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See all MNHQ comments on this thread

Mass on brain 4 month old baby

937 replies

eastview · 15/11/2022 11:03

I don't even know where to start but I took my daughter (4 months) to the GP as she's done this flickering eye roll ever since she was born and they thought it was linked to reflux as did we but they referred us to a paediatrician just to be sure. They did an mri and eeg which showed seizures but found out yesterday that she has a 2cm mass on her brain. I am absolutely devastated and don't know where to go from here. They haven't given an indication as to what they think it is and we are just waiting to hear from them. All I'm thinking is the worst and I can't stop crying. I've been thinking about how I'm going to kill my self when my daughter dies. I feel hopeless and that I don't have the strength to do this. She is my only child and I tried for over 3 years to have her with miscarriages in between. They thought she was missing her cavum during pregnancy so that was traumatic too. I don't know what to do, I can't believe this is happening to us.

OP posts:
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30
BaddogGooddoggy · 08/12/2022 13:01

😊 I’m chuffed to bits for you 💕🥳

Igotjelly · 08/12/2022 13:02

Excellent news!

KirstenBlest · 08/12/2022 13:02

Thanks for the update @eastview . Welling up at the thought of all that you and your DD have been going through. Pleased to hear they don't think it's a tumour.
Your little girl has an amazing mum, and you have an amazing beautiful daughter.

viques · 08/12/2022 13:05

Well it’s not the best of news and I am sorry about that, but then it’s not the worst of news either. I hope you can relax a little bit now and work with the team to sort out medication for your gorgeous daughter.

I hope everyone in your family manages to have a very happy Christmas. Take care.

Coxspurplepippin · 08/12/2022 13:12

What a horrible rollercoaster you're on. Try and concentrate on the 'They seem to think she’s going to be fine' bit if you can. Are they starting your DD on the medication immediately? Hopefully once she's on that the seizures will stop.

BlackSwan · 08/12/2022 13:23

Hi eastview - I honestly think that while this clearly isn't a clean bill of health, this is really encouraging and probably the best news you could have in the circumstances. No tumour means surgery & no radiation - I would take that. For context, after surgery and radiation my son has needed medication for life also. It has become routine and as he has needed it since a young age, he takes it completely in his stride.
Regular MRIs may be daunting - but you should be assured that they will keep an eye on her & if any changes are noticed they will be caught early on.

Now you have the difficult task of getting used to the new normal. If you find you're struggling with anxiety (which I hope you don't but it would hardly be unusual) make sure you get some guidance from your GP as to how to deal with that.

Adarajames · 08/12/2022 13:26

Sorry it’s not the perfect news, but so happy for you that it’s not the worst either. Lots of people need meds for life, doesn’t mean they can’t have a fulfilling and happy life, wishing you all the best for a happier Christmas without quite so much worry.

Blue2021 · 08/12/2022 13:31

That’s really encouraging news! The medication for life is something that will just become second nature. Hope you have the most amazing first Christmas with your beautiful little girl x

MichaelFabricantWig · 08/12/2022 13:34

I hope the news has provided some relief and reassurance, and am pleased it doesn’t seem to be what you were fearing. I’m sure the meds and seizures will bring challenges but I am sure you will all adapt quickly. I hope you can relax a little now and have a wonderful first Christmas with her x

Jaybird43 · 08/12/2022 13:35

Wonderful news, OP! Have the most wonderful Christmas with your beautiful baby xx

KeziaOAP · 08/12/2022 13:50

Reassuring news for you and family and relief knowing she is going to be monitored.

Wishing you and your gorgeous DD a lovely Christmas, her first one so exciting!

ArabellaScott · 08/12/2022 13:56

Sounds good, OP - sounds like the medics have taken it seriously, carefully investigated, and are now going to monitor to make sure she stays well.

Wishing you and your family a very lovely Christmas. Do take care, you've been through a horribly scary and stressful time; be gentle with yourself. x

adriftabroad · 08/12/2022 14:17

All in all good news! Flowers

minmooch · 08/12/2022 14:19

Thank you for taking the time to come back to us - I'm so relieved for you that the consultants think this is not a tumour. Medication will become part of your norm.

Expect to have an emotional crash at some point. This will be normal. Wishing you lots of happy times ahead.

spiderlight · 08/12/2022 14:30

So glad it's not a tumour and that surgery isn't on the cards. Once they find the right medication, it will get easier - it will just become part of your daily routine and she will hopefully soon be seizure-free. Flowers

KrystynaZ · 08/12/2022 15:01

Best possible news! Get some rest now OP and give your beautiful little girl a big hug from all of us! That smile must light up your day!

Cuppasoupmonster · 08/12/2022 15:20

How Wonderful to have the best possible outcome! I really hope you can start to ‘come down’ from this experience and enjoy Christmas with your baby girl xx 🎄

Nottogetapenny · 08/12/2022 15:23

ive been thinking of you both, thank goodness they don’t think it’s a tumour. As you say, being on medication can be managed. Wishing you peace and happiness. God bless 🌸🥰

Charbead49 · 08/12/2022 15:54

Have been following only and was hoping for the best. I'm so glad of the outcome today. X

ZeldaWillTellYourFortune · 08/12/2022 16:34

This is marvelous news! So happy for you and your family!!! Now you can really enjoy her first Christmas.

Don't worry about meds; remember she has a long life ahead and biomedical advances will continue; who knows what miracle discoveries may be ahead.

Please continue to send us photos of your beautiful child in her adorable outfits. FlowersSmile

HugHeart · 08/12/2022 16:57

Really marvelous news. I'm so so delighted for your little one, you and your family 😁❤️💐

She's such a ray of sunshine and this is great news.

Made my week!!!

familyissues12345 · 08/12/2022 17:11

Ah, the best news!!

NiceParkingSpotRitaThanksJanet · 08/12/2022 17:50

Thinking of you and your little one OP, hope you get some answers soon x

Notmeagain23 · 08/12/2022 18:31

Oh I’m so pleased! I know it’s not perfect but this is really great news compared with possible alternatives. Wishing you a wonderful Christmas with your beautiful girl and family xx

comfortablyfrumpy · 08/12/2022 20:41

That sounds like a traumatic start to the night/day.

I am so glad you have good news, it all sounds really positive for your lovely daughter.

Much love Flowers

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