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To be so worried about DS? World falling apart

68 replies

beggingbehind · 05/12/2017 13:13

Sorry posting for traffic and don't know what to do.
Only days ago I was posting and worrying about a health problem of my self I feel so guilty.
DS 1 is 17 and has been experiencing stabbing pain under his left rib (know now its where his spleen is) been going on for ages it started to become un bearable so he finally admitted a GP visit was in order. TO give background to this Me and him have MH issues so going to the doctor is a massive anxiety point for him (and me). The GP thought it was either reflux but more likely an enlarged spleen all good so far we could cope with this. But she asked if he had any other symptoms anything atall he said; itchiness, tiredness and frequent urination. She checked his lymph nodes in neck, armpit and groin and said the ones in his neck were swollen. So sent him for bloods to check for infection- the GP also presicrbed some broad spectrum antibiotics. A couple days latter we were told to come back to discuss the results and were told that some of the liver enzymes were high- indicates a enlarged spleen. But said there was no sign of infection, so they're sending him for an urgent ultrasound scan within two weeks for a look to do a biopsy. I got worried at this point and asked what it could be the GP said it could be lymphoma and it needed ruling out. I froze at this point. I dont know what to do know, theres so many questions i should have asked same with DS. HEs a strong lad but when we got into the car we sat in silence for a minute and then he just cried. Hes in pain most nights its horrible Ive said if the pain gets to bad one night im taking him to a&e. I have 4 other DC at home and i dont know what to tell them, DH is saying dont worry it wont be cancer but what if it is.
Im so soory to ramble I just had to put it somewhere any advice is greatly received.

OP posts:
Are your children’s vaccines up to date?
wannabestressfree · 05/12/2017 19:22

If the doctor wanted him admitted then they would have organised that.

TheFirstMrsDV · 05/12/2017 19:42

Ceto we were sent to A&E after blood tests for my DD.
They did examinations and more blood tests.
They eventually sent us home.
After another blood test at clinic we were sent back to A&E where she got her initial diagnosis.

Lots of childhood cancers are diagnosed in A&E. Unfortunately parents visit their GPs many time without getting a dx because GPs are not familiar with childhood cancer.

OP I know you don't feel it right now but you are lucky your GP is so on the ball. Its great your DS has been referred after one visit. That is quite unusual and NOT an indicator of definitely having cancer.

Sashkin · 05/12/2017 19:50

User A&E departments do not have access to same-day ultrasound. He would need to be admitted under the medical team (which would require him to really lay his symptoms on with a trowel - the bed crisis is so severe that we don’t admit people if there’s any way at all they can be managed as outpatients).

Assuming he gets admitted, that’s 12 hours or so waiting on a trolley in A&E for a bed. Ultrasound will be requested the following day. 3 day wait for a scan. Report comes back the following day. So he’s been faking symptoms consistently for five days by this point in order to convince multiple experienced doctors that he’s far too sick to have the scan as an outpatient.

Does that sound like a good use of NHS resources to you?

Sashkin · 05/12/2017 19:53

OP antibiotics can cause deranged LFTs - if the blood tests were taken after he started the antibiotics then that is the most likely cause IME. Although it is worrying for you, it’s very unlikely to be cancer.

Ring ultrasound and ask if they have any cancellations. But you will get an appointment pretty quickly. Probably just as quickly as you would as an inpatient...

DuckbilledSplatterPuff · 05/12/2017 21:02

You poor thing. Absolutely to be worried when a child/teen is ill. I think you should phone your GP first thing tomorrow morning and say you are extremely worried and your son extremely worried.

Tell them you need some reassurance/more information from the GP as it wasn't clear to you and you have more questions.

That should help put your mind at rest until you get the test. Also what ever his illness - there's always a broad range and you have done exactly the right thing in getting him tested.
Good luck to you both x

whatkatydidnext1 · 05/12/2017 21:14

I can't offer you much but I'm offering a hand hold Thanks when your left in your own your brain goes into overdrive doesn't it ? Try to keep busy xx

Ceto · 05/12/2017 23:50

MrsDV, the point is that it isn't necessary to go to A&E to get the diagnosis in this case, given that the GP already has it in hand. Turning up in A&E doesn't automatically persuade them to treat a case as an emergency.

MissDuke · 06/12/2017 07:53

This argument is daft as the op never said she would even take the advice of going to a&e. I think support is in order here, not an argument Hmm

OP maybe you could ask to have this moved to the health board? Unfortunately you won't get the support you need in AIBU. Hope your ds gets seen quickly, good luck Flowers

beggingbehind · 06/12/2017 09:56

Thank you Miss I will take your advice and get this moved to health. DS was in so much pain yesterday it was so horrible to see

OP posts:
Nikephorus · 06/12/2017 10:02

I think you should phone your GP first thing tomorrow morning and say you are extremely worried and your son extremely worried.
Tell them you need some reassurance/more information from the GP as it wasn't clear to you and you have more questions.
I'd go with this ^^ Your GP may well say 'it's purely procedure and I don't think for a second this is likely" and then you can both relax a bit. Nothing to lose. Knowledge is power.

Rainbowqueeen · 06/12/2017 10:10

Handholding for you and all your family here.

Do go back if he is struggling with the pain. Otherwise lots of deep breaths and stay as calm as you can. You are better off than you were yesterday when no inestigations were underway and every day now is a step closer to resolving the problem.

Will be thinking of you

SophieLMumsnet · 06/12/2017 16:46

Hi all,

We're just moving this to Children's Health at the OP's request.

All the best from MNHQ, OP Flowers

Whinesalot · 06/12/2017 17:16

I think everyone's mind would be in overdrive in these circumstances.
I hope the responses on here have given you a lot of hope. It probably isn't (could be GF) and even if worse case scenario it is, then it sounds as if it's pretty treatable.
The waiting is the worse. When you know what you are dealing with, then you adapt pretty quickly.

beggingbehind · 07/12/2017 14:37

Bless him the pain and ithcness is unbearable for him its horrible to watch. We have a GP appotment for friday

OP posts:
itshappening · 08/12/2017 00:14

I'm sorry to hear your son is suffering, I hope you can get some advice at the doctor's tomorrow, well today now, good luck xx

PringlesSmoothie · 09/12/2017 16:52

How did he get on?

lljkk · 09/12/2017 17:04

To be honest, I wouldn't be in overdrive, and nor do I thin OP should be.

There's a long list of conditions that can cause enlarged spleen. The odds are very high he has basically "nothing" or something very manageable.

Some of the possible conditions are annoying & most need treatment & some can be fixed easily & others mean a longer journey. There is no point in you worrying about the worst case scenario when there are dozens of equally likely alternatives. The GP just needs to rule the worst quickly, hence they were honest with you what the test was for.

lljkk · 09/12/2017 17:05

*kkkkkkk

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