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Original poster

Out of my mind with worry [Please read the OP's updates before responding - Title edited by MNHQ]

1000 replies

YourRubyMaker · 22/02/2025 17:59

Someone please just give me some hope I’m so stressed I can’t function , my 10 year old since sept has had a limp in one leg then it became a weekness in his arm and hand on the same side , doctor was useless and made me do it as two separate issues and make another appointment!!! Didn’t take me seriously and Had X-ray on hips all fine (obviously 🙄 ) I went to see another doctor who said im referring it for urgent peadeatric appointment (great so helpful ) and he wanted to refer for mri but couldn’t , appointment comes thro and it’s in fucking June !!!! And that’s a urgent referral , in the mean time it’s got worse and now he can’t run and often stumbles and falls doesn’t use the arm hardly at all , have taken him back and they’ve now booked a mri brain scan for next weekend , which happens to be on his birthday of all days 😭 he’s mental health is shit as is mine and he’s obviously worried , how long does a brain mri scan take please ? And has anyone ever experienced issues like this and it not be something life threatening, I also have a toddler so am still having to be normal and do normal stuff where as I just want to lay in bed and cry

  • [Message from MNHQ - please see OP's updates before responding]
OP posts:
Ritzybitzy · 27/02/2025 20:13

Somuchgoo · 27/02/2025 20:05

I've retyped this about 6 times, and I'm not sure about now, but can I please gently ask for people to be more cautious when going 'oh it may be benign'. A low grade (which is what they have renamed benigns, as they aren't harmless) is (usually) much better, but there is still going to be a long road and the OP is still going to need considerable support and love for a long time.

'Benign' can often come with lifelong consequences and/or prolonged treatment. High grades can often be curable and many have an excellent prognosis, though inevitably need more aggressive treatment.

OP, there's a children's cancer board on here. I know that word makes you want to vomit right now, and it's not necessarily for now, but for the future if and when you want to seek it out.

A large proportion of the people have kids with brain tumours (low and high grade - not just for high grades). Lots of us have been through this and can support you through and provide a ear to listen.

All the best

Not one person has said that? Which would be hugely dismissive.

Princesspollyyy · 27/02/2025 20:14

So sorry you are going through this, sending love and prayers x

BananaBubbless · 27/02/2025 20:16

While it may be dismissive, it is giving hope. Some people are jumping to it being cancer which OP does not need either right now.

ItsChristmasEEEVEJeff · 27/02/2025 20:17

So sorry to read your update OP. Thoughts are with you x

LaceApplique · 27/02/2025 20:23

OP I would land myself up A&E, you may be there for 24hrs waiting but you will get a scan at the end of it.

Ritzybitzy · 27/02/2025 20:23

BananaBubbless · 27/02/2025 20:16

While it may be dismissive, it is giving hope. Some people are jumping to it being cancer which OP does not need either right now.

No one has said it’s benign or cancer. Please don’t make this about virtue signalling or derailing in any sense. No one has said anything that is not supportive.
.

Praying4Peace · 27/02/2025 20:25

YourRubyMaker · 22/02/2025 18:22

Thanks so much everyone for your words , the specialist referral is still for June this is a seperate appointment as I’ve had to take him back as it’s getting worse , so I’m presuming that if this comes back as clear I will still be waiting until June although I know the last gp I saw had wrote to the hospital again to try to speed it up , how long is the wait for the results and do they go to the gp is anyone knows please ? I’ve told him we can celebrate on the Friday eve and sat morning too but when I told him he cried and it made me feel even worse but I can’t re arrange it as we’ve been waiting for proper testing for so long

Sending you love and strength OP. U R clearly a devoted mum. You thoughts and emotions are on a rollercoaster and however hard it is to do, please try to take this one stage at a time. I appreciate that this is near impossible but you need to maintain as much of your emotional reserves as possible to continue functioning and caring for your children. The MRI scans will be analysed and reported on and the results sent on to a medical team which may/may not be your GP. This will depend on the results and you will be informed of the results too.

Arcticrival · 27/02/2025 20:26

I'm so sorry for you and your son. x

LaceApplique · 27/02/2025 20:28

Oh my goodness, I commented before reading the updates! I'm so sorry this is happening OP. x

HornyHornersPinger · 27/02/2025 20:29

YourRubyMaker · 27/02/2025 15:48

My heart is broken it’s a brain tumor I don’t know what to do awaiting a call hopefully this evening about seeing a Brian specialist ,I don’t know what to do I just want to collapse but I can’t tell him I don’t know what to do

Oh OP, I'm so sorry. Sending you the biggest handhold and hoping with every fibre that your DC can be successfully treated x

Praying4Peace · 27/02/2025 20:31

Praying4Peace · 27/02/2025 20:25

Sending you love and strength OP. U R clearly a devoted mum. You thoughts and emotions are on a rollercoaster and however hard it is to do, please try to take this one stage at a time. I appreciate that this is near impossible but you need to maintain as much of your emotional reserves as possible to continue functioning and caring for your children. The MRI scans will be analysed and reported on and the results sent on to a medical team which may/may not be your GP. This will depend on the results and you will be informed of the results too.

Show quote history

Please accept my apologies for writing the above post before reading your update. You are in my thoughts OP

Jackiebrambles · 27/02/2025 20:32

I’m so very sorry, sending you strength and unmumsnetty hugs. You sound like an amazing mum, thank heavens you kept pushing for him to be seen. Thinking of you.

SneakyLilNameChange · 27/02/2025 20:33

Thinking of you OP. Hope you get a plan, support and a good outcome for your family. One day at a time.

Northerngirl821 · 27/02/2025 20:33

Sending love and hoping you get more info and a plan asap x

Dancingatthepinkponyclub · 27/02/2025 20:33

I’m so sorry.
I can’t believe how badly this was dealt with.
Not that it’s important right now but the GP should be struck off for not taking you seriously previously.
You're in the best hands now. Sending you much love and strength. X

bakedFishandChips · 27/02/2025 20:34

I would call the OT or health visiting team to start with physio assessment, just anything really until the appointments get available , a private physio can see you next day. We are using one

Pancakeflipper · 27/02/2025 20:38

Sending virtual hugs. Hope a bed is found and the hospital get a plan into action ASAP.

I'm.so sorry.

Sending lots of positive vibes to you all.

Oohyoudaftbat · 27/02/2025 20:38

Another person here sending you so much love and keeping your son in my prayers x

Wheretobeginnn · 27/02/2025 20:40

So sorry to you and your son OP. Doctors can work wonders nowadays and now you’ve got a diagnosis things will move quickly. Sending you the absolute best wishes and a virtual hug.

bakedFishandChips · 27/02/2025 20:40

praying. Just read the update

Somuchgoo · 27/02/2025 20:40

Ritzybitzy · 27/02/2025 20:13

Not one person has said that? Which would be hugely dismissive.

Show quote history

That's how I felt, possibly because I'm oversensitive and find it a very triggering term in terms of brain tumours. I'm sorry if that's made me snappy/reading into things that weren't there. It wasn't directed anyone in particular, just a vibe I got. It's probably a little to close for comfort for me and so let's just move on from this, and just offer support instead. It's not something that's it's helpful to the OP to discuss, and maybe I should have deleted my 7th version too...

Sending love, and hugs to the OP. You can do this sweetheart, and we will all be here to support you (through the weird anonymity of the internet) as best we can.

ThatsNotMyTeen · 27/02/2025 20:41

Oh my god you poor love and your darling boy. What an awful shock. Thinking of you and praying for the best possible outcome. How awful and unfair x

MNHQ
ClaraMumsnet · 27/02/2025 20:42

I'm so sorry to hear your news, OP. I've edited the title of your thread so you can get the right support now Flowers

Greenwallpinkwall · 27/02/2025 20:42

We’re with you OP. Is there anyone that can be with you in real life?

WonderingAboutThus · 27/02/2025 20:43

Handhold. Well done for having gotten him the help he needs so quickly.

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