has anyone had any dealing with ALKALINE REFLUX?

[mad4myboys]

having alot ofproblems with 9 month old ds2.Before i waffle on (i didnt get any response last time i asked around)just wondering if anyone knows anything about it or knows anyone with it?

maybe they suspect a gall bladder or digestive problem ...dont read anything into it...just ask lots of questions.

well he def has a digestive problem, its just working out what it is.. is liver disease a general term?

liver is linked to gall bladder via ducts,which in turn can affect digetion. You said he had alkaline reflux, and the only alkaline around that area is bile which is produced in the liver.
are his liver enzymes ok or havent they said

this specialist THINKS he has alkaline reflux (as apposed to crap old paed who has said all along he has acid reflux) hence having this new full ph study (after the cameras) to check for alkaline. It is called something like a neo test? We've been waiting for kings to get the new equipment. Even my gp had never heard of it!

they havent talked about enzymes or anything to us. When i spoke to the specialist on the phone last i asked about digestive enzymes (from earlier in the thread) he said that is why he will be taking stool sample. The cameras wont go near the liver though will they? Just through tummy. Are they likely to miss there being something wrong with the liver? Or if the ph study shows alkaline would they then want him back in for surgery? I have no idea how alkaline reflux is treated

is it just a gastroscopy he is having? No, try not to worry they wont miss anything wrong with his liver ,if indeed there is anything wrong with it. Anythings like that will show up with the blood tests and liver enzymes.

I feel so sorry for you,you sound so frightened ((hug))

the camera wont go near the liver,it goes down the oesophagus ,past the common bile and pancreatic ducts to the stomach.So that they can get a full picture of whats going on. He will be fine and it needs to be done, Some drs go further into the duodenum.

so they are going in at both ends. That is good and then they can get a full picture. Glad he is going to a specialist hospital with new techniques. At least things are moving quickly for you.
I know it must be alot to cope with for you and the little guy. Hope DP is supporting you throughout

thanks. well in the beginning everyone including dh thought i was being abit nurotic as i was insistent that there was something wrong and everyone else was like, no he's fine your just worrying. However last few mopnths he now agrees as he hasnt improved. Im scared,l not because of the hospital, scared whatever is wrong with him will be missed again!

with regards to the camera, all iknow is they are going in both ends. The specialist said a 'full colonoscopy'. He said when ds1 supposed had this done when he was about 4/5 months old that it wasnt done thoroughly..?

When they go down with the camera, they will probably also take microscopic samples en-route, maybe they didn't take enough/any first time round? I think microscopic analysis is just as important as macro-view.

Not sure they allow the parent to be there at the procedure, but worth asking? Then you/dh would have 1st hand knowledge. I recently had a camera down my lungs and it was interesting to watch how they go about it and they tilted the screen my way.

You know, both acid & alkaline dx could be right; he may have started with acid which could have caused damage to the valve aly was talking about and then lead to allowing alkaline (alkali enzymes are excreted lower down than acid).

You will have answers soon!
PS. You could get some Rescue Remedy (for you) if you feel very on the edge; that way you can keep a clear head and take it all in.

mad4myboys - hello - Glad you seem like you're getting somewhere at last. Hope it goes well on Thursday and you finally get some answers.

saggar...are you a name changer??

nightcat,what will they look for when they go up the colon? I have asked to go in before and wasnt allowed although as a diff hosp maybe a diff policy? Anyway, it will be my dh with him,im gong to have to stay with ds1 at home. Dh better with ds2 when in hosp as im quite hospital phobic (silly i know) and i just break down when they start invading ds2 with all the medic stuff and it freaks ds2 out so as we are so far away it is a good time to spend some quality time with ds1 who i hardly get to do this with since ds2 came along BECAUSE of all this illness!

Tis my usual name but I was probably in disguise on some of your other threads

you've intrigued me now! Come on then, enlighten me! I am SOOOOOOOOOOO greatful for the support ive had on here from a handful of MNers for the last 10 months that you deserve some too!

To the best of my non-medical knowledge, I think they would be looking for any structural issues and taking samples in case there is any microscopic damage to the absorptive surface of the gut. There are not many enzymes in lower parts of digestive track as it would be mainly absorption. I think the main problem is further up, but they will want to be thorough to to make sure that nothing is missed.
Tough on the little guy, lots of TLC to all of you.

thanks. Sorry im asking so many questions. I have a list to take with me but im worrying in the mean time you know?He also now has a very bad cold which isnt helping, very whiney poor thing

just thought id update, meds have been changed from docusate to sennakot and having a few probs getting exact doseage for him as he either wont poo or has the runs.

the biopsy results came back all clear....just waiting for the ph study...im praying he does have alkaline reflux in a way as im really at my wits end with it. Trying to get him to eat is a nightmare.

hi guys, have been to evalina today. His ph study shows acid aswell as alkaline reflux. Doc said that is 'quite normal at this age'. He didnt seem concerned about it. Was toldto double the daily dose of omperazole so he has same dose at night aswell as in the morning....

He also said the constipation is 'functional' and that he will grow out of it as there is nothing wrong to cause it.

Hi mad4myboys. I am reading this thread with great interest as I am going through a similar situation with my ds2. I love him dearly but its been a nightmare. He is such a lovely boy but we constantly seem to be moving from one thing to the next and sleep.... well what is that?
How are you getting on with the double dose of Losec? Ds had his doubled last time we went to the specialist and like everything it helped for a while but doesn't seem to last.
We have not gone down the camera route yet but we have an appointment on wednesday and I think that is the next step. What gets me is he seems to be really good for a few days, even weeks, and then we seem to take a huge step backwards. At the moment he is refusing the neocate and vomiting if he does take some. He has some dairy by mistake on Thursday (long story but the grandparents were crying at their mistake) and it turned him into exorcist baby from which he hasn't recovered and I am supposed to give him egg for the first time before wed but can't bring myself to do it.
Sorry I am babbling but just wanted to say you are not alone and not many people understand, as I too had to fight to get others to agree something was wromg.
Good luck with your ds.

hi gumps, today is first day of double doseage so nothing to report yet. It was reassuring that there is nothing 'structually' wrong with ds2 but its all now a case of wait till he grows out of it. Iknow he WILL grow out of reflux as ds1 grew out of it when he turned 1.

He will now be on 1 tablet (10 mls) morning and same in the eveing. We are currently trying to find best doseage of sennakot for him and will be giving him some at night aswell soon.

the ph study that showed alkaline aswell as acid showed that his night wakings were down to the reflux so at least i know he isnt doing it to wind me up!

Does your ds have tummy probs aswell as reflux? I was told one of the best ways to introduce egg is to make a cake with it in...

Thats interesting Mad as ds2 only on 5mls twice a day. How much does your ds weigh? my ds2 has just hit 20lb 8oz at 10 months so I was wondering if it was weight related and his dosage needed to be increased. Are you on ranitidene and dom peridone too? Double dosage seemed to help here in that ds alwasy struggled with first milk feed of the day. It was the only thing he ever really vomited but the losec seems to help keep it down.
We are on neocate too as think possible link between reflux and milk intolerance. Unfortunately since dairy incident ds is refusing milk and if does take it seems to vomit. It might just be a coincidence and maybe he has a bug and it wasn't a reaction to the dairy, but it is random that he just vomits the milk.
In terms of diagnosis he has been diagnosed with silent reflux. We have had a barium meal which showed def refluxing. The specialist said if there wasn't much improvement this time they would move things on a bit. His poo has never been normal. they are usually like little stones and at the worst I have used lactolose but with not much effect. However he then has random days of horrific poos too. Never mucus though.
How do you deal with the night wakings? When ds was small we were told to feed him when he woke as he was taking so little during the day. He now will not settle without a feed and we have tried everything, and I mean everything. On a goo dnight he wakes once for a feed between 2 and 4 and then is up around 5. Some nights he settles well and other he screams himself to sleep. It seems to make no difference as to whether I pick him up or not which is one of the hardest things as it makes me feel like a failure that I can't soothe my own baby. the number of people who have said just bring him to bed with you and I would have loved to do that but he will never settle.
In spit of this we are thinking of no 3! Is there any study into the chances of the next baby having reflux and anything I can do to prevent it? Ds1 was angel baby and def no reflux or allergies.

do you know that lactulose does have lactose in it? Meaning if you keep him off dairy you should keep him off lactose? We have tried movicol which gave him awful tummyache, docusate which made him poo regulary but still too hard poo. The sennakot DEF is better as his poo iss softer although trying to find doesage that works and doesnt give him quits! you can buy over the counter, maybe worth gicving a go and if works get it on prescription?

We give milk when he wakes in night. Same as you doesnt take enough in day. BUT i believe that milk helps neutralises the acid so with my ds2 prob helps that. I dont really 'cope' with the night wakings TBH! I just walk around in a daze. Am on AD's for PND because of it all. Same after i had ds1.

Does he have a dummy? Sucking helps with reflux (there is a biological reason but cant remember right now!)

He was on 10mls once a day and now been doubled. I know he is over 9kg....I think around the 20lb mark aswell. All the other meds he has been on inc domperidone are weight related and you should get it reviewed every other month or so depeding how quick he puts on wieght really.

Hes not on ranitadine as didnt helpedhim. When he had the first lot of cameras done there was damage to osophogus because of reflux but the omep has healed that now.

Im not sure about studies into reflux with siblings, just that boys are more likely to get it. I was told after ds1 that dc2 woudlnt get it.....ds2 is twice as bad. It has put me off dc3 so much that dh has just had the snip as i couldnt deal with anything like this a3rd time but your family may be different so im not sure what to say!

Well I have 2 boys and think if I had 20 kids they would all be boys. LOL at snip, might send dh that way if I don't get some sleep soon.
Just back from gastro specialist. He has doubled the omep so up to 10mls twice a day now. He said once that kicks in to cut out the dom peridone and the night feed. I said how exactly and he said either to water it down or controlled crying. I am not sure how I feel about it at the moment as we have tried cc before and it didn't work and he gets in a massive state and makes his reflux twice as bad. However for the specialist to say its ok and I feel quite desperate for sleep... we shall see.
Tried all manner of tricks to get him to take a dummy but he refuses point blank. Loves ripping his borthers off him though at story time .
Haven't used the lactulose for ages but I remember having a conversation with the paed and her saying it was fine as not lactose that was the problem. No idea why... think I was still in a haze about it all then. Have been very close to going to docs for anti ds and when I do go when I am ill he always gives me anti biotics straight away as he says I am a woman on the edge!
Noticed any change from the double dose yet? Every time we try something new I hope it is a miracle cure for sleeping through the night!

im exactly the same, every time i go see consultant etc im like 'it;ll be ok, they'll give us a wonder drug' but no doesnt work like that!

Havent noticed any change at all. We are doing a sleep training think through sleep nannies that we did with ds1. You dont leave them to cry it out. Def not good fore reflux baby as you are quite right, crying makes reflux so much worse. I am able to get him to sleep now which is great BUT i believe that no amount of this will make them sleep through if the reason they wake up is due to pain. Also as milk neutralises the acid i wont stop night feeding until he sleeps through as its kind of like a short term pain reliever.