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Children's health

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Original poster

any experts on breathing problems in small babies?

30 replies

mad4mybaby · 29/01/2009 14:44

im posting a fresh thread to try and find anyone that has had similar probs or has some idea what may be wrong with my 10 week old ds2

he was born very snuffly/nasaly and snoring and i was told was mucous which i accepted. cut a v long story short, he was in hosp last week having tests done as he has reflux and on medication for it. he snores, stops breathing quite abit (apparantly nothing to worry about) he snores, is very almost congested and he snorts alot. he sleeps propped up but his snorting wakes him and seems to hurt. his chest ang lungs are clear and barium xray showed no barium was going on his lungs. he is now on goats milk formula due to dairy/soya intollerances and is under the paed stil. am going to hosp monday nut really want them to listen as something isnt right. alot of the time he struggles ro breath and he also makes a strange wheeze/squeak when he breathes out alot of the time.

any ideas?

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Original poster

mad4mybaby · 29/01/2009 15:37

bumping

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onebatmother · 29/01/2009 15:45

Can't really help, but bumping for you.
My dd has mild sleep apnoea which means that she stops breathing and then snorts herself awake, which I often think must make her feel panicky and horrid.

Has the paed heard the wheeze?

Original poster

mad4mybaby · 29/01/2009 16:07

havent heard the wheeze as he doesnt do it all the time. ds1 and dh have sleep apnea so i know that that isnt anything to worry about. its the rest of it thats happening that im worried about..

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onebatmother · 29/01/2009 16:48

I think you've got to write a list of each problem and go through it methodically, making sure they take notes of everything. Also try and work out when what happens, iyswim - does the wheeze only happen at night for example? Then at least you'll know that you've not missed anything. Sorry you're so worried - and good luck.

lindseyfox · 29/01/2009 19:59

I am a childrens nurse and without seeing exactly what the baby does it would be hard to diagnose or offer advice.

I think you either need to set up a video camera and film baby was 24hrs or at least whilst doing this - lots of parents do this by the way so doctors can see what happens.

or go to your gp or local a and e and insist your baby is admitted on the nasis of the symptons described for 24-48hrs of monitoring.

Elibean · 29/01/2009 20:14

Mad4, we videod dd's sleep apnoea - and recorded it - for the ENT consultant. He did'nt need it, as it happened, because she fell asleep on way to appointment and he heard/saw for himself, but it helped us to know we had evidence should we need it!

thisisyesterday · 29/01/2009 20:18

sounds just like ds1 who had a floppy windpipe (trachea malacia)

we ended up having to record the noise he was making and take it to the GP after many visits where he was just lovel and silent the whole way through

Original poster

mad4mybaby · 29/01/2009 20:31

he doesnt do it all the time, also he was in hosp last week fr tests for his reflux and did sleep study and although the alarm went off a few timesand oxygen levels dropped every now and then they didnt seemed bothered...

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thisisyesterday · 29/01/2009 20:34

mad4mybaby, ds1 had to go into hospital and be monitored overnight for his trachea malacia.
he had same result, a few blips where oxygen levels dropped, but it wasn't enough for them to consider doing anything more.

so we had to live with it. they generally grow out of it. it apparently gets worse as they get bigger, and then it starts to get better.
we definitely experienced that. ds1's was pretty much fine by 18m-2years although he is 4 now and still gets a bit wheezy if he is unwell or has a cold, and he still snores

Original poster

mad4mybaby · 29/01/2009 20:38

i wouldnt worry if it didnt bother him but it does and affects his sleep and eating

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thisisyesterday · 29/01/2009 20:43

yep ds1's did too. but they wouldn't do anything because it wasn't affecting his oxygen levels enough,. and the operation to fix it doesn't always work and is major surgery for a little baby.
which i can understand.

but this may be irrelevant because it may nto even be the same thing lol

lenny101 · 29/01/2009 20:44

DS1 had laryngo (sp?) malacia (among other things), just wanted to say it was often positional and sitting up seemed to be worse. As and when you get more information it might be worth baring in mind that how he sleeps might influence his ability to take a full and proper breath.

Hope everything works out.

Elibean · 29/01/2009 22:15

Laryngomalacia and tracheamalacia are almost the same thing....dd's was diagnosed as the first, but her trachea was seen as slightly floppy still at 26 months recently during tonsil op (and bronchoscopy) and she finally had the surgery we were told she did'nt need at birth.

Thing is, Mad4, if I were you I would need a proper diagnosis in order to rest easy and 'live with it'. Yes, you probably will have to and nothing else will be done, but if at least you know what the problem is, its a lot easier to deal with iyswim.

What position does your ds sleep in?

And, can anyone do a link to this thread for DaddyNet, who is posting on the other newborn breathing problem thread? His ds newly diagnosed with laryngomalacia, and has had surgery...

Elibean · 29/01/2009 22:16

Sorry, should add, I would but am hopeless at linkes

Original poster

mad4mybaby · 30/01/2009 10:38

mumsnet.com/Talk/childrens_health/676747-anyone-experienced-noisy-stuffy-breathing-in-newborn-poss-l ayrnx

there is the link to the other thread that i started that daddynet is on.

elibean, ds2 sleeps on his back normally. Depends how bad his reflux is as sometimes want to sleep on his tummy (which makes him more bunged up) and sometimes i put him on his side

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Original poster

mad4mybaby · 30/01/2009 11:25

the other thing im not sure if i said is he feeds quite badly, he still only has 4oz bottles and even then desnt really finish it...weight is fine though...

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Original poster

mad4mybaby · 30/01/2009 11:26

also dont think i said he has a horrible odd cough (bit like cat with fur ball)_

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thisisyesterday · 30/01/2009 11:29

mad4, am i right in thinking he can't have cow's milk and is on goat's instead? or is that someone else.
cos that could be related because the proteins in goat's milk are very similar to cow's. that's why it's not normally prescribed over here any more.
in fact, it shouldn't be prescribed... arte you in the uk????

he might be better on something like neocate.

4oz at a time is fine for a 10 week old i'm sure, esp if his weight is fine. we switched to bottles when ds1 was nearly 5 months and he never took more than 4 ounces at a time then.

Original poster

mad4mybaby · 30/01/2009 12:07

he started on cows, then nutramigen then neocate etc and caused stomach issues...paed agreed goats milk as was the only milk ds1 could tolerate. not prescribed, ihave to buy it and yes im in uk.. hes only been on goats 2 weeks and i know that isnt the cause as hes been this bad since birth. his stomach/reflux is better on this milk

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Elibean · 30/01/2009 12:57

Neither of my dds were taking more than 4oz at a time at 10 weeks, for sure...sounds ok, maybe your ds1 was just a big eater?

The cough and bunged up-ness sound more how dd was pre-op, due to her tonsils and adenoids being so large.

dd's laryngomalacia stridor was always worst on her back, or when upset/extra tired. You could see her throat tugging in, even when well.

THanks for doing the link, I actually meant to do one to this thread on the other thread, but doesn't matter - unless you have time to do another one!

Original poster

mad4mybaby · 30/01/2009 13:39

have linked both threads.

ive filmed his breathing when he was on his back propped up and its bad but the wheeze/squeaky noise doesnt get picked up on camcorder.....

the only thing i can think is that its the reflux and the med STILL arent enough? been trebled though...

he only use to sick up acid and now he doesnt do that as much which ishgood although now he is sick milk all the time when he didnt before. maybe could be domperidone? he only been on that a week. dont understand how reflux would cause this tho?

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Elibean · 30/01/2009 14:47

Domperidone shouldn't cause sickness, do you mean he's on it since last week? Sounds hard work for you, and horrid for him, I'm sorry...

Could be the meds aren't enough, probably why you have the review appointment this week with the paed? Lots of LOs need Omeprazole, thickened feeds, etc etc....so would definitely query the meds when you see the doctor next. When is your appointment?

Elibean · 30/01/2009 14:48

ps dd's squeak would have been picked up from 100ft away, but it did get louder as she got bigger...hard to remember at 10 weeks, but doctors would zero in on it as soon as she entered the surgery so was obviously quite loud.

Original poster

mad4mybaby · 30/01/2009 15:01

no his breathing/snorting v loud but the noise thing is quiet. just had hisnewborn check and saw diff gp who reckons it isn reflux and that his nasal passages are too small and that it would go ona he gew

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Original poster

mad4mybaby · 30/01/2009 15:03

i mean grew!

oh and he been on domperidone 1 week now. has helped his ind but making him sick upmilk and i know its normal for this to happen i just dont understand why it would start now. paed is monday. seems ages away.. so frustrated and feel im dwelling on it but cant help it

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