I'd love to say that there were really obvious symptoms, but honestly I was very very surprised when there turned out to be anything wrong.
Obviously for every 1000 kids that come in with the same symptoms as my little one about 999 will just have migraines, or stress or something.
But bearing that, in mind, this is what happened. Sorry its a bit long.
Mid January (14th), she had a 24hr fever and I noticed about the same time she was intermittently complaining of an 'ouchy head'. It wasnt enough to make her upset or stop her from doing stuff. She mentioned it roughly once a day.
After a week (24th) I took her to the GP. They thought her previous fever might have been due to a ear infection, and there was some lingering discomfort. Come back if it continues.
She continued to complain about once a day. Saturday 29th, it was bad enough to wake her crying, so we took her to the dr's on Monday 31st. Again told it was likely her ears, and to come back in a week or two of the same and they'd refer her to ENT.
31st in the afternoon, she suddenly put her hand to her head, started sobbing and fell (with pain, not unconscious) to the floor holding it for about 10m. Then did got up and had spaghetti hoops and seemed fine!
I phoned the dr back, and they were unconcerned. I did t think there was anything particularly wrong, maybe migraines or something, but really wanted her properly checked. I debated taking her to A&R but didnt want to br seen as a troublemaker.
The following morning (1st feb) she woke up fine, watches duggee, then curls up on my lap, holds her head and sobs. We give her calpol and she vomits. Phone 111 (assuming they'll send us to A&E), they don't, but get a GP to call. They phone the hospital and ask me to take her up.
They decide to scan, but the sedatives dont work, so they admit us overnight, which I thought was a ridiculous overreaction, but whatever. 2nd feb, they give stronger sedatives, scan, and I'm told she has a brain tumour within 20m of the scan. She had surgery the following morning
The symptoms they were concerned about:
- headaches
- them often being worse in the morning (red flag sign)
- bad enough to wake her (only once but a red flag)
- vomitting (again only once but a red flag).
In hindsight I can see more - she's always been clumsy, but she was becoming more clumsy. I assumed a growth spurt. She struggles to put on weight (up for debate whether linked, I think it is). She was also very clingy for a while before, but you cant go to the dr's and complain that your 2yo is clingy and wants to be carried a lot...
I hope you get to the bottom of what's up with your little one and that is nothing serious. Check for the screenshot of headache red flags i have up thread. It may be that they took my little one more seriously because if this unusual it is to have headaches at 2.5 compared to school age. I don't know