Worried about DS2 (18 months) and just been a bit fobbed off by GP

[NoCapes]

I've been worried about DS2 for a long time, still waiting for food allergy tests, he's had acid reflux most of his life and recently there have been some strange new symptoms that I couldn't match up to anything else going on

So I googled, and he has all the symptoms of diabetes (this has come up before as when he was very young he used to smell very very sweet, so made sense)

Took him to the GP this morning and was basically laughed out with a 'if he had diabetes he'd be in a coma' and a refusal to test him
Do I have to wait for him to be critically ill before I get a test? Surely people present with symptoms every day and get tested, without needing to be in a coma??
Should I get a second opinion?

As far as i understand (not medically qualified, just a parent of a Type 1 diabetic), a reading higher than 7 after fasting, or over 11 2 hours after a meal, would give a diagnosis of diabetes.
I'm afraid I don't feel qualified to advise at your son's level, whether waiting is OK or not but I thought knowing the numbers might help. For context, my son was exhibiting very similar symptoms for 4 or 5 days before we saw the GP - on hospital admission, his blood sugar level was 35.

Was that 1&1/2 hours after a meal prak? Just trying to figure out the 11 2 bit?
Wowsers 35?! No doubt for you then

Yes it was pretty definitive! We went to the GP at 4.30, straight to hospital and left 3 days later...
Sorry - diabetes is diagnosed (I think) with readings of above 7 after fasting or above 11 two hours after a meal - is that clearer?

Record how much he is drinking in 24 hours and weigh his nappies to work out how much is weeing. (Weigh a dry nappy first and deduct it from the weight of the wet one.) then take it along to the gp. And don't leave till he's tested his blood sugar.

Go to a and e right now. My son was diagnosed Type 1 at 13 months old at the hospital after 2 gps fobbed me off. By the time we got there here was seriously ill, spent 2 nights on picu and was lucky to survive. Please stop faffing about and go to a and e.

I'm a peadiatric nurse and if your Gp has fobbed you off then I would go to A&E and I don't say that lightly.

Ah I see prak yes I get you now, I've spoke to GP again (the receptionist hates me today) and I'm going in to the nurse for a urine dip at 4:20
Will update of course! Thanks all again

Did you clean his finger with an alcohol wipe before testing? If not it can give a false high. How long before you tested had he eaten? 10mmol is very high. Definitely go to A&E

Good, glad the receptionist listened! Please update...

Oh and just for reference, my son was also perfectly happily dancing round the doctors surgery - the GP listened to my concerns and did a urine test straight away followed by a finger prick. He certainly didn't question how well or unwell he was, just listened to me and to his symptoms. Then got straight on the phone to the children's ward!

NoCapes. It's rubbish to say he's too well 'Well' children don't drink that much water. It does sound like T2, but even if it's not, something isn't right.

I hope you get some action at your appointment now, but if you don't, try a chemist. Honestly, they're often far more bloody use!

T1 not T2. Sorry to be a pedant.

Hope the appt went ok NoCapes, been thinking of your little one!

Well after all that - his levels were normal at the doc!
6.7, he ended up having a finger prick test after all so they've said they'll do a urine test on Monday if I take one in and if that's normal too then that's it really

Very odd that he's presenting all the symptoms though

But I'm glad I went back or I'd have stressed all weekend so thankyou all for making me

Aaaannnnnddddd relax!

Levels can be variable at the start though because the pancreas continues to produce small amounts of insulin before stopping completely. Hope you get some answers on Monday.

You were very sensible to keep pressing, Capes.

Have a 🍷.

You were very sensible to keep pressing, Capes.

Have a 🍷.

Very important to follow your instincts. You are the only advocate your child has.

MAybe try testing tomorrow and Sunday morning before breakfast so you can start logging it?

Agree with Dartmoor - take a couple of fasting tests over the weekend & record the results (photo as well to make doubly sure you have the readings handy to show). This with today's & Monday's results should give a clearer pattern.

Yes that's. Good idea I'll do that, might as well while I've got the kit

Well done NoCapes.

I remember a friend told me once that when she was training at medical school a Consultant told them to always listen to a 'mother's instinct' - if they are telling you something isn't right, to take note and investigate.

So the first doctor was right then?

When you guess on the outcome of a coin toss you're right half the time Forty.

If you're a doctor with such a great responsibility it's better to work with a little evidence, no?

I was thinking the same thing forty thought I was on my own.

It is possible that the doctor didn't fob the op off but used his/her extensive medical knowledge to determine that the child did not have diabetes without a painful blood test. He made the right call, doctors can't win these days