get it out! thread 3

[littlemaemae]

I have moved this to child health board as I don't think aibu is appropriate anymore.
What began as a quick question has become 2 now 3
The support on these threads has highlighted the best qualities of mumsnet and I am so grateful to every lovely person who has supported me so far!

Ah, I thought it was Littlemae who said the lady shat it... I understand now !

Ok so now the school has unilaterally decided to take her off dairy. That is NOT acceptable. Did you see the school nurse yet littlemae?
I think this is now at the point where you need to go into writing/see the head. The school is making judgements about you and your dd that have no basis in medicine and are more likely to harm than heal her.

Giving you a great big hug right back littlemaemae cos you really need one, and I know how good they are when you really need them! I wish I were closer xxx

Pleased to hear that dh got her appointment sorted out, is he able to go with you to it?

Agree with others about the head, they need to understand the seriousness and complexity of this and immediately stop any comments re food and drink and follow your plan

I agree Matey and fraggle, and surely only true exclusion diets (that would come with a long list of off limit foods) work rather than 'cutting down' if that was her problem, even though it is not.
Also, she is the smallest by a mile and there are children who have just turned 2 there.
I can not get any trousers that stay up but are long enough of the legs, everything swamps her.
She needs the fat and calories and it really is not their place to deny her it.

A letter has been sent to the school nurse, but I will try to speak to her and the head myself next week.

They said I can't move the funding for 15 hours to another setting until September. Is that still true is the reason is because of a care related concern?

Oh and yes her is able to come with us to appointment I don't think I would manage on my own, it's a long way to carry her from the car park to the children's ourpatients. She still doesn't walk more than a a few moments at a time.
I really try to encourage her. She just seems too weak and genuinely exhausted or in pain.

Hi I hope you don't mind me jumping in on your thread? I have been lurking and following since the first post. I claim funding in a childminder capacity & can only answer for my LA but you definitely can swap providers mid term. The old provider has to pay the new provider and isn't allowed to keep money as payment for notice period. We have to sign to agree the terms and conditions. LAs may differ but we are told the funding belongs to the child not the setting. It may be worth you checking with your area. We have a services for young children as our point of call.
Hope this helps you.

Thank you Surrey! That makes sense, I always thought it belonged to the child. People move house, relocate all the time. Would be very unfair if they had to sacrifice their funding due to a change in circumstances.

Have been following from the start too - we moved while DS had a funded place and we still got the funding in new place.

Poor little thing, could you both get dropped at the out patients. Or take a buggy. I had no idea the walking fo her was so difficult (((((huge hugs))))

Good idea about the drop off. Hadn't even thought about that.
I carry her everywhere and have to carry all the bags too etc. While shopping, going to school. I have no choice.
She says it makes her tummy hurt.

She chooses to walk and won't go in the car if she can help it. Will never get in a buggy. So I don't think it's laziness. Get horrible comments about that from that lunch time supervisor too!

It may be worth mentioning that to the consultant, littlemaemae, that walking hurts her tummy.

Walking is one of the best exercises for stimulating peristalsis, the contractions of the gut muscles that move food through the digestive system.

Still lurking here too Mae I would definitely be mentioning her not walking.

Could you maybe get a carrier for her?

We often end up carrying both DC when we are out for a day. There are lots of good carriers out there that should be comfortable for both of you (you can also often pick them up second hand). I like Lennylamb, connecta, ergobaby. There are sooooo many.

Her being squashed against you might also help her tummy. It's also easy for her to then be up and down and maybe build up some strength.

I've also read somewhere about carried babies having good core muscles, because they have to balance themselves... I'll see what I can find if you're interested.

Gosh her nursery sound horrible!

I had no idea her walking was affected, poor little thing. I'm wondering if you could use a skateboard type thing - if one exists, which you could push or tow.

Where in the world does the title Lunchtime Supervisor mean expert on anything Child healthcare ?

I hate that woman! I'd tell the nursery how angry I was, how unprofessional she is, and therefore how inept the nursery was and that not only would I be demanding My childcare hours be transferred to he establishment of my choice without delay as per the law, but that I'd be reporting THEM myself to everyone and every body imaginable for child safeguarding issues.

How dare they make comment, take decisions or override your authority?

Don't take her back there love, it's not the safe, supportive and positive environment she needs.

I was wondering about a scooter, if nothing else she could hold onto it and be pushed along...

Sending all our love to you both xx

This LTS is also a parent and a nosy cow
I have always wanted a skateboard buggy!
She has a scooter but I end up carrying her and the scooter.
I will look at the carriers, I should have got one a long time ago but I always thought it was a phase and would be short lived.
I'm thinking of some kind of hip seat.

there are scooter with seats, or a trike with a pushbar?

A scooter might wreck your back, which wouldn't help the situation. Shame she won't use a buggy.. I wonder if there is some kind she might feel more positive about. Has the nursery never dealt with a child with special needs ? Littlemae's needs are special at the moment, and they must take that on board if they're to be trusted with her.

What about something like this? Original Crotec Wagon https://www.amazon.co.uk/dp/B00YAO9UHQ/ref=cmswwrcppawd_-mpjxbMGH2EB1

If not there are toddler or preschool sized carriers that would definitely be comfy for you both.

And then there are things like this www.manageathome.co.uk/pd/Nitro-Rollator_11401.htm?utm_source=Google_Shopping&utm_medium=PPC&utm_campaign=ns1:Rollators&gclid=CPjGoJ6Dt8wCFbEy0wodvhwHaA

Wow I like the look of both of those. Want to give them a try just for fun. I imagine big DD would want a ride too
I wonder if because it was painful to walk when she was forever impacted, that her muscles are weaker and out of Practice. Essentially she is very unfit. She also has mild asthma that has never really played up, but she does get very out of breath very quickly. Perhaps the combination is discouraging her.
I am trying to take her for a run around at the park everyday to build her stamina up.
She also has a turned in foot.... But i am not going to start addressing that until we are on track with the poo!

I know she doesn't want to see any more white coats, but a chat with a clued-up physio might give you some invaluable tips.

Just checking in, you and the little one are fantastic. That's all I can say. I'm fuming on your behalf and hers about the nursery carry on. Grrr. Last thing either of you needs at this point to be putting up with their ill informed nonsense!

Keep on keeping on and for both of you.

I'm a lurker whose been following the thread and hasn't hadn't realised until now that walking was a problem. Might be worth checking out hypermobility syndrome. People describe it as a joint condition but it's a connective tissue disorder and can affect bowels. If you're stretchy everywhere you can be stretchy on the inside too. It can also mean children find walking painful and might explain the turned in foot.

Unfortunately many medics outside rheumatology don't know much about it and some deny that it can affect internal organs. The hypermobility syndrome association has information if you want to look at this.

Depending how far up the blockage is pushing then it could be the feeling of fullness is affecting her asthma. One of my close friends with severe asthma gets very breathless after a large meal if she feels full.