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Children's health

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Original poster

I am so worried about ds8 urgent paed referral

37 replies

Minimalme · 10/10/2022 11:06

My ds 8 has been vomiting on waking up 3/4 times a week for the past 6 weeks.

We often share a bed and he just leans over the side of our bed and brings up foamy stuff.

He has also been sick a few times late evening.

He looks thinner and we have noticed such a change in his behaviour. He gets very angry and we have had to exercise superhuman patience just to keep him calm.

We spoke to the GP a couple of weeks ago and he has got an urgent referral to see a paediatrician and blood tests tomorrow.

I don't know how long an urgent referral takes?

I am so worried. I am used to medical stuff and pretty level headed and calm but this just feels bad.

OP posts:

Are your children’s vaccines up to date?

Set a reminder

Original poster

Minimalme · 10/10/2022 11:10

I don't really know what I'm looking for from this thread. I just feel a bit impotent sat at home worrying.

OP posts:

wildseas · 10/10/2022 11:12

no advice but just a hand hold - that sounds really scary.

is there any pattern to the days? Eg always on a Monday or always after pizza night or anything that could help give you a clue for what’s causing it

PinkyU · 10/10/2022 11:15

Is he drinking more, passing more urine? Is he more tired, looking more pale, had an increase in illnesses?

Wibbli · 10/10/2022 13:00

Has he complained of headaches op? How worrying. If I were you, I would just call the children's dept at your hospital and ask what their wait times are - I once called (I work in the hospital) the children's dept and was told 6 weeks, and they phoned me back for an appointment the same day as someone else cancelled. I hope the poor lad is ok

BlackSwan · 10/10/2022 13:13

I know you're already worried. I would be insisting on an MRI.

Brain tumours are rare - but they do happen:
www.headsmart.org.uk/children/

MissyB1 · 10/10/2022 13:19

Don’t be surprised if they organise a brain MRI as pp suggested. I know you are scared (and we all would be) but mostly it’s a case of ruling out the scary stuff. Do try and find out when that appointment is likely to be.

Original poster

Minimalme · 10/10/2022 17:13

Thank you, I really appreciate the support.

He is more tired and pale than usual but the biggest change is how angry he gets.

He ran off at the weekend because the place he wanted to eat at was closed. He has always been very laid back and a bit 'Velcro' and suddenly we were running through town trying to find him. It is bizarre.

Great advice to ring the children's dept at the hospital, I will do that tomorrow.

It feels surreal and scary.

OP posts:

Isaidnoalready · 10/10/2022 17:20

Did he have acid reflux as a child?

Original poster

Minimalme · 10/10/2022 18:13

My eldest had shocking acid reflux and ended up on omeprazole until he was two but ds 8 was just your standard baby in that respect.

OP posts:

FourTeaFallOut · 10/10/2022 18:23

My ds had a lot of these symptoms and it turned out to be coeliac disease.

Lancasterlassie · 10/10/2022 18:26

Ask to speak to the paediatric secretaries and check they have had his referral received (it may take a day or two to leave the GP). Then ask to be considered for a cancellation at short notice (assuming you are able to get him to the hospital at short notice).

so sorry- it’s really hard when we are worried about our kids

PinkyU · 10/10/2022 18:59

@Minimalme Can you buy a glucose monitoring kit and urine dipsticks?

Any change in how his breath smells, dry mouth?

Keep a 3 day diary, test before eating then around 15 minutes after. With the dipsticks you’re looking for ketones.

DeadbeatYoda · 10/10/2022 19:21

Any chance he is constipated? My son had cyclical vomiting syndrome and horrendous headaches for over a year before they realised what was going on. Sometime squidgy stool can pass a blockage and make it look like they just have loose stools. Also, my son's blockage was a long way down the line so hard to detect on ultrasound.
Sorry if that tmi, just wouldn't want anything missed with your son like it was with mine.

Original poster

Minimalme · 11/10/2022 10:58

Called Pead's secretary this morning and left a message.

My ds 15 has T1 Diabetes and I suggested to ds 8 that we do a glucose test and it was a firm no! Will get the blood test out the way today then have another try.

Will update later - thanks for giving me ideas and stuff to do!

OP posts:

snowbellsxox · 11/10/2022 19:28

Should be a turn around of two weeks max

snowbellsxox · 11/10/2022 19:29

Fingers crossed for you x

ILoveMonday · 11/10/2022 19:37

So sorry to hear what you're going through. I've just gone through my own scare - what has helped me is remembering that there are things that are treatable, that aren't cancer. The behaviour changes could be caused by vitamin deficiencies as well, particularly if he's not absorbing anything

Have you thought about taking him to A&E? It sounds like he needs nutritional support more urgently than anything else.

Wibbli · 13/10/2022 14:51

Any update op? Thinking of you 💐

hatbot · 13/10/2022 15:10

Whilst rare, morning vomiting can be linked to increased inter cranial pressure.
www.headsmart.org.uk.
Please push for an urgent appointment.

Untitledsquatboulder · 13/10/2022 16:35

My advice based on our recent experience is to talk to the hospital and make sure the right things have been put in place for your urgent referrals to go through. Secretaries and administrators can be really helpful.

Eg when ds2 was sent for a blood test on 27th Sept the first appointment they could offer was 12th October because to get an urgent referral gp had to ring a specific number. We got gp to ring, got a same day blood test.

Also, if it gets really bad, there's always a&e. My ds was admitted to hospital via a&e on 30th Sept because he got too sick to wait for his urgent appointment with the paediatrician the following week. Once in hospital things moved very fast indeed to get him comfortable and stable.

Untitledsquatboulder · 13/10/2022 16:40

What I mean is, don't a) assume that your gp knows how to make things happen quickly or b) assume they have done so. We had a big argument with 1 gp about "waiting our turn" for an appointment. Had to point out that, medically, things are dealt with based on clinical urgency not on a first come first served basis.

lisaJN1986 · 13/10/2022 16:42

I would be worried about a brain tumour with those symptoms. I would be taking him to the hospital and getting an MRI straight away even if I had to fib a bit to get one.

Didiplanthis · 13/10/2022 16:59

The GP HAS done an urgent referral, requested bloods and is extremely unlikely to be able to order an MRI on a child.... that request is likely to only be accepted from paediatrics or A+E. Posters saying demand the GP does more are unreasonable, they have quickly done everything they can in the community, the only alternative is presenting to A+E, or pushing the paeds department. I hope everything is OK .

snowbellsxox · 13/10/2022 17:38

My niece bumped her head and was vomiting because it was more than three times in 24 hrs or something they did an MRI ..
I don’t think it’s bad to tell a white lie here. At the end of the day it’s your child. Some may disagree but like you say you are extremely worried x

snowbellsxox · 13/10/2022 17:39

Sorry by white lie I mean straight to a&e

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