Children with Cancer

[Twunk]

Sadly we need a second thread :-(

My son Alex was diagnosed with ALL (Leukaemia) in July and we are making our way though the 2 years of treatment that are given here in the Netherlands.

If you want support, or wish to share your story, or can give support please do join us.

It's a shitty journey but together we'll get through it.

Still thinking of you mmmmsleep and min xxx

We are just settling into the teenage cancer ward. Parents are not supposed to stay but I'm not going anywhere! We have been on the chemo day unit all day. Dr gave him the once over and it's very clear Will has worrying neuro problems :-(.

He's had a chest X-ray - all clear. MRI done - results tomorrow. On his second dose of dexmeth to reduce any swelling and two bags of rehydration fluids.

Can't face results tomorrow but no choice.

mmmmsleep hope you are ok and any results are good.

Lots of love to everyone xxxxx

((((min))))
No don't you be going anywhere! Stay on that ward they'll just have to cope.

I am virtually holding your hand. xxxxxxx

They don't allow parents on the teenage cancer ward? Unbelievable.

Everything crossed for you and mmmmsleep.

So sorry to hear the latest news min. Thinking of you x.

Hi Stinky hope things are OK with you?

Yes not bad twunk. Scan in December showed ds's tumours were stable - no shrinkage this time, but no growth and nothing new, so I'm ok with that for now.

They've changed his chemo, so he's now on oral Temozolomide for 5 days with 23 days break. Next scan 17th March. He's doing well though - a bit more tired and bloods have dropped a bit, but getting on with life!

I think of you all and keep an eye on the thread even though I don't post very often.

minmooch I am sure I can speak for us all when I say that we are all thinking of you and praying for good news tomorrow. Please lean on us as much as you need xxxx

minmooch I'm so sorry you're facing this worry. we had scan today. proper results Wednesday. they had to check no bleed today...which there wasn't. phew! but proper look at tumour needs to be done by radiologist so I'm off to bite my nails until they're raw.

min I hope scans are ok and his symptoms improve asap xxxx

Stinky thanks for the update. I hope this new regimen brings good results.

Minmooch and mmmmsleep you are in my thoughts as I go to sleep, as you have been all day xxxx

((((((((((( min ))))))))))))

Desperately hoping for some good news for you today x

Tuesday hugs for everyone. (((((MIN))))) (((((MMMMSLEEP)))))

In other, less serious, news...Alex has a chalazion. It's a blockage creating a large lump under his eye. Nothing in the scheme of things but I've found myself upset because it could take a year to go and it's extremely unsightly (no pun intended). Other than that though he's getting over his month of dex.

The news is terrible. He's got a few months max. I am broken

((Min)) so sorry. I don't know what to say. Hope you have someone irl with you.

Xxxxxx

Oh min, I am so so sorry to hear this. Please please lean on us as much as you need xx

((Min)) my poor love. You've fought so hard, it's so unfair. So so sorry to hear this.

I'm so sorry min. There are no words. Love and strength to you and your boys xx

Oh dear Min. I'm so sad and sorry to read this. You and your poor boy have been through so much, it just seems so unfair. (((Min)))

De-lurking.

Min: my heart lurched and aches for you. I don't know what to say - words are just all so inadequate. I'm so, so sorry. You and W have fought so hard. Much love, strength and hugs to you all. XXX

Oh min I am so so so so sorry (((((((())))))))

De- lurker here Oh Min I am so sorry.

Oh minimooch, delurking here to say how sorry I was to read your news,I have a similar age Will to yours ,he has his own health problems nothing like yours but he is nevertheless courageous ,it must be a Will thing .

Your love and support for your son has shone through your posts and I am in awe of your courage .Theres nothing to say that will bring any comfort everything seems inadequate ,no one deserves this

min I am so very very sorry. there are no words that suffice. just sending my love xxxx
results tomorrow morning for us.

Minmooch I am so very, very sorry. You and your boys are in my thoughts. I cannot begin to imagine what you are all going through.

We are 18 years on from our battle with this same bastard tumour and it absolutely breaks my heart that it is still destroying lives and families. This is so very, very fucking unfair.

Oh Min... I am so desperately sorry. There simply aren't any words. My heart aches for you, your darling boy and the test if your family xx