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Children's health

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Original poster

Worried about DS2 (18 months) and just been a bit fobbed off by GP

98 replies

NoCapes · 19/05/2017 10:30

I've been worried about DS2 for a long time, still waiting for food allergy tests, he's had acid reflux most of his life and recently there have been some strange new symptoms that I couldn't match up to anything else going on

So I googled, and he has all the symptoms of diabetes (this has come up before as when he was very young he used to smell very very sweet, so made sense)

Took him to the GP this morning and was basically laughed out with a 'if he had diabetes he'd be in a coma' and a refusal to test him
Do I have to wait for him to be critically ill before I get a test? Surely people present with symptoms every day and get tested, without needing to be in a coma??
Should I get a second opinion?

OP posts:

Are your children’s vaccines up to date?

Set a reminder

prakattack · 19/05/2017 13:03

Oh and yes, GPs can do a quick finger prick test, no need for full bloods initially.

Maudlinmaud · 19/05/2017 13:04

I can understand your worry no capes. I don't understand whe the gp hasn't tested.. I hope it's not diabetes. Go to a&e or if you know anyone with the condition they could test sugar levels with their glucometer.

prakattack · 19/05/2017 13:06

Good luck, and please do update. if it turns out to be diabetes and you need any handholding/advice, please do PM me - I was in your exact position this time last year.

Original poster

NoCapes · 19/05/2017 13:07

frog I did, I said 'I think he needs to be tested for diabetes, these are his symptoms and I'd like him to be tested so we can at least rule it out'
He looked at DS who was dancing in the middle of the room and did this face and said 'trust me, he has not got diabetes, he's too well'

OP posts:

floatingfrog · 19/05/2017 13:07

If it turns out to be diabetes the Dr should be struck off.

Ktown · 19/05/2017 13:10

Just pay privately
I wouldn't muck about with your GP anymore
You could print out a list of symptoms and take them along too

Maudlinmaud · 19/05/2017 13:12

The doctor can't be held responsible for not carrying out the test. I imagine they have made the call on what they where presented with ie a child who appeared well. If it does turn out to be diabetes you could ask why they didn't listen to you but I think that's the answer you will get. It's frustrating though.

floatingfrog · 19/05/2017 13:18

That's not true Maud they should and can be held accountable.

juniorcakeoff · 19/05/2017 13:20

When diabetic people smell of pear drops (if that is what you are talking about) they are in diabetic ketoacidosis which can be fatal if left untreated. So when you are talking about your son smelling sweet when young, he can't have been in ketoacidosis then.

People usually feel very tired/lethargic at that point also and it is a steady decline from that point. Which is why your GP felt dancing might mean he is not in ketoacidosis. Thirst and frequently passing urine are symptoms, but can also be symptoms of other things e.g. viral illness, child gets thirsty, child wees a lot.

Does your son feel nauseous/abdominal pain/vomitting, any blurred vision? And how long have his current symptoms been going on for?

Maudlinmaud · 19/05/2017 13:21

In that case frog maybe I should speak to a solicitor.

Nan0second · 19/05/2017 13:23

A urine dip is also very helpful for this.

AndHoldTheBun · 19/05/2017 13:24

Did the GP do a urine dip test? That would have taken only a few minutes and absolutely should have been done there and then, the second you even mentioned diabetes and those symptoms.

Now, I'm going to scare you a bit.

I don't think you should wait until tomorrow, I think you should call 111 or go to A&E today, before your dc goes to sleep tonight. IF he is has developed T1, he is at a very high risk of ketoacidosis, which is a potentially fatal and fast moving condition. It can develop in hours and tragically children and young people can just go to sleep seemingly ok, laps into a coma and just never wake up.

With the symptoms you describe, worsening over the past week or so, I think this is potentially a medical emergency.

MrsMulder · 19/05/2017 13:29

Is your ds unwell op? If not then I do think it's unreasonable to go to a&e with those symptoms in a well child. If he is unwell/ lethargic etc that's different.

AndHoldTheBun · 19/05/2017 13:40

Maud, you are wrong, the gp absolutely can be held responsible, if they don't undertake tests which any reasonable gp would be expected to do, when a patient presents with certain symptoms. AT THE VERY LEAST, any reasonable gp would have done a urine dip test (for glucose), and if that was normal, weighed the child to give a baseline to compare against in future (early in T1, you might have abnormally high blood sugar without any in the urine, if the kidneys are working well).

I know of a case being investigated, where a child died at home the night after the gp refused to do a urine test when the parent suggested t1... GP was found to have been responsible by the GMC, due to them not carrying out the investigations that any GP would reasonably be expected to do.

floatingfrog · 19/05/2017 13:42

Exactly AndHoldTheBun.

Maudlinmaud · 19/05/2017 13:47

I stand corrected AndHoldTheBun I'm just speaking from experience but it's now becoming apparent I've been fobbed off. Which is making me quite cross really.

DartmoorDoughnut · 19/05/2017 13:51

Shocking from the GP hope you get results asap

RockyRoadster · 19/05/2017 13:56

Agree about the urine test. I couldn't even get a gp appointment for DD, so I took a urine sample in to the surgery and insisted the nurse test it. Once they had, then we were quickly ushered into a doctor and then sent up to the hospital.

Ineverpromisedyouarosegarden · 19/05/2017 14:01

Ktown that is simply out of the reach of many, many people. No matter how desperately worried they are.

I don't think the child in this situation would be old enough to describe blurred vision.

Very concerning that the GP didn't take this more seriously.

Original poster

NoCapes · 19/05/2017 15:30

Sorry haven't read any more replies I just need quick advice, the GP were only offering the same GP I went to this morning and not until this evening wen they had a cancellation, so I went to Boots and got a home testing set
The test said a healthy result is between 4 & 6 on the chart, DS's has come out closer to 10
But it did say to fast for 12 hours, which he didn't obviously, so 2 questions - does it count as he's eaten today? And if it does, what do I do now?
Or wait and test in the morning after he's gone closer to 12 hours with no food?

OP posts:

Original poster

NoCapes · 19/05/2017 15:34

When*

OP posts:

LapinR0se · 19/05/2017 15:42

Yes I would do another test in the morning after an overnight fast

RockyRoadster · 19/05/2017 15:43

That's still a higher then normal reading, especially if he hadn't eaten for at least 2 hours. I really wouldn't wait until tomorrow. I know you haven't had a chance to read my earlier post, but can you ask the practice nurse to test his urine?

Lunde · 19/05/2017 15:49

It's a pretty high reading - I would go to A&E

Original poster

NoCapes · 19/05/2017 15:55

Just caught up, he didn't do a urine test or weigh him or anything at all, just said no and sent me on my way basically
And no I can't afford to go private - if only it were that easy!

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