4 week baby in intensive care - losing my mind

[Frecklesandspecs]

My 4 week baby has bronchiolitis and this morning took a turn for the worse. I took him to A and E and all the Dr s were called.
He wasn't breathing properly and they think he May have stopped breathing for a bit while waiting to see them.
Anyway he has had tubes put down him and was transferred to kings in London.

I've been at home with my other two sick kids while dh has been there during the transfer. I had planned to go and stay with him tonight but they don't have any available accomodation for parents.

I don't know what to do. Do I go and sit in the hospital ?
Stay home?
I'm really upset.

[WireCatGlitteryBaubles]

Oh dear

I hope he's better soon x

[minmooch]

Hope your little one is doing better today Freckles. My DS was in ICU after brain surgery and it was a very frightening, yet calm, place. Take care if yourself.

[Raeray]

Oh freckles I'm sorry to hear your little one is so poorly. I had replied on your previous thread checking how things were and someone pointed me in this direction.
Sending strength to you and get well vibes to your lovely little one. Hope things are looking brighter very soon. Kings are fab they will be taking great care.

[Elibean]

How is he, Freckles? And how are you? Sending good thoughts x

[Hangingoninthere]

Really hoping your little one is ok and you are ok. When my ds was in I was told that although all babies are different it is often after day 5 that they start to improve with Bronchiolitis. Sending you lots of positive wishes x

[pudseypie]

Just checking in to see how you are op. thinking of you x

[Mummyforman]

My son had this at 2 weeks old, already premature it was very serious for my boy. Oscar was oxygen dependant & had to be starved to give his lungs space to open due to congestion. Your baby is under the care of some amazing women!!! Personally I couldn't be kept away, but the severity of oscars was really bad & he was on CPAP as the nasal tubes were just not powerful enough. Babies with this condition either feed but need oxygen or won't feed but don't need oxygen, if this is the case your baby will be kept in. My boy was there for 2 weeks. It's not nice or easy but once they're in nicu there isn't much you can do apart from give mummy cuddles. Depending why your current 2 are poorly I'd personally be careful who is around baby.

I know just how hard this is, feel free to inbox me to talk xx thinking of you xx

[beautifulgirls]

Freckles has a very poor internet connection at the hospital so we may not be getting updates for now - I don't know any more other than they are still there.

[Elibean]

Thanks for letting us know x

And if you have any contact with her, please tell her she and ds are still in our thoughts

[Elibean]

Still thinking of you and ds, Freckles. Hope you're just busy with a recovering baby and other LO now

[Raeray]

Me too elibean!
OP I hope things are a little brighter and your little one is doing ok - we are still thinking of you.

[Penano]

Stumbled across this thread looking for MN support. My darling DD, 5 weeks old yesterday, is now in PICU with this horrendous virus having declined over the last few days. I feel like my heart has been ripped out. So... I'm thinking of you OP, and all mummies/daddies in the same situation & hoping our babies get better soon.

[HelloBear]

peneu wishing your DD a speedy recovery, how frightening it must be.

[Penano]

Thank you Bear. It is utterly terrifying.

[Quangle]

OP and Penano - thinking of you and hoping things get stabilised soon. It's so easy to get carried away with stress at Christmas and actually, I have no reason to be stressed. So thinking of you.

[Sirzy]

Penano, hope your DD is better soon too. When DS had it we were told days 3-5 are normally the worst and then the recovery generally starts.

Hope both babies are home and well for christmas x

[Elibean]

Penano, am thinking of you too. My dd was 4 weeks when we were in the same situation, at exactly the same time of year (in fact she went in on dd1's 3rd birthday, three days before Xmas).

The turning point is usually at 5 days, give or take, but waiting for that is awful - and yes, it does feel like your heart is ripped out when your baby is taken from your arms and there is nothing you can do but be there, and maybe express milk.

Big hugs to you and Freckles and all in the RSV boat this Xmas, and may your LOs be safe and well again very, very soon x

[Penano]

Thanks Elibean. Really don't want to hijack Freckles' thread - I hope her DS is stable or better still, improving.
We're day 5 now, 3 in PICU, & hoping for some positive news soon. Just for interest, how quickly did your DD take to improve?

[Hopingforno2]

Hi op my dd is 8 months and in childrens ward with bronchiolitis too so 'touches wood' not in icu like your poor little one i have an older ds too who would have thought a cold virus would cause this much bother! just another voice saying I understand how hard this is
I hope your dd is better now

[Raeray]

Just checking in to see how all your little ones are doing?

[tholeon]

Hi lovelies I am so sorry you are all going through this, it feels so desperate. My son was in picu for eight days on a ventilator with this almost exactly four years ago, he is a hale and hearty four year old now and we have - almost - forgotten the ordeal. Love and hope for very swift recoveries xx

[Elibean]

Hi Penano, and sorry to have taken this long to reply - it was dd1's birthday weekend (seven years since dd2's bronch episode!).

In answer to your question, once she started to turn the corner at 5-6 days she got better very fast. A few days, tops. She was a lucky one who had no lingering cough or problems from the RSV - though her floppy larynx and vast tonsils caused problems a year or two later, which needed surgery. Another story, and all sorted now

How is your LO now?

Freckles and Hoping, sending best wishes to your LOs too - I think it's lovely that Freckles' thread has turned into support for all parents of tinies with RSV

[Penano]

DD spent 3 nights in PICU and has been in hospital for a total of 10 days now but she is improving. It looks like she's following the 'Bronchi baby' course all the medics & nurses have talked about, however that feels impossible to believe when your baby is struggling in intensive care.
I really hope all the other posters on here with poorly babies start seeing improvement soon. And thanks to everyone who has replied to me - I'm a MN lurker & shy poster but I've really appreciated your support.

[Sirzy]

Peano glad she is on the mend. It is horrible when they are so ill but they do bounce back. My bronchi baby is now 4 and bouncing around singing Christmas songs.

[Elibean]

Penano very glad she's on the mend, and thank you for letting us know

My 4 week old bronch baby is now 7 and pestering the life out of me whilst waiting (yes, already) for Santa...