Out of my mind with worry [Please read the OP's updates before responding - Title edited by MNHQ]

[YourRubyMaker]

Someone please just give me some hope I’m so stressed I can’t function , my 10 year old since sept has had a limp in one leg then it became a weekness in his arm and hand on the same side , doctor was useless and made me do it as two separate issues and make another appointment!!! Didn’t take me seriously and Had X-ray on hips all fine (obviously 🙄 ) I went to see another doctor who said im referring it for urgent peadeatric appointment (great so helpful ) and he wanted to refer for mri but couldn’t , appointment comes thro and it’s in fucking June !!!! And that’s a urgent referral , in the mean time it’s got worse and now he can’t run and often stumbles and falls doesn’t use the arm hardly at all , have taken him back and they’ve now booked a mri brain scan for next weekend , which happens to be on his birthday of all days 😭 he’s mental health is shit as is mine and he’s obviously worried , how long does a brain mri scan take please ? And has anyone ever experienced issues like this and it not be something life threatening, I also have a toddler so am still having to be normal and do normal stuff where as I just want to lay in bed and cry

• [Message from MNHQ - please see OP's updates before responding]

So sorry to hear that. I hope you get some more information soon and is it treatable.

Awww OP I’ve just read your update. I’m so sorry to hear this. I have no advice but wanted to say you and your son will be in my thoughts. 🩵

I’m so pleased you managed to get the scan for today and didn’t have to wait until June. Hopefully they’ll be able to remove it and this will all be a distant memory soon.

Take care xx

I am so sorry 😞

Have been silently following your post hoping for good news. I’m so sorry that this wasn’t the case :(
I agree the NHS can be super fast when needed, take it day by day, take all the help that is offered to you and remember to take care of yourself as well as everyone else. I’ll be thinking of you ❤️

Oh my goodness, I'm so sorry OP

I seriously hope you're not a nurse.

I'm so sorry, OP. I hope they contact you asap and give you as much support as possible. Remember you have already been a strong advocate by getting the scan brought forward - you're doing all you can for him even in this incredibly difficult time.

I'm so sorry OP ❤️ Now you know things will get moving pretty quickly x

I'm so very sorry..
But I'm another one who knows a child/young teen who had a tumor removed and is now a healthy mum..
I'm giving you a virtual hug..

I’m so sorry OP. But please don’t jump to any conclusions yet. People hear “tumour” and think cancer. My child has had a large, benign tumour removed from her brain which was terrifying but she is ok. I remember the terror of the unknown, but in the next few days plans will be made to work out what’s going on, and they’ll keep you fully updated. Ask all the questions you need.

@YourRubyMaker oh no! my heart is breaking for you all. absolutely no words but there is always hope. as an retired nurse I have had many patients and even a few friends who were given this desvastating news. many of them turned out to be benign. sending all love and support to your family at this trying time. xxx as a retired nurse I never comment on medical things which have the likelihood of being serious.

Oh my gosh op I've been following this thread and I'm so gutted for you seeing your update, and your boy aswell on his birthday. You've had some great advice here. Keep posting we're all here for you ♥️

Oh my god I'm so sorry, I've been following the thread and hoping it would be a clear scan.
You're going to get loads of people tell you not to worry and that their next doors neighbours brothers aunts friend had a tumour and they were fine, and I know that that may not be helpful and sometimes you just need sympathy and someone to acknowledge that right now everything is very much not ok.
Have you got friends and family around you?
Does your son know anything yet?

I am so sorry to read your latest update. My heart breaks for you and your boy

There will be specialist play therapists at hospital that may be able to help break the news to him alongside the doctors when the full diagnosis is complete so try not to worry about that right now.

I am so sorry to see your update. My thoughts are with you all.
And I second using all the facilities the hospital can offer to help you all. I've had such huge support from the staff from surgeons to porters with DSs journey, they looked after me as much as him.

I’m so sorry OP. Well done getting the scan brought forward. Are you both still in hospital?

I’m really sorry to read your update. Thank goodness you pushed to get the scan brought forward - well done

I want to reassure you that most children’s cancers are very treatable. You obviously need to speak with your own medical team. There are a number of good children’s cancer charities too who will support

I am so sorry that the results were not good and you have had such devastating news. You will
Be in total shock and I hope you have lots of support in real life.

You have already advocated for your child and pushed for a mri. And you will continue to do so as you sound like a fabulous Mum.

Things will start happening very quickly now and at times you will feel totally out of control. Hopefully the first thing will be that they will send you and your son to the nearest specialist hospital (if you are not already in one) where you will be under the care of a designated neuro surgeon.

My son was diagnosed with a brain tumor from a cat scan. It took a number of weeks for them to diagnose what type of cancer it was as they will need to do this to work out the best treatment regime for him (although he did have an op
Very soon and treatment started whilst they waited for results and then they could refine the treatment).

There are many types of brain tumours and I hope that your son's treatment will start quickly and you will be on the other side of this soon.

Sending you, your son and wider family much love and strength xx

Is it just you and DS at home? If so can you message a friend to come over after DS has gone to bed (however late that is!) so you have someone to offload to.

Today is a scary day but they won't all be like this. Try to take some deep breaths and don't assume the worst case scenarios.

Bless you, and him, OP.

As PPs have said, are benign brain tumours as well as the more nasty ones.

Did they phone you afterwards?

I'm so sorry that it wasn't better news. Hoping a treatment plan is put into action ASAP. I'm happy to offer prayers if it doesn't cause offence

Thinking of you during this unbelievably painful time and sending huge love

Sending you so much love and strength. Ask the hospital to refer and direct you to every bit of support available. Reach out to friends and family. Let your loved ones take care of you.

I am so sorry OP, you must be absolutely reeling. Other people will have better advice about charities who will support you but I want to tell you that I used to teach a child who had had stage 4 kidney cancer which included a brain tumour when he was young. He's absolutely fine, smashing it at school and playing sports to a competitive level. Of course your mind will go to the worst place but please be reassured that it may well not be the worst. Tumours can be benign.

Sending you massive virtual hugs to you and your boy xxx