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My son has meningitis and I'm trying to hold myself together

131 replies

heyjoeyitsestelle · 06/01/2020 09:58

Fever since Monday- no other obvious symptoms. Took to A&E on Thursday as started shaking and grunting when temp spiked. Told probably a virus and sent home and to bring back if he still has a fever in 4 days. No bloods or tests done.

Took him back Saturday as I just knew he wasn't ok. Made them do bloods, chest X-ray and urine sample.
His CRP was 270! He was admitted and thought was probably a bacterial infection so blood cultures sent off and given a dose of antibiotics.
Didn't improve so doctor did a lumbar puncture to rule out the '10%' chance it was meningitis...

And it is. My poor baby has meningitis. He's 11 months old and I'm so so lost right now. They think it's bacterial but appears to be somewhat mild as the white blood cell count was 8.

I don't really know what all this means. As all I hear and think of are horror stories.

How do people cope with this? I can't sleep or think straight. And I miss my daughter at home.

OP posts:
heyjoeyitsestelle · 03/02/2020 16:57

Just let you all know his CRP was less than 4 today and he has been discharged 🥳 he's doing great!
They're following up with some immune tests as one of his immuno-something blood tests results was high when they did them couple of weeks ago- wish I'd asked which one but I have no clue what this means.
But he's fab and we're home only a few more IVs left and hopefully that's it 😄😄

OP posts:
justrestinginmybankaccount · 03/02/2020 17:22

Yaaaay great news @heyjoeyitsestelle that’s wonderful news!

Brenna24 · 03/02/2020 22:11

That's great.

looondonn · 03/02/2020 22:30

Sweet angel
Lots of hugs xx

StealthPolarBear · 04/02/2020 06:04

Excellent news :)

TheMostHappy · 08/02/2020 07:31

I'm so pleased he's been discharged. That's wonderful news!

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