Out of my mind with worry [Please read the OP's updates before responding - Title edited by MNHQ]

[YourRubyMaker]

Someone please just give me some hope I’m so stressed I can’t function , my 10 year old since sept has had a limp in one leg then it became a weekness in his arm and hand on the same side , doctor was useless and made me do it as two separate issues and make another appointment!!! Didn’t take me seriously and Had X-ray on hips all fine (obviously 🙄 ) I went to see another doctor who said im referring it for urgent peadeatric appointment (great so helpful ) and he wanted to refer for mri but couldn’t , appointment comes thro and it’s in fucking June !!!! And that’s a urgent referral , in the mean time it’s got worse and now he can’t run and often stumbles and falls doesn’t use the arm hardly at all , have taken him back and they’ve now booked a mri brain scan for next weekend , which happens to be on his birthday of all days 😭 he’s mental health is shit as is mine and he’s obviously worried , how long does a brain mri scan take please ? And has anyone ever experienced issues like this and it not be something life threatening, I also have a toddler so am still having to be normal and do normal stuff where as I just want to lay in bed and cry

• [Message from MNHQ - please see OP's updates before responding]

I will be thinking of you all tomorrow OP. I'm so glad you've got a room now and a base for tomorrow. Try and rest and eat when you can ❤️

I’m thinking of you too and your lovely boy, sending strength for the op tomorrow x

That is good news and will give you a good place to rest or just be - Will be thinking of you and your son especially tomorrow @YourRubyMaker

@YourRubyMaker I'll be thinking of you and your boy tomorrow. Sending love and strength and hope for a positive outcome.

Sending you love and strength for tomorrow. My daughter was diagnosed when she was 13 (she's 27 now!) They're day of her surgery was a long and exhausting day, I went into town and the hospital rang when she was in recovery. I was back at the hospital and got to see her as soon as she was settled in icu. Xxx

We desperately need one my my children's hospital. Only the parents on PICU get a room on our parents unit. And as a regional and supra regional centre we have kids from miles away.

Thinking of you tomorrow op xx

@YourRubyMaker Many cities offer day rooms at hotels, so that might be an option for you tomorrow while your lovely little boy is in surgery. You can treat yourself to a nice room in which to rest for less than the price of an overnight. I found these in Liverpool - no idea if you're in Liverpool, but it's just an example because someone upthread mentioned Liverpool. The website is dayuse.com.

www.dayuse.com/s/united-kingdom/england/merseyside/liverpool?selectedAddress=Liverpool&sluggableAddress=Liverpool&checkinDate=2025-03-03

There's also hotelsbyday.com.

https://www.hotelsbyday.com/en/search/results?countryid=&cityid=&hotelid=&coords=53.4083714%3B-2.9915726&country=Liverpool%2C+UK&date=March+3%2C+2025

@YourRubyMaker

Thinking of you and your DS. My DF had a brain tumour as a child but recovered (obv since I'm here).

I'm sending you an your family positive thoughts that it all goes smoothly tomorrow x

Will be thinking of you and your lovely boy tomorrow. Hope you both get some good rest tonight xxx

We're incredibly lucky at our children's hospital. They have several emergency rooms in the hospital for families like mine who arrive at all hours in an emergency (my son arrived in PICU at 4am) and they also have 2 nearby accommodations similar to Ronald McDonald's, one is actually for oncology families funded by a local childhood cancer charity which is where we eventually ended up long term.

Having a 'base' to call home for the 10 months he was in hospital meant so much to us. It should definitely be standard for all children's hospitals.

That’s awful! I hope you can get one soon but it should be a given to have provision. X

Sending love and strength for you, your DS and all your family tomorrow. I hope you get some rest tonight and find some comfort that there's a whole army here thinking of you.

Glad you got access to a Ronald Macdonald room. I will definitely make a donation - thanks to the pp who prompted us to do so.

Thinking of you OP - hope the surgery goes as well as it possibly can, and you are able to rest in the meantime. Hope you both manage some sleep tonight.

I will be thinking of you both tomorrow. Sending some good Juju your way! xo 💜

We're all pulling for him OP. I'll be thinking of you all tomorrow and hoping you manage to get some rest tonight.

Thinking of you and your little boy tomorrow. Sending you both and your family lots of love. Xx

You can donate to Ronald McDonald when you’re ordering through the McDonald’s kiosk machine. I imagine alot if people skip past the option but even rounding up to the nearest pound is an option.

I’ll be thinking of you all tomorrow. I hope you can find something to pass the time but I’m sure it’ll feel like a lifetime waiting for the updates 💐

We’ll all be with you in spirit tomorrow OP. Thinking of you and your boy x

@Kirbert2 there is a house for oncology kids. But not for anyone else. We've had parents sleeping on the ward for a year.
OP, good luck for tomorrow. Hope all goes well.

I'll be thinking about your boy tomorrow.
Wishing for nothing but positive news for your family.

Thank goodness for that.

I will be thinking of your son and you tomorrow, YourRuby, we all will be.

My child is the same age and I can’t imagine how you must be feeling tonight OP. I’ll be thinking of you tomorrow.

Thinking of you and sending all my positive thoughts and vibes your way for tomorrow morning op Xxx

Definitely go out for the day. We will all be here for you too.