot of anger. It's so wonderful to see her gentle side today.

There you are in the migraine scale was only 5 but enough to put the fear into you because I know what can be like.

Been starving as well so going be naughty after trying be good. But I know I crave a big carb high after bad head and body much need whatever it is.

I had email of MN thanking me for linking the first thread to this one (like two weeks ago) and did say watching how busy we are soo that looks promising. Wasn’t expecting them to still be keeping an eye, so are keeping their word.

@DuckWithOneWing there are always stupid people about. I’m always getting upset when people react to my obvious disability. It is hurtful and I find play on my mind for days.

Even if he thought the scar was ugly (I’m
Sure it’s not) why would you need to know! No one gets through life with physical or mental scars. Bet if you were a 6 foot 6 bloke he have a different say on the matter.

Soft hugs to all (no social distance needed as virtual), today was exhaustion central but I got a spurt of life and my first jab this evening.

I got a call from the GP surgery at 5.05pm to say that they had leftovers and would I like it. I burst into life and literally ran to the surgery, I got the jab before 5.20pm so it was very last minute.

I'm feeling the after effects of my burst in energy but ok from the jab so far. My legs are in spasms and when I got there I was shaking loads as the start of the effects of overdoing it, Thankfully the GP recognised that was what was causing it as has seen it happen before, friend who I am bubbled with picked me up outside the surgery and dropped me off at my home where as I got out of the car, my legs gave way and I faceplanted the ground, I now have a cut chin, scraped knees and a sore wrist from trying to save myself. So I am now resting this evening and taking it very easy.

Oh frogs that’s horrible I’m glad your friend could pick you up though.

Duck that’s so mean :(

Not done much today other than a zoom workshop which was pretty pointless. Just need to look at my universal credit account in preparation for the phone call tomorrow - quite anxious

I keep getting nausea with headaches atm especially in the evenings, it’s driving me nuts. 🤬🤢

Oh no frogs. Heal fast.

@NotanotherboxofFrogs oh no poor you- rest up and feel better soon.

@DuckWithOneWing that is so unkind for that person to say that to you.

I started some antibiotics today for a urine infection I have all the same symptoms as the last one which landed me in hospital a few weeks ago - not sure it actually went away. Doctor I saw last week who diagnosed Mcas said that I likely have embedded infection in the bladder so I’m waiting for his tests to come back. But in the meantime been feeling unbelievably exhausted and low and tried the now starting to feel better again. Urine infections do make me feel so unwell.

Hello everyone, hoping I can join. I have endometriosis (had two surgeries), widespread chronic pain (possibly fibro but may just be the endo), chronic fatigue and IBS, plus anxiety, depression and panic attacks/agoraphobia related to the physical symptoms. I've been having a bad flare but tentatively TTC. I'm 35, I would only like one child but I'm scared even that's too much with my everyday pain and fatigue. I have a lot of support from my partner and mother, and they would definitely help (no chance of my DH not pulling his weight) but I'm frightened still.

Can any chronically ill mothers share their experiences and achievements? I made a post on the Conception board and was kindly directed to this thread, so I hope nobody minds.

I rang friend when I was waiting for the jab as I knew that I wouldn't be able to get back to the house by myself, so now tonight I have been in a+e since 9pm.

As my wrist was massively swollen and very painful and when I tried to move it I could feel crepetis, x-ray says it's broken (Colles fracture) so it's splinted until the swelling goes down a bit and then they can put a cast on.

I've already ordered a cast cover on Amazon for the shower and a pair of long knitting needles. Can you tell I have had this same injury before, same wrist .. Twice!!

Have an appointment for review on Friday and I'm just home and into bed, lovely friend drove me to a+e and went to her brothers as she is a part time carer for him as he has severe epilepsy so needs someone in the house each night, His siblings all take a turn, so she went to bed there for a couple of hours and came back and picked me up. She is back with him on Wednesday night but it saved a 60 miles trip of going home and coming back to pick me up and home again as he is only 2 miles from the hospital.

@doadeer hoping for less burny back in the days ahead and snacks from Sainsburys

@DuckWithOneWing some people are complete fctards, I have visible scarring from SH and some idiots just don't have a clue. Remember that while your scar will heal, stupid cant be fixed so you are definitely ahead of him in that regard

@SingToTheSky hope U C. Phone call goes well

@MrsAvocet Aaagh to the idea of having to type up a load of minutes. How about dictating software and then correct any odd bits.

@Namechange600 everything crossed for you 're antibiotics, it must be difficult to get your head around MCAS as mast cells can react to so many things.

@minipilling nice to meet you on the thread, sorry that you have reasons to be here (painwise). I won't comment on your question as I don't have any children and have never ttc, I went the complete opposite (barriers, condoms, avoidance, implant) but I hope someone more knowledgable will be able to help

I had covid jab yesterday so bad night. Would have been manageable with temp and shaking but then whole body started to hurt. Could managed one or other but both seems
Very unfair. So it getting out of bed today apart from bathroom

@minipilling

Hello everyone, hoping I can join. I have endometriosis (had two surgeries), widespread chronic pain (possibly fibro but may just be the endo), chronic fatigue and IBS, plus anxiety, depression and panic attacks/agoraphobia related to the physical symptoms. I've been having a bad flare but tentatively TTC. I'm 35, I would only like one child but I'm scared even that's too much with my everyday pain and fatigue. I have a lot of support from my partner and mother, and they would definitely help (no chance of my DH not pulling his weight) but I'm frightened still.

Can any chronically ill mothers share their experiences and achievements? I made a post on the Conception board and was kindly directed to this thread, so I hope nobody minds.

Hi you are very welcome sorry you need to be here. No kids here just been to ill and suppose in hindsight things would have been very difficult.

Having a support system like your mum would help guess no one knows until baby is here. If you have a very easy going baby it’s much different from one you can’t put down for 12m. We have parents here that struggle with babies and toddlers and chronic pain, but it’s very persona thing. Because once they are here you can’t imagine life without them.

@SingToTheSky

Exactly. And when pain/fatigue is the main symptom people don’t believe you anyway because it’s so subjective. It’s easy for people who don’t experience it to just think we can’t possibly be SO tired or achy

This totally. My very lovely sister was asking me why I am so tired and need naps. When it is only my nerves that are damaged/dead.

I was trying to explain, that every step I take, is like walking though bust high mud. So the limited steps I take, take a tremendous amount of energy from me. Plus all the pills effect my sleep and my memory too.

To be honest, I don't really understand it myself. But I know I need to pace myself to avoid burning out at 10am!

How is everyone else’s side effects from
Jab?

I had my vaccine on Saturday. Felt fine til Sunday when I started to feel very tired, achy and a bit nauseous. Monday was fairly grim, yesterday a bit better and apart from a sore arm I'm pretty much back to normal now.
Which is just as well as I have an all day First Aid course tomorrow. I'm dreading that to be honest as I'm going to have to pretend to be "normal" all day in order to pass. There's no adjustments for disabilities etc because they say that if you are not fit enough to do the course you're not fit enough to be a first aider. I think that's ridiculous. For context, I need the qualification because I volunteer with a kids' sports club for one hour per week, occasionally 2. I can generally cope fine with that, whereas this course involves an hour's drive each way and 8 hours of tuition - just a bit different! 🙄

They can make allowances for first aid I know someone who used to be instructor and say if you were a wheelchair user as long as you could pass as long as you could instruct someone on how to do CPR or whatever it is called these days. Particular in sports clubs where there are plenty of adults around. First rule of first aid is you don’t put yourself at risk.

But I know what you mean it’s hard to keep asking for adjustments and you are better off having an oops slept on my neck funny hard to bend get off card. Than this hurts all the time no sympathy.

It might be just the particular organisation that I'm going to Akire but the booking form was pretty clear on this point. Unfortunately I dont have much choice though as a lot of courses are cancelled because of Covid. My current certficate expires soon and I can't keep my coaching licence if I'm not up to date with first aid so I've just got to suck it up basically. I think it's wrong though.

I had the Pfizer on 27th Feb, felt really weak and tired since tbh and it felt different from a usual flare. It felt more like I did after I had a virus last March (which I do think was covid although obviously wasn’t tested so can’t guarantee). Mind you I had a cold last week so that has probably contributed to it lasting this long. Keep getting nausea/headaches too but just enough to be annoying not debilitating.

Shattered from zoom training this morning, made me a bit anxious so I’m all tensed up.

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