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Can’t stop worrying about Cerbral Palsy

105 replies

Qwerty93 · 04/02/2022 14:41

Hi,

I’m hoping some people can put my mind at ease!

My little one is 5 months and sometimes feels really stiff, and other times not. Her stomach is weak. Like once I had to use full force to lift her arm up.

I first noticed things where odd when she looked asymmetrical, the left shoulder appears internally rotated and hand is 80% of the time with thumb in.

She never really moves her arms above her shoulder. Only occasionally have I seen her do it. And it’s really hard to like get her in jackets etc! Her fingers seem curled.

The right side can also be fisted too but I would say more open than the left.

Her movements can be jerky and her co-ordination for a 5 month old seems to be behind I would say.

She can hold toys, and grab at toys and bring to midline, and bring to mouth etc.

She has okay head control!

She can roll back to front (right to left). On tummy time though she’s not very good at lifting her head. She’ll do it. Then get tired I guess and have to then lift it up again.

Her legs also concern me. Again. Look asymmetrical. Can kick them, Infact does so quite a lot. My concern her is that the feet tends to turn inward, and she does cross them at the legs, and when kicking the legs will go over and under and hit each other after a few kicks.

She can get feet to mouth and does play with them.

She babbles, smiles, laughs, can track with her eyes. Very alert. For sure.

When she’s eating and falling asleep her hands/arms will move up and down.
She also arches her back ALOT. And I can’t think why!

All I can think of is CP.

I have seen a dr, general paediatrician, 2x nhs physios and they’ve all said she’s doing great developmentally and actually think I’m crazy first time mum. So much so I’ve got referred to a psychiatrist, but all I’m telling them is how much my little one has CP and no one believes me.

Is there anyway the above could not be CP and something else?

The only thing I can think of what caused it as I didn’t have a traumatic birth, but when she was 2 days old in the hospital, I was putting her the hospital crib and she sort of dropped into it. I didn’t think anything of it as she stayed asleep. Now I’m wondering what if she was unconscious or something and had lack of oxygen with brain swelling and I’ve not noticed!

Help :(

OP posts:
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Littlesoul123 · 12/01/2023 01:19

How is she

Qwerty93 · 12/01/2023 06:47

Littlesoul123 · 12/01/2023 01:19

How is she

Morning…..

She is absolutely fine and thriving!

Everything she was doing between the age of 3months-6months was perfectly normal… feel horrendous for even worrying myself silly with nothing and almost spoiling a few months of her being with us (if that makes sense), but I don’t look back and I moved forward and appreciate everything little thing.

thanks for asking!

OP posts:
Coffeecreme · 12/01/2023 06:59

oh thanks for updating.
i am glad you found comfort in posting and things were totally ok in the end

BlandSoup · 12/01/2023 08:13

Glad to hear it

MyCreation · 12/01/2023 13:38

That's such lovely news OP. I remember thinking normal baby things were something wrong as I had never even held a baby until I had my first. I was petrified at all the sounds she made, that her breathing was wrong - all sorts. I was a complete wreck. So glad you are in a better place and your little one is fine

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